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Hello new here.....official ADHD diagnosed

tara

Well-Known Member
Hello I am new here on these boards and I want to introduce myself.

I am female, 24 years old and I suspect / I am suspected to have Aspergers syndrome.

My childhood was very good and normal but I have always been kind of different, I always felt it, as I had strange interests and thoughts and kind of a strange feeling towards my environment, troubles concentrating and very big problems to understand practical tasks or things I am not quite interested in.

I was a good pupil in primary and secondary school until I failed at mathematics and physics in high school.
Then with working life I had big problems with my troubles concentrating, clumsiness and not-understanding of simple tasks and so I didn`t have my workplaces for a long time.
A good friend of mine,dx`ed with ADHD told me something about his disorder and as I read about it I found myself in very many symptoms and features.
I was searching for psychiatric help for my daily problems and finally my friend and me were right-I had adult ADHD. They also diagnosed me with some mood syndromes, derealisation (non-traumatic cause), panic attacks and hyperacitivity.

I began to read a lot about ADHD in the internet and so I sometimes also read about Aspergers syndrome, but I didn`t really believe it, yes I have eye contact, communication and some empathie-showing problems (related to small things) and I most often like it being alone reading about my interests. But I never thought of really having it until I was in a therapy session and the therapist told me I may have Aspergers syndrome.

The past few years I think I have gone worse, I often don`t care much about my appeareance for some time and my communication with many people got worse.
Sometimes I only lie in my bed and surfing the net all day long, reading only about one or some few things for months.
That was also as a child but has gone worse over the past years.

Often I have repetitive hyperacitve body movements especially when listening to music and then I may seem like a 7 year old handicapped child...but I am always alone in the room when I get hyperactive

My interest topics are in the geographical, scientifical, nutritional, medical and psychological and historical fields, sometimes I also read a lot about bad things like murder, crime and political issues.
But my "interest no.1" always lasts for months and even years...sometimes these interests have some connection to myself and my life, sometimes they are quite unrelated.

Also have bouts of delusions, like someone searching informations about me or someone reading my thoughts, but they normally only last for some minutes or hours.

My life often feels like being on a wrong planet or on some life-long drug trip, but most often realising that I am the "strange part" in this game.

I also suspect having a medical problem, because in the past few years some strange things and symptoms happened to me and I also have hormonal problems (quite irregular periods,maybe even infertility) since puberty.
I strongly feel that it could have something to do with my liver or some chemical imbalances (but I am not thinking that the organ is really damaged)- but I have very many signs and I suspect that it may be an iron disorder or something similar.
Also my intuition is often quite good, sometimes even my dreams come true in a similar manner the next day.

I will get checked for AS and also my medical problems in some few months because I want/have to keep my work for insurance before I will get tested for anything in the future.

Did anyone of you also read about connections between liver and other metabolic disorders and mental problems??

There is alot of information on the internet, describing about disorders of the thyroid or the liver affecting human`s brain function and emotions.

So that was enough for my introduction, a little bit too much to read for my first post...

Best regards,

tara ;D
 
Hi Tara, welcome to AC!

I have read a little bit about deficiencies/imbalances and things making Asperger's worse but that was just one book that went off on a complete medical/vaccine is the cause tangent so I stopped reading it.

A full blood work will rule out any deficiency so get to your GP and say you think you may have an iron or other deficiency.

Has your therapist referred you to an autism diagnostic centre or specialist to find out if it is AS? You could contact the national autistic society to find out where your nearest diagnosis place is and who needs to refer you (for me it was just a GP referral)...that's assuming your in the UK?
 
Hi.
Many people on the spectrum seem to have weaker Immune system and some do have metabolic disorders. As for relationship with mental issues and those health conditions.... Any disorder can cause a lot of stress wich subsequently may affect your immune system and health in general.
I've had Thyroid disease for 5 years (plus minus), it's affected my immune system, I felt tired but I don't believe it's had lots of influence on my mental state. I don't think my mental state has had influence on thyroid either. I suspect that radiation may have caused it.
One thing that I've noticed how my state of mind improved after detox, I think it is important to do that from time to time for some people, unfortunately I've been only able to do it once.
As for your periods, you can try to go on the pill. I presume that you're not otherwise you wouldn't have the problem. If you're on the pill and still irregular, that is something to be concerned about.

Btw for many years I though I had ADHD, my doctor even advised me a specialist to get diagnozed. I was pregnant at the time and decided to wait until delivery. Then my 2nd son was born and got diagnosed with ASD. That's how I learned about it and after that it was pretty much clear, I had Asperger's not ADHD. I was hyper but there're lots of symptoms of ADHD that didn't fit me.
 
Welcome ^^

I've been diagnosed with both ADHD & Asperger's... and belief is that my hyperactive mind keeps itself from stalling and being prone to anxiety attacks and stress that much... which is also why I'm not on meds.
 
Hello you @all

Thanks for your fast replies ;)

I was also on ADHD meds for some time, but they helped me more focusing for written texts than to understand practical tasks.
And my interests got also more freaky and intense on methylphenidate and I had some panic and anxiety problems, but also they helped me a bit.
I was on a quite low dose and after a while they didn`t show any big effects and so I decided with my psychiatrist to get off of them.

At the moment I am not on any psy drug.

Yes iron deficiency was the problem I thought I would have....
Symptoms like frequent tachycardia, nauseous feelings, my psychological problems, easily feeling cold, skin issues and sick-feelings when I am hungry lead me to that believe, also the fact that I am not that big meat eater and not quite big (slim and 5`5 tall) made me think of iron deficiency.
And I ignored the fact that I had a quite good tan (never pale) and irregular menstruation...

