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How I Was Treated Like Absolute Trash for Being an Autistic Person

Am I off my rocker?

  • Off your rocker

    Votes: 0 0.0%
  • Completely Justified

    Votes: 1 100.0%

  • Total voters
    1

marrowbuster

New Member
Hi. This is a post I've been wanting to get off of my chest for a while now, as it concerns my life up to this point, how I feel it flat out sucked at times, and where do I go from here; how will I heal from all that's been forced upon me growing up and be able to be a functioning member of society?

To begin, I was diagnosed autistic at the age of 2. This was only a few years after the Wakefield study, and that combined with having religiously psychotic parents makes me feel like I rolled some really crap dice. Not just religious psychosis but folks obsessed with alternative medicine and diets as a means of trying to "fix" me. Gluten and casein were treated as boogeymen leading to me receiving some bland and boring food growing up, even at the school level.

I was unvaccinated growing up and sicknesses were treated with homoeopathic medicine, essential oils, and prayer. I remember being really sick as a dog, many times, to the point of hallucination and crying. I feel it made my ADHD worse and gave me some kind of genuine brain damage.

It also didn't help that I was dragged around to autism centres wherein my folks would, as they say, "LeArN fRoM tHe PrOfFeSiOnaLS" because they weren't able to think for themselves, and actually make their own goddamn judgements; not just to that but also church and social situations wherein I clearly was extremely anxious and overwhelmed in, and they just didn't care.

From a young age, I just felt as if my life weren't my own. I felt overlooked and like I just had to go along with whatever bullcrap was forced upon me. Everything from religious education like CCD, communion, and other Catholic sacraments, to being dragged around the mall as my sister got to try on clothes at Victoria's Secret, Gilly Hicks, and other places, but I wasn't even allowed my DS or even a quarter for the gumball machine. It taught me to dissociate very early on.

Not only that, it was made worse because whatever interests I had, they were treated as obsessions to be used against me as punishment for "misbehaviour." Like, if I were to refuse to go to church, I would be punished by having the things that I loved taken away, like, my computer, my internet access, regardless. I became an atheist at the age of 13 and my father took it as incentive to clamp down harder on me by forcing me into youth group and church-sponsored track and field.

They would make me work my tail off to earn my own things and then take them away anyways if I didn't subscribe to their god insane idea of who they wanted me to be. I let it be known that computers were my special interest, and they used it against me as a punishment in an attempt to get me to do what they wanted instead of what I wanted. The punishment never ever EVER fit the crime.

This also ignores the fact that I had essentially a younger brother forced upon me when I was 6, and he was effectively treated as "the golden child" who could do little wrong, but if I "gAvE a ReAcTiOn" to him pissing me off, I was the one punished for it, and would be told to "iGnOrE hiM aNd FiGuRe OuT hOW To AcT bEtTeR aNd bE tHe OLdEr OnE" without any guidance on specifically how. It was used as a crutch to deny me my privacy and my autonomy.

All the while, it caused me to have mental health issues. I was suffering from severe OCD and it resulted in very specific ritualistic thoughts, behaviours, and methods of acting in trying to quell the mayhem that went on in my mind. I suffered from severe executive dysfunction and burnout that lasts even to this day because of it.

At the age of 15 a friend of mine began learning how to code and it caused me to experience severe emotional distress of being left behind skill-wise because I wasn't allowed enough time to learn as him! Are you kidding me? When I voiced these concerns to my folks, crying in church about it, they took me to the hospital as if I were insane, forced me on incredibly strong medications like risperidone and Prozac, and forced me into therapy sessions wherein nothing would get done, and then I would be criticised for "not applying what I had learnt."

Because I didn't need it. I just needed the freedom to explore my special interests and not have them pathologised.

