We had Kyoko's ultrasound appointment yesterday at the hospital, she knew it was just an ultrasound and then afterwards we would go get a monster high doll(her obsession). We went into the room the sonographer was asking her questions(what's your name, how old are you etc). Everything went fine until she had to get on the bed, she started getting nervous and coming out with her usual "I'm scared". After much coaxing we got her on the bed, then it took ages to get her top lifted and the paper towel stuff on her. The sonographer squeezed some of the gel stuff on and Kyoko yelped and said it was cold and then started pulling her top down and trying to move away saying she was scared. Eventually the sonographer started scanning her bladder, the whole time Kyoko was trying to push her away and was almost curled up to stop her doing it, so the sonographer stopped.
I took Kyoko to the toilet (her bladder was full) and she said she didn't want to go back in to have it done on her back(to scan her kidneys) that it really hurt. So I was trying to get her to understand that she just thought it was going to hurt(anxiety) because there was nothing to cause pain, it was just cold gel and a rollerball going across her skin, no cannulas or injections or gas or anything, it was not like the other scans. Walking back towards the scan room she kept saying she was scared, it hurt etc etc, she refused to go into the room, so I had to stand with the door open and wait for her to go in for about 10 minutes.
She eventually went in and hid in a corner and wouldn't speak, so me being the genius(idiot?) that I am I said if she did this she could have a super special toy that I was saving for her birthday. She asked me what it was but I said she had to have the scan and then I would tell her but she shook her head and then eventually said "if you tell me what it is I will do it I promise" so I told her I'd got her the monster high Gil Webber doll. To put this into context this doll cost me ?120 (MH dolls average at about ?20 but he is super rare) and I got it ready because she really wanted it and had a massive meltdown a few weeks ago over the fact if she got that for her birthday she would not get anything else(her words not ours) and no amount of reassurance would calm her, we had 2 days of her randomly crying because she would never have this doll to complete her collection, so I bought one off ebay ready(as they are getting harder and harder to get and the price keeps going up).
So when she realised she would get Gil Webber she walked over to the bed but then wouldn't get on, she started getting upset again and repeating over and over that she wanted to have Gil but she was too afraid to have it done. The sonographer was great, said "how about if you sit on daddy's lap and I will scan your back that way?". So he sat down with her but she wouldn't turn to put her back towards the sonographer she just started crying...then screaming, so the sonographer said to stop and re-schedule.
Very very long story short one of the admin staff came in and told us to leave as they needed the room (Kyoko was hiding behind a chair screaming and crying). My husband carried her out, she was wailing so loudly every single person in the department stared at us. I had to go speak to the receptionist about re-scheduling so the two of them went out into the corridor via 2 double doors, she was screaming/crying so much you could still hear her and all you could hear between sobs/wails was "But I want the Gil doll but I can't and I want, daddy please, please, I'll do it, tell them I'll do it now". We'd already explained to her that they didn't have time to fit us in and we had to come back but she just kept repeating herself, everybody was giving me the nasty glares (you know the ones). So I said as loud as I could to the receptionist "I'm really sorry for messing you about, it's her autism you see she can't help it.." and then I asked about re-booking, we just have to phone up and ask for the next available appointment.
The rest of the day we had crying on and off and pleas to have the doll but I was not giving in. I was annoyed because my husband said she could still go and get the original doll she was supposed to get. That really annoyed me because everytime we go for these scans regardless of whether she gets it done he says she can get a toy, so it's like whether she does/does not do it she gets a reward, he does it every time so I warned him we are not buying anything next time. We also had her crying that night saying she would be too upset to go to school the next day, needless to say she went to school! Even going out the door she was saying how she was going to be upset all day because of how upsetting Tuesday was, she wrote a note to us asking if she could just look at the doll....ugh you know when you just regret saying anything at all? Really wish I hadn't told her about the doll! Thankfully she came home from school smiling and didn't mention the doll at all and even when we played monster high she didn't mention it. She was happy all the way to tap dance and showed her teacher her certificate that said distinction on it (she was really proud of it) and she was absolutely fine, wondering when this will all re-surface though.