So I decided to buy some iron supplements which contained about 10 milligrams of iron per tablet.(the RDA)

I took them once a day and at the beginning I thought to feel that they relief my easily feeling cold but after two months some serious symptoms came into my life, after the worst things were over I developed chronic fatigue which I never had before, some pain in my finger bones and sometimes a tender feeling in the liver area.This symptoms were new to me and also didn`t really stop after I have stopped taking iron.

This make me believe that I rather could have IRON OVERLOAD than iron deficiency, which affects about 1 in 200 people.

HFE hereditary haemochromatosis - Wikipedia, the free encyclopedia

They say it is rare in young females because of menstruation, but when your periods are messed up for a long time you don`t know for sure...

I had hemoglobin tested about 14,5 which is quite far away from anemia, my inflammation indicators were very low and thyroid plus pituitary (TSH) quite borderline low.My white blood cells are always on the higher range while other tests quite in the middle range.
They didn`t make liver function tests but I will order them in the future, also together with transferrin, iron and ferritin testing.

And I will call my former therapist again, as I have stopped the therapy because of unstable work conditions, had to change jobs quite often.
Maybe we will discuss the thing again and she would refer me to a testing center.

Thanks for your replys again ;)
 
Have you ever had fever for prolonged period of time, more than for a few days (even if it's a low fever), are your lymph nodes swollen/ enlarged? Anyway, what does your doctor say?
 
Hey! An Asperger's diagnosis is usually kinda prolonged and can sometimes give some false or partially true diagnosises. Like ADHD or and anxiety disorder.
 
@epath

I very rarely have fever, I remember that I only had fever sometimes when I was ill as a child but nothing really big.
As an adult I can only remember of colds without being febrile.
I don`t know if my lymph nodes have been enlarged in former times, at the moment they are normal.
I am vaccinated against hepatitis A and B and also tested negative for C some years ago.
ESR and CRP have never been elevated, always quite low.

I hope it doesn`t mind if I tell you the whole story...
At my birth I was healthy...as a child I developed psychological issues (nervousness,troubles concentrating and the other things) without any reason and although I had a good childhood.
When I was 13 I got my first menstruation and at the beginning I had it every 6 weeks and from my late teens or so on it got rarer and lighter.
I didn`t really have food intolerances, allergies or skin disorders like psoriasis, I only have had frequent skin abrasions under my fingernails (the part where the real finger begins) since I was a child but nothing else to worry about.

At the age of 18 I started sometimes going out and smoking,I remember it was the time when rapid heart beat, nausea and other physical symptoms (weakness and feeling sick when hungry) started and I suddenly had to eat more than in former times. But I always had normal blood sugars,no weight gains or losses and doctors didn`t find something on bloodworks.

Some of these symptoms got better after I quit smoking some two years ago. (as I read some time ago, tobacco has a lot of iron in it!!)

When I was about 19 or 20 I got a mild skin disorder which sometimes occured when it was warm outside, some itchy red dots on my arms which resolved quickly but also sometimes I suddenly got a kind of little burn wound without hurting myself.
Generally the skin disorder is a bit strange but rather mild and only occurs sometimes.

The past few years I noticed easily feeling cold or hot. Thyroid testing came back on the low range (TSH,ft3 and ft4 quite low but still in reference), thyroid antibodies negative.


When I started iron supplementation about half a year ago I took one tablet of 10mg every day and nothing really happened for some weeks, in the beginning I only thought that my easily feeling cold was relieved a little bit.
Then I gradually developed right upper quadrant tenderness which didn`t disturb me that much and which I didn`t relate to iron firstly. I started to feel more tired, got pain, numbness and tingling in my fingers in the mornings and suddenly I developed shortness of breath every evening.
After some days I went to the doc who referred me to a cardiologist and after examination they didn`t find abnormalities with my heart and lungs, except for a bit high heart rate (which I also had before).
My RBC was also quite normal, only MCV and WBC on the higher end of normal range.Other tests weren`t included because at that time I wasn`t so concerned about my liver.
After a while I realized that it could have had to do with the iron supplements and so I decided to go off them.
The shortness of breath then got better after some short time, but other symptoms still persisted and come and go (the finger problem and right upper quadrant tenderness) and I am always more exhausted and more easily fatigued than before.

In the past years liver, kidney, heart etc.. tests have always been normal and they did an ultrasound of my organs (including liver) some six years ago, so I don`t believe that my liver could be that damaged, maybe a little bit but it can regenerate itself when it isn`t too late.

Beside this story my father also has some symptoms which could maybe be related to an iron overlaod (knee joint problems, getting memory troubles in his early fifties), my paternal uncle had toxic-induced hepatitis some years ago and my 80yr old grandmother (father`s mother) has dementia and has always been a quite nervous person like me. My 80 yr old grandfather (father`s father) has diabetes.

As far as I know about iron overload (when you have genetic hemochromatosis) is that you have to have two recessive genes from each parent and one in about 10 people is a carrier for this disease.

At the moment I try to avoid eating meat and cereals and care about a healthy diet and lifestyle and I look forward to get my iron tested and if it is elevated they will have to do blood removals (phlebotomies).

I`ll tell you about the results when I got it tested...

@Dolby

Yes you are right, when I came to search help for my mental issues I had to do a lot of written and spoken tests about thoughts, mood and behaviour and at the beginning they thought that I was bipolar before they ruled out and diagnosed ADHD.

I look forward to get the testings for ASD too but before I can get tested for my whole health issues I have to wait because of my job (insurance, etc..)

I`ll keep you current!
 

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