These clinics that they took me to were built for KIDS. I was 15 or 16 at the time! And the practitioners in them should not have been allowed to practice. They reinforced my folks gluten gaslighting and treatment of me as a science experiment. I had no motivation to do anything other than play video games with the limited time I had and when I wasn't allowed to be on my own computer that I paid for myself, I was further dragged around to do things that weren't in my special interests. Up until I was 17 years old. Hikes, more forced family outings, being made to help out on every errand, monitored with my phone and computer usage all the time with no privacy, made to be a slave, with no social life of my own due to the severe social anxiety at their hands. I now have to deal with years worth of memories of lost time and opportunities that I am never getting back.

I was on the meds for 4 years of my life. It RUINED my brain. It worsened my OCD and other mental illness and caused me to have some rather delusional thoughts about the world, about relationships, what I wanted to do in life or lack thereof, about a bunch of stuff. It literally made me dumber, and I was made to think it was MY fault.

The ritualistic thinking, the need to confess, the irresponsible use of my money on hobbies that never ever ever came to fruition, the tendency to hoard digital and physical data and goods somewhat pertinent to my interests, like retro computers and whatnot, but then again, nothing ever came of it. Even now I have a bunch of ESP32 devices on my desk that are sitting unused, because of the sheer burnout and whatnot, and executive dysfunction, because I was drugged in a way that specifically limits it.

So come college, despite all of this, I somehow get into a really good computer science programme. But that's when I had to meet people who have been coding since they were like 7 or 8 and have a tonne of prior experience on their resume whilst I had... nothing, all because I came from a background of just total abject anti-intellectualism and severe burnout and mental illness. The concepts came tougher to me than anyone else, and the grades I had in college reflected it. It gave me reason to resent my folks for setting me behind, not just that but the education system in general. In public school I was on an IEP for no goddamn reason which made me feel all the more othered in addition to everything else I had to experience, like it was on an institutional level.

I've not had any internship experience due to the sheer burnout and nervous system wracking and executive dysfunction from how drugged and mistreated I was, and now with this job market, I probably never will. Yes I did graduate, thank god, but no, I've not been able to find a job. Why waste energy on a market that doesn't even want me because I don't have the life experience I SHOULD HAVE HAD, HAD IT BEEN NOT FOR MY MEDDLING FOLKS.

A year ago, my mother got cancer. When the news was announced, I didn't feel anything. In fact, I kinda saw it coming with her continued consumption of alternative medicine and MLM products despite my repeated warnings about such that she shrugged off time and time and again. I'm not sorry, that crap is really dumb. I really do feel as if I was never heard, and as such will never ever be able to have a genuine relationship with my folks ever again.

They weren't willing to alter their lives to accommodate my medical needs, now I'm not willing to alter mine to accommodate theirs. Fair trade-off no?

It came to a head when I finally at the age of 23 I had an intense quarter life crisis. After all these years I mustered the idea to go thru my Google Photos and Drive, and get rid of all the photos I took where I was dragged around and treated like a slave, effectively, instead of being able to do what I wanted and having the motivation to do what I wanted to do and put myself first. And in reaction, I texted my mom these words:

"I hope you don't stay in remission. You made your hospice bed, now you get to die in it."

I could go more into every appalling detail of what has happened growing up, but yadda yadda yadda all this talk about the past, what do I want to do NOW?

Find a cure for my burnout. Get this referral to rehab psychiatry through and seen by someone who actually knows what the hell they're talking about. I'm already waiting on like 2 months to get this referral through, AND THEY STILL. HAVE NOT. CONTACTED ME. OR MY CLINIC BACK.

But back to what I want to do NOW, once that's done, get my career, skills, and sense of motivation and drive in order. Make as much money as I can, get the hell out of this house and go no contact, because right now I have to be beholden to the same stupid folks that did me wrong all these years.

It really does makes me resentful, and that I had to wake up and realise all of this at a time wherein the American dream is pretty much dead at this point; I don't know what to do!