So now I don't know what we are going to do, the ultrasound was to determine whether her kidneys had suffered anymore damage since the one she had over a year ago. If they were still the same they are going to put the more invasive scans on hold until she's older and more able to cope with things. Even explaining that to Kyoko didn't help get the ultrasound done on Tuesday. It really is a case of get the ultrasound done and potentially no more hospital for 2 years....ugh think our only option now is a hypnotist or something :unsure:
I took Kyoko to the toilet (her bladder was full) and she said she didn't want to go back in to have it done on her back(to scan her kidneys) that it really hurt. So I was trying to get her to understand that she just thought it was going to hurt(anxiety) because there was nothing to cause pain, it was just cold gel and a rollerball going across her skin, no cannulas or injections or gas or anything, it was not like the other scans. Walking back towards the scan room she kept saying she was scared, it hurt etc etc, she refused to go into the room, so I had to stand with the door open and wait for her to go in for about 10 minutes.
She eventually went in and hid in a corner and wouldn't speak, so me being the genius(idiot?) that I am I said if she did this she could have a super special toy that I was saving for her birthday. She asked me what it was but I said she had to have the scan and then I would tell her but she shook her head and then eventually said "if you tell me what it is I will do it I promise" so I told her I'd got her the monster high Gil Webber doll. To put this into context this doll cost me ?120 (MH dolls average at about ?20 but he is super rare) and I got it ready because she really wanted it and had a massive meltdown a few weeks ago over the fact if she got that for her birthday she would not get anything else(her words not ours) and no amount of reassurance would calm her, we had 2 days of her randomly crying because she would never have this doll to complete her collection, so I bought one off ebay ready(as they are getting harder and harder to get and the price keeps going up).
So when she realised she would get Gil Webber she walked over to the bed but then wouldn't get on, she started getting upset again and repeating over and over that she wanted to have Gil but she was too afraid to have it done. The sonographer was great, said "how about if you sit on daddy's lap and I will scan your back that way?". So he sat down with her but she wouldn't turn to put her back towards the sonographer she just started crying...then screaming, so the sonographer said to stop and re-schedule.
Very very long story short one of the admin staff came in and told us to leave as they needed the room (Kyoko was hiding behind a chair screaming and crying). My husband carried her out, she was wailing so loudly every single person in the department stared at us. I had to go speak to the receptionist about re-scheduling so the two of them went out into the corridor via 2 double doors, she was screaming/crying so much you could still hear her and all you could hear between sobs/wails was "But I want the Gil doll but I can't and I want, daddy please, please, I'll do it, tell them I'll do it now". We'd already explained to her that they didn't have time to fit us in and we had to come back but she just kept repeating herself, everybody was giving me the nasty glares (you know the ones). So I said as loud as I could to the receptionist "I'm really sorry for messing you about, it's her autism you see she can't help it.." and then I asked about re-booking, we just have to phone up and ask for the next available appointment.
The rest of the day we had crying on and off and pleas to have the doll but I was not giving in. I was annoyed because my husband said she could still go and get the original doll she was supposed to get. That really annoyed me because everytime we go for these scans regardless of whether she gets it done he says she can get a toy, so it's like whether she does/does not do it she gets a reward, he does it every time so I warned him we are not buying anything next time. We also had her crying that night saying she would be too upset to go to school the next day, needless to say she went to school! Even going out the door she was saying how she was going to be upset all day because of how upsetting Tuesday was, she wrote a note to us asking if she could just look at the doll....ugh you know when you just regret saying anything at all? Really wish I hadn't told her about the doll! Thankfully she came home from school smiling and didn't mention the doll at all and even when we played monster high she didn't mention it. She was happy all the way to tap dance and showed her teacher her certificate that said distinction on it (she was really proud of it) and she was absolutely fine, wondering when this will all re-surface though.
So now I don't know what we are going to do, the ultrasound was to determine whether her kidneys had suffered anymore damage since the one she had over a year ago. If they were still the same they are going to put the more invasive scans on hold until she's older and more able to cope with things. Even explaining that to Kyoko didn't help get the ultrasound done on Tuesday. It really is a case of get the ultrasound done and potentially no more hospital for 2 years....ugh think our only option now is a hypnotist or something :unsure:
