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Reading and found this...

Chance

"all who wander are not lost" - Tolkien
V.I.P Member
I was/am on Sensory-Processing-Disorder.com reading stories and articles, and I came across one that might have some relevance but I have no idea really.

When I was little I had ear infections that were unthinkable and they finally put in tubes...
Took out my tonsils and adenoids also...

Never once considered anything about it, until I read this short snippet on the subject...

https://www.sensory-processing-disorder.com/son-with-spdear-infections.html

I was just wondering how many of us as kids had really bad ear infections - just curious more than anything.

I have hyperacusis (extremely sensitive or painful hearing) and they relate it to SPD, but what if the tube surgery maybe caused that part of my SPD? It still doesn't how it affects sense of touch, smell, sight, and sense of surroundings...

Just digging as usual... : )
 
I have bad hyperacusis with SPD, I also have subclinical auditory processing disorder symptoms in one ear (that can be differentiated from the hyperacusis/SPD issues).

I had a lot of bad ear infections as a child, and a lot of tonsilitis, but the doctors left my tonsils in and I never needed to have tubes put into my ears.
 
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OMGOSH! I had tubes in ear and all. Hmmmmmmm. I a a firm believer that there are reasons we are like this that have not been discovered yet.
 
Chance, for some reason your post prompted me to search for any relation of Aspergers and Tinnitus.

Thought it would be a "shot in the dark" without any data. I was wrong. I've had tinnitus now for a few years. It can get pretty annoying, especially when trying to sleep. My right ear ringing endlessly.

This kind of gives me the creeps. I would have never thought to consider both conditions relative to one another.

CONCLUSIONS:
H
yperacusis and tinnitus are more prevalent in the ASD population subgroup diagnosed with AS under DSM-IV criteria than in the general public. :eek:

https://www.ncbi.nlm.nih.gov/pubmed/26243502
 
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Chance, for some reason your post prompted me to search for any relation of Aspergers and Tinnitus.

Thought it would be a "shot in the dark" without any data. I was wrong. I've had tinnitus now for a few years. It can get pretty annoying, especially when trying to sleep. My right ear ringing endlessly.

CONCLUSIONS:
H
yperacusis and tinnitus are more prevalent in the ASD population subgroup diagnosed with AS under DSM-IV criteria than in the general public. :eek:

https://www.ncbi.nlm.nih.gov/pubmed/26243502

I've had tinnitus ever since I can remember (well as an adult) but I always attributed it to smoking. I don't think I had a lot of ear infections as a child but did have T & A out. I'm so used to the ringing I usually don't notice it unless it gets louder than usual.
 
I've had tinnitus ever since I can remember (well as an adult) but I always attributed it to smoking. I don't think I had a lot of ear infections as a child but did have T & A out. I'm so used to the ringing I usually don't notice it unless it gets louder than usual.

I try to ignore it, but quite honestly it brings me to tears when I'm trying to enjoy music. Just hope the other ear doesn't begin to ring too. Sleep isn't too easy either, so I usually try to sleep on that side to muffle the ringing.
 
I try to ignore it, but quite honestly it brings me to tears when I'm trying to enjoy music. Just hope the other ear doesn't begin to ring too. Sleep isn't too easy either, so I usually try to sleep on that side to muffle the ringing.

Aaaw Judge, it sucks that it affects listening to music and sleep.
 
This is interesting.
I've always had 24 hour tinnitus. It used to really bother me, but have finally learned to just live with it.
 
I have tinnitus that comes and goes. Its frequency has increased lately (I notice it almost every night when I go to bed).
 
Strange, because, each end of the year, I suffered from chronic ear infections and tonsilities, to the extent that I was vomiting with the pain and developed a hatred ( thankfully, it didn't continue) for white. The problem was, the walls of the house were white and I had to bury my face under my covers, because of how ill the colour ( or non colour) made me feel.

I was either: too young or too old to have relief. Then it was: we will operate if wax is spilling out, which denoted seriousness and that did not occur.

I think, perhaps it was a good thought on the dr, because I have "grown out" of the pain. Do get the occasional ear ache, but nothing to what it was.

However, what has developed and I cannot get past it; is that I cannot cope with looking in other people's ears. Once, my young sister had a severe ear ache, that caused her to be screaming in pain, and I was deemed as selfish, because I was weak with sickness every time I went near ie like some are weak with the sight of blood. I think it is linked to my childhood issue.

I do get the occasional ringing in the ears, but in truth, I think it is connected to me having a spat of listening to music with my ear phones, on high.

Due to never protecting his ears from loud gardening machinary, my husband is virtually deaf in one ear and has ringing in the ears. So be warned anyone: wear those protective ear muffs!
 
I've had tinnitus also since around age 13.
The severity comes and goes, but is constant.
I never thought of an AS connection, but, it would make sense.
Our whole body seems to be extra sensitive.
Or at least mine does.
The tinnitus is worse when I am anxious.
It gets better when relaxed.
So again the sensitivity of the nervous system is involved.
 
Strange, because, each end of the year, I suffered from chronic ear infections and tonsilities, to the extent that I was vomiting with the pain and developed a hatred ( thankfully, it didn't continue) for white. The problem was, the walls of the house were white and I had to bury my face under my covers, because of how ill the colour ( or non colour) made me feel.

I was either: too young or too old to have relief. Then it was: we will operate if wax is spilling out, which denoted seriousness and that did not occur.

I think, perhaps it was a good thought on the dr, because I have "grown out" of the pain. Do get the occasional ear ache, but nothing to what it was.

However, what has developed and I cannot get past it; is that I cannot cope with looking in other people's ears. Once, my young sister had a severe ear ache, that caused her to be screaming in pain, and I was deemed as selfish, because I was weak with sickness every time I went near ie like some are weak with the sight of blood. I think it is linked to my childhood issue.

I do get the occasional ringing in the ears, but in truth, I think it is connected to me having a spat of listening to music with my ear phones, on high.

Due to never protecting his ears from loud gardening machinary, my husband is virtually deaf in one ear and has ringing in the ears. So be warned anyone: wear those protective ear muffs!

One of my most horrifying memories is when I woke up from the surgery of having my tonsils and stuff removed... I woke up throwing up (after the anesthesia wore off) and I remember the nurse saying, "No, no, sweetie you will rip your stitches..." It was horrible...
 
One of my most horrifying memories is when I woke up from the surgery of having my tonsils and stuff removed... I woke up throwing up (after the anesthesia wore off) and I remember the nurse saying, "No, no, sweetie you will rip your stitches..." It was horrible...

I am guessing you were not prewarned?

I was in my 20's, when I had my appendix removed and all I remember, was the terrible pain on waking up and wondering what on earth was going on and then, people saying that I had caused a near panic, because they could not wake me up! I realised I was lying in my own blood and then, whisked to a ward and each time I needed to go to the toilet, a curtain was drawn and I was on morphine for most of the time.

It felt like ages, but in fact, I believe I was only in there for 3 days. I was in for 7, with the recent operation and it was SO DIFFERENT. I was on a high most of the time and was flipping blowing kisses at the nurses, as they went to close the door. I had a vague sense of: what the heck am I doing and besides, despite how friendly they were being, they did not blow kisses back and I was mortified. And that was BEFORE going under and someone recently said that it was probably the painkillers I was on, that caused me to go lala hehehehe

I know that it is quite impossible for childhood memories to be all good, because not a single one of us, are perfect, but what people do not appreciate, is what an impact our childhoods have on as as adults.

It is said: get over it; it is the past and this is now. Mmm of course, factually that is true, but we are still the same people, just grown up and so it is inevitable that our childhoods will play a huge part on how we are as adults.
 
I am guessing you were not prewarned?

I was in my 20's, when I had my appendix removed and all I remember, was the terrible pain on waking up and wondering what on earth was going on and then, people saying that I had caused a near panic, because they could not wake me up! I realised I was lying in my own blood and then, whisked to a ward and each time I needed to go to the toilet, a curtain was drawn and I was on morphine for most of the time.

It felt like ages, but in fact, I believe I was only in there for 3 days. I was in for 7, with the recent operation and it was SO DIFFERENT. I was on a high most of the time and was flipping blowing kisses at the nurses, as they went to close the door. I had a vague sense of: what the heck am I doing and besides, despite how friendly they were being, they did not blow kisses back and I was mortified. And that was BEFORE going under and someone recently said that it was probably the painkillers I was on, that caused me to go lala hehehehe

I know that it is quite impossible for childhood memories to be all good, because not a single one of us, are perfect, but what people do not appreciate, is what an impact our childhoods have on as as adults.

It is said: get over it; it is the past and this is now. Mmm of course, factually that is true, but we are still the same people, just grown up and so it is inevitable that our childhoods will play a huge part on how we are as adults.

I don't think they even told me I was going to have surgery... I would have freaked out. I always tend to say how horrible people were to me... I was not an easy kid to deal with by any means. I came into this world very confused... It seems I may leave this world still confused.

I was at times impossible to deal with and I feel horrible for it, and I always will but could I help it...

No, I truly don't think so, just like today... Yes, I have matured so much, but I still have situations I cant fit myself into. So many things just sort of short circuit and internally and I freak out, where as it was just a mess when I was a kid. I wouldn't talk. I was terrified of LIFE in general (still am in some ways).

Communicating how I felt back then was all but impossible. I had no words for the confusion I was dealing with and I was smart enough to notice when I was very young that no one else seemed to be struggling like I was. Its hard to deal with those facts sometimes - even today.

So no, if anything was going to be "bad" they wouldn't tell me until it was happening, or I would have to figure it out afterward on my own.

When I broke my right arm (its was a compound break and my bone came through the skin)... I still get sick thinking about it, and sort of feel sick as I write this... I went out as soon as I saw what happened and woke up later in the hospital. This was right after my tonsil and ear thing...

Then it was healing badly, and this old gruff doctor said (right in front of me), "Well we are going to have to re-break this arm and reset it, its not healing right..." I went out just like I did when I broke it... It was just too much for me to process.

My ASD life has been a weird journey, but I guess its all I actually know, so in the same breath its just a "normal" I never quite fully grasp. : )
 
I have hyperacusis. I have had ear infections in the past too, but I have always had sensitivity to sound. A hyperacusis and tinnitus specialist therapist told me that both conditions were the result of trauma, and his job was to provide therapy. He also says that hyperacusis is more common in people on the spectrum.
 
Sensitive to sound, so much that it turned into phonophobia. When I was a child some of my family would only whisper or talk in soft voices near me because I would go into panic attack if someone shouted, although it may have a lot in common with events happening during that time. Ringing in the ears, especially the right one, not very often, thankfully. Still, I do listen to music with headphones on high so...

From what I know I had one bad ear infection when I was little, although thankfully no surgery. Can't remember it, so it's only a hearsay though.
 
I've had tinnitus ever since I can remember (well as an adult) but I always attributed it to smoking. I don't think I had a lot of ear infections as a child but did have T & A out. I'm so used to the ringing I usually don't notice it unless it gets louder than usual.
try taking extra magnesium it can be a lack of it?hope this helps
 
I try to ignore it, but quite honestly it brings me to tears when I'm trying to enjoy music. Just hope the other ear doesn't begin to ring too. Sleep isn't too easy either, so I usually try to sleep on that side to muffle the ringing.
try tak
I try to ignore it, but quite honestly it brings me to tears when I'm trying to enjoy music. Just hope the other ear doesn't begin to ring too. Sleep isn't too easy either, so I usually try to sleep on that side to muffle the ringing.
The tinnitus journal.com reports a study said that most Americans are deficient in magnesium 100 mg and that magnesium is beneficial in tinnitus and idiopathic sensorineural hearing loss it is supposed to greatly reduce symptoms of tinnitus .
 
Strange, because, each end of the year, I suffered from chronic ear infections and tonsilities, to the extent that I was vomiting with the pain and developed a hatred ( thankfully, it didn't continue) for white. The problem was, the walls of the house were white and I had to bury my face under my covers, because of how ill the colour ( or non colour) made me feel.

I was either: too young or too old to have relief. Then it was: we will operate if wax is spilling out, which denoted seriousness and that did not occur.

I think, perhaps it was a good thought on the dr, because I have "grown out" of the pain. Do get the occasional ear ache, but nothing to what it was.

However, what has developed and I cannot get past it; is that I cannot cope with looking in other people's ears. Once, my young sister had a severe ear ache, that caused her to be screaming in pain, and I was deemed as selfish, because I was weak with sickness every time I went near ie like some are weak with the sight of blood. I think it is linked to my childhood issue.

I do get the occasional ringing in the ears, but in truth, I think it is connected to me having a spat of listening to music with my ear phones, on high.

Due to never protecting his ears from loud gardening machinary, my husband is virtually deaf in one ear and has ringing in the ears. So be warned anyone: wear those protective ear muffs!
yes I agree with Suzanne wear ear muffs and addition to that earplugs my mother had a client who operated a hydraulic drill and she was worried he was going to be permanently deaf because the earmuffs did not fully protect his ears sadly he didn't wear them very often .
I can attest to protecting your ears ,going suddenly deaf is terrifying !and of course the other ear is still hyper sensitive to sound !!!!and now it has the burden of the ear that is deaf.
 

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