It's crap like this that makes me FURIOUS at platitudes like "wE'rE aLL oN oUr OwN pAtH" and "cOmPaRiSoN iS tHe ThiEf Of JoY" and other DUMB stuff. I LITERALLY TOLD MY FOLKS WHAT I WANTED TO DO IN LIFE, AND THEY PROCEEDED TO DRUG AND KEEP ME FROM IT.

Yeah, this all has me thoroughly calcified and scarred for life, and I want to begin a new one about now. If I sound crazy, it's because I am. I literally had to uncover old documents from like 20 years ago that detail and contextualise a lot of the stuff about how I really do feel like I was treated like a SCIENCE EXPERIMENT.

*sigh* Anyways, yes, get my brain chemistry back in order so I can finally give up the video games and put use to all the ESP32 and RISC-V boards that I've yet to make some use of.
 
"cOmPaRiSoN iS tHe ThiEf Of JoY" and other DUMB stuff
That saying is actually a fundamental truth. I didn't attain serenity until I stopped trying to live the lives of other people and started being authentic, doing what felt right in the moment for me. I don't need to own what other people own. I don't need to take the pictures the way they do or where they do. I don't need to look like they do. I don't have to act like they do (within reason). Now I just follow my intrigue. Sometimes I'm with others and sometimes I'm by myself, but I'm mostly at peace with myself now.
 
That saying is actually a fundamental truth.
Regardless, it still stands that these platitudes, as well as my life as a whole, just flat out suck. They do nothing to remediate the situation at hand, and knowing the life I wanted for so many years but was chemically paralysed into not pursuing, yeah I just don't wanna hear it.
 
They do nothing to remediate the situation at hand, and knowing the life I wanted for so many years but was chemically paralysed into not pursuing, yeah I just don't wanna hear it.
There is nothing you can do about that except move forward. Do you wish to keep expending energy on a slight you cannot correct or put it into getting back onto the path and actualizing your dreams? That's up to you to do - no one else can or will do it for you.
 
I'm not 100% clear on what you're asking us to judge when you ask "Am I off my rocker [vs completely justified]?"

So I'm going to give you a third answer that isn't in your poll (imagine it's on paper: I would scribble "Other: see elaboration")

You don't sound crazy -- you mostly just sound very hurt, and very angry.


I'm not sure what needs to be justified...Your feelings make sense, given:

(Please feel free to correct me about anything I've misunderstood...)

You've clearly been badly hurt by your parents and many others in positions of authority, in many ways, all your life; And if you're still living at home then I imagine you're still being hurt...;

Even if the dynamic between you and your parents has changed some, being around them and in the house where you've been traumatized your entire life would be a constant reminder of all the years of unresolved trauma...So, you are still surrounded by reminders of loss and pain...(maybe it feels like you're drowning in it? I would be);

And it sounds like you've just recently cleared up a lot of your life history -- the true nature of it -- in your own mind - challenged the ideas that were forced upon you about yourself and all the awful stuff that happened to you and rejected the false and harmful stuff -- and that you are only in the beginning stages of taking back control of your life with limited means to free yourself from your family and reminders of your past at the moment...Sooo:

I imagine your anger and your pain (particularly your grief about what could have been, about all the time that you were forced to spend just surviving and being forced to do things you hated at best and that harmed you at worst, that you would never continue with once you had choice as an adult) are very raw;

You are clearly hopeful and determined to get away from the awful nightmare of your past and build a better future for yourself
but possibly feel temporarily trapped...
and where do I go from here; how will I heal from all that's been forced upon me growing up and be able to be a functioning member of society?
... and somewhat uncertain about your future and your ability to do that ....and maybe (understandably, if so) impatient and frustrated when it comes to turning things around?

Plus you've not had much or any appropriate help that has actually been helpful for anything you've struggled with (and are understandably frustrated and impatient about the lack of response from the rehab psychiatry place) -- let alone have you had the time a person would usually need to heal from a lifetime of the adversity you describe...

