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Stopping meds due to side effects, living with effects of long term meds

I have been off medications since February this year. I was prescribed Seroquel for a BPD dx and Topamax for seizures (I've been misdxed as BPD) I was on Seroquel for around 5 years and it was not helping anymore. I wanted to come off of it for a long time. I have been taking Topamax for over 15 years.

I started looking into the side effect of Topamax when I found out the side effects of Seroquel. I was floored and so mad that no one told me about the side effects of either med. A lot of the problems with mood, emotional dysregulation and suicidal ideation were a rare Topamax side effect.I've been treated with different meds for years over a side effect. I'm still pissed.

I came off all my meds. I have the odd aura and seizure, but its nothing I can't live with. I'd much rather have an occasional seizure than be suffering from these side effects all my life. My mood has been low since I stopped the meds, but I'm trying to trust my system to regulate itself. I treat my symptoms with marijuana, no unacceptable side effects.

I now have neuropathic pain from taking Seroquel, it makes sleeping a lot harder than usual, an I always have trouble with sleep.

I'm at a point where I have a severe distrust of docs and the medical field. These things happened to me because I was not in a position to give informed consent and I was not given the information to make an informed decision. I now do whatever I can on my own, even if it means I'm uncomfortable.

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Author
Andie Kinney
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