The Lorax
Well-Known Member
I don't know what to do to improve this situation or when my son will be able to do it on his own. So I wanted to ask the community since I can't be in his head or understand what is going on in his head. I wanted to get an ASD perspective.
A little background...
My wife and son both have ASD+ADD. Very mild. My wife holds a high paying job. I take care of the rest of the family needs and have a business of my own. We both work from home. My son's condition is less manageable than hers. They are both geniuses.
My son has a weak executive function. We moved to the best school district in our state with services to help him. He is 2 grades ahead in school. He is medicated with anti-anxiety and ADD medication, as is my wife, which make him functional. He is in advanced classes. But...
I have to micromanage so many things in his life it is exhausting. If I don't the situation escalates and deteriorates to the point it explodes into meltdowns.
Food - He won't make food for himself if he is doing something. Then he gets irritable and unmanageable because he is hungry and refuses to eat until he exhausts me and himself to where I find a window to feed him. This happens roughly 50% of the time. Other times he realizes it and makes his own food if no one is around to help him and something easy is available like a frozen food.
School Work - He does his school work when he wants to if he wants to. I have remind him of his work and manipulate the situation to get him to do it. It's a constant mental game. He is a "B" student with an "A" education that always scores the highest on state assessments.
Night Time - I have to put controls on the night time process that literally takes 3 hours so he falls asleep. Any disruption in that process he is up well past midnight.
He can't do physical activity due to exertional asthma. He was taking martial arts till he collapsed and couldn't breath. It slowly developed over a span of 5 years.
If you meet him he seems NT. You would have to spend time with him to notice something was different.
From what I have observed his perception of time and executive function just aren't there. He is learning executive function at school but I see little improvement.
#1 Punishment doesn't work it only escalates.
#2 I can't in anyway get upset or he has a meltdown.
#3 I literally have to keep an eye on or ear open on him and my wife because they set each other off because he starts getting hyper and she can be that way too on occasion.
#4 Neither realize and preempt the situation so I constantly have to referee.
He is a good kid. He is kind. He likes school. Teachers like him. He doesn't lie. He isn't destructive like my friend's kid with ADHD. His intelligence keeps him afloat at school. I also don't ever have to sit with him to do homework for an hour because he gets everything. But I would rather do that for an hour than what is happening now.
Frankly I don't know how I stay calm in our home. I manage two ASD people + a business. I am mentally exhausted daily. My wife alone is easy. Our son is the only thing that drastically stresses her out.
I don't know how to improve this situation or help, or if I can. Is there a magical age where all this shakes out? Am I just stuck working around it till he grows up? Which is what I currently believe.
I feel like he has anxiety attacks and meltdowns around me because he feels he is disappointing me. I don't raise my voice but it is hard for me to hide my frustration. I just can't fake a happy face. I am right or is this some defense mechanism that he knows if he melts down I go away till he calms down or gets his way? Which if I stand my ground it gets worse to the nth degree.
I really need a vacation from everything.
A little background...
My wife and son both have ASD+ADD. Very mild. My wife holds a high paying job. I take care of the rest of the family needs and have a business of my own. We both work from home. My son's condition is less manageable than hers. They are both geniuses.
My son has a weak executive function. We moved to the best school district in our state with services to help him. He is 2 grades ahead in school. He is medicated with anti-anxiety and ADD medication, as is my wife, which make him functional. He is in advanced classes. But...
I have to micromanage so many things in his life it is exhausting. If I don't the situation escalates and deteriorates to the point it explodes into meltdowns.
Food - He won't make food for himself if he is doing something. Then he gets irritable and unmanageable because he is hungry and refuses to eat until he exhausts me and himself to where I find a window to feed him. This happens roughly 50% of the time. Other times he realizes it and makes his own food if no one is around to help him and something easy is available like a frozen food.
School Work - He does his school work when he wants to if he wants to. I have remind him of his work and manipulate the situation to get him to do it. It's a constant mental game. He is a "B" student with an "A" education that always scores the highest on state assessments.
Night Time - I have to put controls on the night time process that literally takes 3 hours so he falls asleep. Any disruption in that process he is up well past midnight.
He can't do physical activity due to exertional asthma. He was taking martial arts till he collapsed and couldn't breath. It slowly developed over a span of 5 years.
If you meet him he seems NT. You would have to spend time with him to notice something was different.
From what I have observed his perception of time and executive function just aren't there. He is learning executive function at school but I see little improvement.
#1 Punishment doesn't work it only escalates.
#2 I can't in anyway get upset or he has a meltdown.
#3 I literally have to keep an eye on or ear open on him and my wife because they set each other off because he starts getting hyper and she can be that way too on occasion.
#4 Neither realize and preempt the situation so I constantly have to referee.
He is a good kid. He is kind. He likes school. Teachers like him. He doesn't lie. He isn't destructive like my friend's kid with ADHD. His intelligence keeps him afloat at school. I also don't ever have to sit with him to do homework for an hour because he gets everything. But I would rather do that for an hour than what is happening now.
Frankly I don't know how I stay calm in our home. I manage two ASD people + a business. I am mentally exhausted daily. My wife alone is easy. Our son is the only thing that drastically stresses her out.
I don't know how to improve this situation or help, or if I can. Is there a magical age where all this shakes out? Am I just stuck working around it till he grows up? Which is what I currently believe.
I feel like he has anxiety attacks and meltdowns around me because he feels he is disappointing me. I don't raise my voice but it is hard for me to hide my frustration. I just can't fake a happy face. I am right or is this some defense mechanism that he knows if he melts down I go away till he calms down or gets his way? Which if I stand my ground it gets worse to the nth degree.
I really need a vacation from everything.