From your story, you've not been allowed to be your own person, ever -- only coercively/abusively bullied by your parents trying to force you to be the person they wanted you to be and that you can never be, because that person only exists in their minds...that person is not you....

You've been badly mistreated, treated as a black sheep, as property, as if you are a broken version of someone you will never be and who does not exist, pathologized for legitimate distress and grief, allowed no age-appropriate nor developmentally-appropriate freedom or independence... allowed no emotional nor intellectual expression, not allowed to express nor follow preferences...

You've been micro-managed and denied independence and opportunities for personal growth
(ie your special interest that should have been supported and used as a way to help you develop skills and follow your dreams and find your way in life was kept from you, opposed at every turn despite its harmlessness and practical utility -- despite the fact its what you loved and what brought you joy) ... Allowed no freedom and no choice about your own life as you got older - not until you had legal authority to choose for yourself; While simultaneously and paradoxically told to just "figure it out" and given no appropriate assistance with the things that you were least able/abjectly unable to figure out without assistance (e.g. social things like how you were expected to respond to your little brother bugging you)...

I think many/most people (if not everyone/anyone) in your place would be deeply hurt and angry, dealing with profound grief and resentment, and feel somewhat lost -- maybe clinging to hope like its a life buoy in the middle of an ocean with no idea how far away the land is...

So, some words of encouragement and suggestions:


You may feel old, but really you're not. You are truly still in the early part of your life...

I am not you, so I will not pretend to know what your future holds, or to know you better than you know yourself (both would be impossible) -- but with this caveat in mind, I still want to suggest:

At 24 ( from your intro post) your brain may not even be finished the last stages of its reaching-full-neurological-adulthood maturation process; Plus, humans retain some neuroplasticity even after our brains fully mature (and autistics may retain a little bit more of it).

Your brain may still be able to heal quite a lot from the damage of trauma and powerful drugs, and to build new pathways. Who knows how much -- but the odds are in your favor that some healing is possible -- maybe so much healing, you'll amaze yourself(..who knows?)

You probably have a lot of years left to rebuild yourself and your life - I'm not suggesting you should wait nor hesitate; And I do not at all mean to minimize the significance of the years you have lost -- I'm just saying you may be able to do more with what you have right now, with all the years still ahead of you, even factoring in that significant loss, than you can see right at this moment. I think you should pursue safety, appropriate mental health support (appropriate for you), and your goals and dreams as fast as you can without becoming overwhelmed and making the burnout worse.

I'm really just saying your life is probably far from over, your future undetermined and full of possibilities.

You are not necessarily doomed because of being kept from coding as a child...nor because of your wounds. Don't get me wrong here, those things make your life massively harder ... but you're not dead yet, and may have many many decades ahead of you...someday 24 might seem very young to you (or not, time will tell).

And it might be worth considering (again, not you, no way to know -- and apologies if this is not helpful at all) that lots of people who grow up with traumatizing adversity similar to your own don't get to the point you're at right now (of making up their own mind and setting out determined -- even if also uncertain --to heal and rebuild themselves and their lives) until decades later than you have; So with respect to the life you actually have (as opposed to the life you should have had) you might have a relatively early start...some people never get to where you are now. (This is not a guilt trip - not a "be grateful" kind of message - just more of a "focus on all the years in front of you -- if you can", and a "try comparing yourself to a different subset of people in case it fosters more hope than despair" kind of message.)

Adults can learn, too, theoretically at any age -- and autistic adults have hyperfocus and passion (so strong it gets pathologized) to help us.

If you are worried about your grades but know you have solid skills, maybe think about skipping ahead and taking an unusual turn towards self-employment?

If you need to hone your knowledge and skills maybe get into further self-education and practice?

I don't know what area of computer engineering you are trained for or interested in specifically, but maybe explore options for creating your own projects?

Maybe create or add to a portfolio of work? Demonstrated skill/talent and experience typically matters more than grades in school.

