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The Chains of Autism

We've been talking a lot about chains in my church's small group, as in what are you chained to? What is holding you back? It started out after one of the assistant pastors mentioned in a sermon that Paul was chained to a Roman guard 24/7 when he wrote some of his letters. He asked us to imagine what that was like, having someone chained to you like that, with no privacy whatsoever. Most of us would say that would get old pretty quickly. But not Paul. He was delighted to have a captive audience! Before it was all over the entire Praetorian guard heard his message and were no doubt sick of hearing it after a while.

But there was one thing they didn't do which they could have, and that is that they apparently made no attempt to interfere with Paul's preaching or letter-writing or visits from friends. Maybe it's because the Romans were not into thought control like modern police states. Once he was locked up he could no longer incite riots and that's all they were concerned about.

Anyway, as I said, we've been talking about chains and I think there has been some real healing going on in these meetings as people feel safe to share their stories. A lot of them have to do with wounded family relationships. Don't get me wrong, I'm still as agnostic as ever, but there is something about coming together and supporting each other that is for lack of a better word, therapeutic. I don't know if it is our particular age-group but this group seems to be more "tough-minded" than some I've been involved with in the past--there are no easy, saccharine answers. Several group members have even attended seminars designed to help minister to people with big problems. There's a willingness to talk about issues that was not present a few decades ago.

But healing in this sense is not a passive thing. You have to work at it and it's not easy work. And one thing that disturbs me when I read some of the threads is how so many of us are chained to things that are making our lives miserable yet if anyone suggests that they might have the power to change things and do things differently, then that person is written off as not getting it. As not being sympathetic.

There seems to be a common thread to many of these threads and that is person X writes in with a problem but person X does not want to change him or herself. Person X wants sympathy because the world won't accept him or her as he or she is. The world is giving them a hard time. And everyone for the most part says, oh, that is too bad, it's your life and you ought to be able to live it the way you want to.

Well--yes, up to a point. But if something is interfering with your ability to function, to the point that it is bothering you, to the point it is making your life difficult, then you need to ask, is this something I can change or am I forever doomed to live this way? And I am afraid that many of us have come up with the second answer. We didn't choose the quirks that hold us back so therefore we don't need to do anything about them.

I have a friend who became a vegan back when there were very few vegetarians around let alone vegans. Going out to eat with him was always an interesting experience. Because he would ask servers and cooks questions about how the food was prepared. While no one ever treated him rudely in my presence I am sure that he did occasionally come in for some rude treatment. If so, he never complained about it. It was his choice to have such a restricted diet at a time when this was not fashionable and he took it in stride that not everyone would be accepting about it. Personally I saw no sense in putting that particular chain around my neck because I could see how it limited him. He, of course, saw it differently. It was a matter of deep moral conviction, so for him the hassles and sacrifices were worth it.

I see so many people who are unhappy because they are chained to self-imposed restrictions. Maybe they didn't freely choose them as did my friend. But what I don't see is "what am I doing about it?" How am I trying to overcome this obstacle?

I didn't always have my act together. There were a lot of mistakes I made. But I also grew up in a climate that was quite different than today. I was not allowed to persist in habits that would handicap me as I got older. I will name just one. When I was quite small I was utterly terrified of the noise flushing toilets made in public restrooms. If I was in a public restroom and someone flushed a toilet I went into a meltdown. I never had this problem at home. My parents could not understand and I could not explain to them that it was the acoustics in the public restroom that caused my sensory overload. In fact, if you had said sensory overload to them they wouldn't have understood the concept because it wasn't even a concept then.

As you can imagine this caused no end of problems. This is how my parents dealt with it. Each and every time I had a meltdown, I was paddled HARD with a wooden board about 12 inches long, 2 inches wide and 1/4 inch thick which was kept in a drawer for that purpose. Back then this was not considered child abuse. But you know what--it may have been cruel, but it worked. I learned--not overnight, true, but I learned--that having meltdowns over flushing toilets was not acceptable behavior. Now, imagine if my parents had taken the approach that seems popular today and made little or no attempt to change me. How well could I function today with a public restroom phobia? I certainly could not work at my job where most of the toilets are automatic flush. I'd be restricted in what I could and could not do. And I'd probably be miserable. But hey--it's your life, you can live it the way you want to. There'd be no shortage of sympathetic listeners on forums like this. But would that really help me? Sometimes the people who say things that you don't want to hear are more your friends than those that hold your hand and say the things you do.

I'm not against sympathy and I realize many people's brains are still developing. I would not want to go back to the old days where we were ignorant about things like sensory overload. And yet, I tend to agree with Dr. Grandin that in some ways those of us who did live through those times are better off, because we were made accountable for our behavior. There was an understanding that if you wanted to be part of society there were certain ways that you could and could not act; and if you were not capable or willing to adjust then you couldn't be part of society. I wouldn't want to go back to that again either. I guess what it boils down to, is that if you are going to restrict yourself and say "I can't", then you ought to be like my friend and do it for a good reason. Life is too short to spend it in miserable martyrdom for no purpose.

