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Fed up with other thinking they have aspergers

Crossbreed said:
(Gifteds, without autism, have a similar disruptive oddity about them.)
Click to expand...
I'm starting to believe at this point that they just go undiagnosed, because they figure out social situations. Tbh what people recently tell me as a response to telling them is quite shocking. Shocking that they notice and I didn't. Probably, people are just not aware and figure things out intellectually and are left with the core symptoms only such as "you don't mirror facial expressions", oversensitivities and rigid routines. "Gifted" means having special interests and excelling at them.
 
The Pandector said:
Now I see where you’re coming from. If it were ‘free’ (an odd perception) then I would certainly seek a formal diagnosis.

You say your opinion is ‘colored’ by your healthcare situation. I’d go so far as to say you’re not even on the same palette, comparing apples to pomegranates. In my world, that one little difference makes it an entirely different equation.

Not to put words in your mouth, but maybe you could modify your ruling to say that no Dutch citizen should be allowed to say they’re autistic without a formal diagnosis. Because, as a US citizen, if I’m in a situation where I feel I need to reveal my condition, I am not about to tell people that I ‘suspect’ I’m autistic.

To delegitimize my hard-fought self-diagnosis by disallowing my use of the word seems harsh. As others around here have often noted, the medical professions are a long way from being infallible.

I recently had a pretty severe medical issue. The area around my solar plexus was so hypersensitive that I often had to hold my shirt away from my chest. My PCP explained this in a note to a heart specialist, who began our interview by mocking me holding out my shirt; he thought it was a silly assertion. I could fill pages with stories of medical professionals who don’t understand the nature of my condition, which doesn’t stop them from making authoritative pronouncements. BTW, it was a pinched nerve, which swelled abdominal muscles, nothing to do with my heart, which they tell me is wonderfully healthy (probably have a heart attack tomorrow).

I admit that my estimation of the value of a professional diagnosis is affected by a long lifetime of just such experiences. Nevertheless, if it were ‘free’, I would allow my countrymen to provide me with a formal diagnosis.

Note:
As I reread before posting, I wonder if it sounds as though I’m angry or offended. I’m not; I tend to express myself in rather stark terms. Be well, brother.
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You post didn`t come across as angry or offended to me at all.
It is exactly why I wanted to point it out.

It is not technically free here because you pay about a 100 bucks a month for your insurance, and need to pay the first 375 of the costs you make each year. But after those costs it does not really matter whether the care for you costs 500 euros or 50.000 euros. There are some technical things here and there, but that is the gist of it.

So I indeed think that no Dutch citizen should have to go without a diagnosis. And thus to me, should not claim autism unless a medical proffesional as diagnosed them.
Or citizens from any other country (mostly european I think) who have similar healthcare systems.
 
kenaij said:
It is exactly why I wanted to point it out.
Click to expand...

I think your logic is biased.

If people without a diagnose should not claim to be autistic and should claim to suspect being autists instead....

...Then...

...People with an autism diagnose should not claim to be autistic and should claim to have an autism diagnose instead.

You do a good work on making the difference from suspecting autism and being autist, but you ignore chances of wrong diagnoses to assume that a person with an autist diagnose is actually an autist.

That would be right if the diagnose process was reliable, like detecting blood types, but its actually NOT that reliable. Not even in your country. You are assuming something that is wrong.

And that makes your logic biased against people who self diagnose, like the "official" diagnose was way more accurate than a self diagnose. Sadly it is not that accurate.

On top of that mistake, when you claim what other people can and cant say, you are implying that they are wrong and you are right.

Thats very autistic (to think that we own the truth because something seems logic to us), but to others may feel somewhat ugly that you come to tell them what they must think and claim.
 
Per the original post, I think idea is the danger or annoyance in not being able to spot the red flags of sociopath types compared to who are truly on the spectrum..?
 
Misty Avich said:
I agree with that and I hate the way they've taken away severity/functioning labels and just call autism one thing.
Click to expand...
In the ICD-11 (where you are), there is now
  1. Autism w/o Cognitive Deficits &
  2. Autism w/Cognitive Deficits,
so it is kind of the same thing.
 
Misty Avich said:
I don't think every gifted person has autism.
Click to expand...
True, but a higher percentage of us* do.
One common trait among gifteds is that we develop asynchronously. If one's social development is delayed enough, it meets the criteria for autism.

*Many here are twice exceptional [2e], meaning that they are gifted AND autistic. The two conditions are related, and both (along with left-handedness) are forms of neuro-diversity.
 
Crossbreed said:
True, but a higher percentage of us* do.
One common trait among gifteds is that we develop asynchronously. If one's social development is delayed enough, it meets the criteria for autism.

*Many here are twice exceptional [2e], meaning that they are gifted AND autistic. The two conditions are related, and both (along with left-handedness) are forms of neuro-diversity.
Click to expand...
IF neuro-diversity was not good it would disappear.
 
The Pandector said:
Now I see where you’re coming from. If it were ‘free’ (an odd perception) then I would certainly seek a formal diagnosis.

You say your opinion is ‘colored’ by your healthcare situation. I’d go so far as to say you’re not even on the same palette, comparing apples to pomegranates. In my world, that one little difference makes it an entirely different equation.

Not to put words in your mouth, but maybe you could modify your ruling to say that no Dutch citizen should be allowed to say they’re autistic without a formal diagnosis. Because, as a US citizen, if I’m in a situation where I feel I need to reveal my condition, I am not about to tell people that I ‘suspect’ I’m autistic.

To delegitimize my hard-fought self-diagnosis by disallowing my use of the word seems harsh. As others around here have often noted, the medical professions are a long way from being infallible.

I recently had a pretty severe medical issue. The area around my solar plexus was so hypersensitive that I often had to hold my shirt away from my chest. My PCP explained this in a note to a heart specialist, who began our interview by mocking me holding out my shirt; he thought it was a silly assertion. I could fill pages with stories of medical professionals who don’t understand the nature of my condition, which doesn’t stop them from making authoritative pronouncements. BTW, it was a pinched nerve, which swelled abdominal muscles, nothing to do with my heart, which they tell me is wonderfully healthy (probably have a heart attack tomorrow).

I admit that my estimation of the value of a professional diagnosis is affected by a long lifetime of just such experiences. Nevertheless, if it were ‘free’, I would allow my countrymen to provide me with a formal diagnosis.

Note:
As I reread before posting, I wonder if it sounds as though I’m angry or offended. I’m not; I tend to express myself in rather stark terms. Be well, brother.
Click to expand...
Pandector, I don't think you sound angry, just realistic about medicine in USA.

I had theoretically one of the best pcp in our city and I trusted him for 27 years but shouldn't have

Sorry but you are right about diagnostics in usa
If you have something easy and clear to diagnose and a fairly good doctor, ok but if you are complicated or multiple issues you are in trouble - they have all specialized so far down to details they cannot see the whole person standing in front of them
 
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