Or maybe inquire about volunteering to take on some of the work in open-source software development projects? That would give you actual work experience and a chance to demonstrate your abilities to others, to gain references, and perhaps to learn more and hone your skills in an environment where everyone shares your passion. I offer the same suggestion regardless of your focus/specialization -- since there are some interesting projects that pop up out there from time to time where people plan to build various tech or tech learning kits that use open source operating systems and sometimes start up with limited resources and might value a well-educated volunteer hardware engineer in whatever role(/s).

Ideally you'll just find a good internship or a regular paid job in your field -- and I absolutely encourage you to look for one and not sell yourself short; My ideas about self-employment and working in a volunteer capacity with open-source projects is just for brain-storming -- suggesting you look at any possibility you can think of and finding alternative ways of gaining work experience and getting a foot in the door (and maybe you already do that - if so, keep at it and give yourself credit)

I also strongly encourage you to check out
Specialisterne USA | Employ Different Thinking


(You mentioned "the American Dream" so I assume you live in the USA and linked to the US page -- but if you don't, they work in many countries)

They specialize in finding and creating employment opportunities for the neurodivergent, and quite a lot of their jobs are IT oriented.
 
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How old are you? At 23 you still have a whole life ahead of you.

I had just one internship, in perspective it didn't mean that much when looking for a job as a programmer.

The experience that employers are looking for can come from a freelancing business - you can start from even building a website that showcases your offer and an app that is an example of what you offer. It's not profitable, but it can get you the neccesary "work experience".
 
Yes, life is unfair to many of us. Grab it by the horns and do what you can with things you have. I also almost dont communicate with my parents, they left a horrible mark on me and i had something similar to what you went through, but mine was with additional sexual abuse on top of everything else.
There is a lot of pro-family and pro-christians here, so you should know what to expect, but most people are fine here. Hopefully you'll find some cool topics and folk here to have chat with.
 
It sounds like you are well on your way towards mental healing here... you are willing to talk about all this. However, like you suggest, there are some mental scars that need to be addressed. If they aren't addressed, then many of us can get stuck in this mental rut of PTSD, rumination, substance abuse, hopelessness, and worse. You can't live up to your potential. This mental baggage will hold you back in all aspects of your life.

Look into the research into therapies that use a guided psychedelic experience... psilocybin for example, is one of those drugs that drops down all those mental walls that are blocking one's abilities to move past the PTSD memories. It exposes them... then, the therapist can help you release all of that baggage. The studies have been highly successful, even after a single session. You may have to travel to one of these research centers, but seriously, I would consider this as a viable option given the success rates.

BTW, there is an ongoing study called the PSILAUT study which is looking at psilocybin as a medication to help with autism symptoms... given that some of us are not good candidates for SSRIs for various reasons. Some of us currently use psilocybin in micro and moderate doses (subperceptual) 3-4x a week and seems to help. **If you have bipolar or schizophrenia, psychedelics are NOT recommended.**. **If you are dealing with significant amounts of psychological trauma... do not "experiment" with high doses by yourself... do it in a controlled environment with a therapist.**
 
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I also strongly encourage you to check out
Specialisterne USA | Employ Different Thinking
Already applied. Hope to hear back.
BTW, there is an ongoing study called the PSILAUT study which is looking at psilocybin as a medication to help with autism symptoms... given that some of us are not good candidates for SSRIs for various reasons.
I took a look into it and unfortunately it seems this study is no longer ongoing. There is a study being done by UW but it's for first responders and military veterans. What a goddamn shame.
 
Already applied. Hope to hear back.
I hope so, too!
(The optimism rainbow reaction icon was for this -- wish we could pick more than one per post; If we could then I would have added a heart reaction icon for the following:_)
I took a look into it and unfortunately it seems this study is no longer ongoing. There is a study being done by UW but it's for first responders and military veterans. What a goddamn shame.
That is a shame.

[EDIT: Nevermind - study I found is the one you mentioned - I failed to read carefully. Sorry!]
 
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