Comments

We don't seek to restrict ourselves. We just want to live life as it is, to the way we find that maximises our societal worth :)
 
I'm all for problem solving & it makes it hard for me to simply express sympathy or empathy when it isn't accompanied by any effort at brokering viable solutions. I 'get' that when someone is in a full emotional crisis over a serious adverse event, they may need to vent before being able to become proactive, but since the mid 70s, there has been a disturbing trend towards everything being 'okay' & encouraging people to wallow in their misery. Prior to this, methods such as hard paddling were more commonplace. Many older people do believe that such strategies worked.

If all 'worked' means is that they stopped a given behaviour, then that is a myopic & very narrow perspective that ignores the consequences of battering. Love and pain & fear shouldn't coexist. The very parents upon whom a child must rely upon, be able to approach, trust & confide in cannot be inflicters of pain. The beatings & culture of repression & suppression that were prevalent in the west prior to the 60s, was deeply dysfunctional & disturbed. It was preoccupied with fa?ades & appearances. So long as the family appeared conventional from the outside, all was fine. Molestation, rampant alcoholism & domestic violence were commonplace. Children were dealt heavy handed so-called discipline.

Adults are often reluctant to acknowledge that the parents they loved & who raised them were also misguided & abusive. Sometimes the abuse occurred out of malice but much of the time it occurred out of ignorance & a lack of understanding. Beating a child over a phobia may result in suppressing the behaviour, BUT, the consequences emerge elsewhere. Such children often grow into adults who are unable to form stable trust based adult relationships. They become isolated emotionally & in profound denial that prevents them from ever having their own family despite wanting one on some level.

Many become abusers in their own right with a misguided 'its for your own good' attitude or 'my parents did this so it must've been the right thing' attitude. In a daycare I used to run, there was an Autistic boy. His father was quick with a paddle whenever his son would freak out over sudden loud noises. He 'learned' to repress his natural reactions. Had he really learned anything? NO. His fear of painful punishment over-rode his reaction to loud noises. Whenever a loud noise would suddenly occur, he'd look fearfully at me expecting a swat to follow if he showed his true feelings. Helping him learn constructive & more appropriate coping mechanisms took a lot more effort than beating & intimidating him, but real learning that didn't induce dysfunction occurred. As fr the father, youth protection & some mandatory parenting classes divested him of his belt strategy. He wasn't a malicious man: just ignorant, overwhelmed & lacking in skills. Be that as it may, a vulnerable child was learning that being battered & love coexist. This is where men learn to beat their wives & kids & wives learn to submit. After all, he really does love me on a deeper level.

I've seen these kinds of 'physically disciplined' kids turn out in 2 broad ways: 1. Going from one dysfunctional violent (either emotionally or physically) relationship to another, drowning their memories in denial & addictive behaviours etc. Stuck reliving old patterns 2. Becoming so deeply in denial of their ability to love & trust that they remain isolated & solitary (involuntarily so) for the bulk of their lives missing out on ever being spouses or parents themselves, in deep denial that this pattern is not a positive choice but the consequences of non-malice driven child abuse.

As a teacher, I often see misguided but well meaning 'spare the rod' type parents. In ancient Hebrew, the rod of discipline was a metaphor; like the long arm of the law. It did not refer to or advocate beating children: a practice forbidden under Rabbinic law (along with wife beating) any more than the latter expression means that lawyers & judges have longer arms than other people. Same goes for the 'eye of the needle' expression: it was a nickname given to a particularly narrow entrance in the wall surrounding Jerusalem. Merchants with heavily laden camels were notorious for having difficulty passing through. These literal mistranslations of ancient Hebrew (& Aramaic) into English have resulted in so much harm being done to so many innocents.
 
What you say is very true. While on the surface it seems I've turned out all right deep down inside I am one of those people you talked about in response #2, solitary, unable to love and trust. You might say that "fear" has been a driving force throughout most of my life. It governs the way I relate to others, especially those who are in authority over me. For example, I was afraid to tell my supervisor that I was having trouble with my hands. It turns out that she has been very supportive of my need to take time off for therapy.

You are talking about long-term effects. Back in the 1960's absolutely no one was concerned about long-term effects. If it worked NOW that is all they were interested in, whether it was parents, school, or the psychiatric system. I am very, very, very good at following instructions (once I understand them). I am not so good at innovating and thinking outside the box--and increasingly that is what employers are looking for. Somewhere somehow amid all the drugs, punishment and counseling there was a little girl who got lost and was never allowed to grow up to be a woman. I had a friend recently tell me she admired me for being so strong and avoiding the pitfalls of drugs and alcohol. Little does she know that I had other, equally destructive ways of coping. I simply retreated into my own private world as much as I could. Here nobody could get to me. I even felt like I was two different people. There was the real, secret me, and then the public one who I referred to as "she" and "her". I did not think of myself as "I'.

As I said, they weren't thinking long-term; they did not care about long-term. The few times I dared to speak up for myself and ask these kinds of questions I was told that basically it did not matter what happened to me or how I was treated, if I reacted to it in the ways you described above, then that was a choice I was making. The implication was that it was my responsibility at all times to turn the other cheek, etc., not hold grudges, not be bitter, not even to say or think the things I am saying now. Because it was my obligation to make the "right" choice and not let these things affect me, otherwise I was weak and giving up. That the adults around me had any responsibilities--ha! ha! What heresy. Remember your place. Remember who you are.

Yes. I paid a price. In many ways. A price that I cannot admit, must not admit. A price that doesn't matter. Because "their" goal was achieved. And that is all that matters.
 

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