Sass
Well-Known Member
So the title of this thread is an actual quote from someone I know, who has kids on the spectrum. She posted this nugget of 'wisdom' on her facebook business page of all places, and it got me to thinking...
I understand what she meant by it: This week has been hard for me and my kids, this whole thing isn't fair on them or me.
This is only something I know because I know her personally. Hell, I guess most parents would probably have a very similar thought, and probably not just once, throughout the raising of their autistic kids. I can't say I ever have, but then as an aspie mother myself I have a different perspective.
What astounded me is that as a woman in business she felt it was ok to make a pretty blunt statement, that as an autistic adult I find slightly offensive. In essence, without knowing the back story, anyone who read that could easily feel as though they were being insulted, or that this woman didn't really accept her kids as a whole, just the parts that are 'normal'.
I guess it's that whole 'can we separate the autism from the person?' thing, which I don't think can be done, but that's just me. Also, what if her kids were old enough to read that? I'd be mortified if my parents had ever said something similar about me, not that they knew when I was a kid. Why is it ok to use your frustration at aspects of autism to drive your facebook marketing, particularly if you're not autistic? It just seems weird. It's one thing to think it, or vent to a friend, but it's another thing to announce to a largely captive audience that autism can **** off, when they don't have the inside knowledge to understand her meaning, and could make a pretty rough snap judgement that damages an already misinformed view of autistics.
I guess, as I delve further into this whole thing, and self-advocacy, I wonder why things like this are ok. I was going to write an article about it, sort of a response, but not naming-and-shaming her, because I don't think she meant badly. I just think this kind of thing has to be put in perspective and revealed for what it is.
Anyway, that's me probably being over-sensitive, rant over
I understand what she meant by it: This week has been hard for me and my kids, this whole thing isn't fair on them or me.
This is only something I know because I know her personally. Hell, I guess most parents would probably have a very similar thought, and probably not just once, throughout the raising of their autistic kids. I can't say I ever have, but then as an aspie mother myself I have a different perspective.
What astounded me is that as a woman in business she felt it was ok to make a pretty blunt statement, that as an autistic adult I find slightly offensive. In essence, without knowing the back story, anyone who read that could easily feel as though they were being insulted, or that this woman didn't really accept her kids as a whole, just the parts that are 'normal'.
I guess it's that whole 'can we separate the autism from the person?' thing, which I don't think can be done, but that's just me. Also, what if her kids were old enough to read that? I'd be mortified if my parents had ever said something similar about me, not that they knew when I was a kid. Why is it ok to use your frustration at aspects of autism to drive your facebook marketing, particularly if you're not autistic? It just seems weird. It's one thing to think it, or vent to a friend, but it's another thing to announce to a largely captive audience that autism can **** off, when they don't have the inside knowledge to understand her meaning, and could make a pretty rough snap judgement that damages an already misinformed view of autistics.
I guess, as I delve further into this whole thing, and self-advocacy, I wonder why things like this are ok. I was going to write an article about it, sort of a response, but not naming-and-shaming her, because I don't think she meant badly. I just think this kind of thing has to be put in perspective and revealed for what it is.
Anyway, that's me probably being over-sensitive, rant over
