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Just another introduction thread

Do you think I might be autistic?


  • Total voters
    9
I changed my vote to Yes you may be autistic in the light of additional information. Certainly sounds like it, you mention a lot of very specific issues that are common for people with autism. Check out Jessica Kingsley publishers for some useful texts about girls and women with Autism, we tend not to get spotted or diagnosed and it can also be tricky to get a diagnosis as an adult, check out all @zozie 's posts about this, she's had typical bad experiences from which you might conclude, go private, if you can afford it, to get someone who knows what they are talking about.
 
there's offsite blogs that talk about it, not sure what's around onsite. if you do a net search on autistic burnout, there's some info.

Thank you. I really appreciate you telling your story. It’s given me a lot to think about. I got one of the books recommended in the resources section and that’s giving me some really interesting insight, too.

I feel like I’ve been in gradual burnout for years - but I just had a conversation with my boss to see if I can avoid falling over the cliff that I can see looming in front of me. She’s going to look into alternative job roles / things I can do.

I would dearly like to avoid having to be off sick for four years, if I can possibly help it. I’m very glad that you told me about that.
 
I changed my vote to Yes you may be autistic in the light of additional information. Certainly sounds like it, you mention a lot of very specific issues that are common for people with autism. Check out Jessica Kingsley publishers for some useful texts about girls and women with Autism, we tend not to get spotted or diagnosed and it can also be tricky to get a diagnosis as an adult, check out all @zozie 's posts about this, she's had typical bad experiences from which you might conclude, go private, if you can afford it, to get someone who knows what they are talking about.

Thank you so much. The more reading I do, the more I’m leaning towards this actually being the issue. It really would explain a lot.

I’ll get on those books after I’ve read the one I bought this morning from the resources section.
 
There is "thinking" you are autistic,...and then there is "I am" autistic. Keep in mind, autism signs and symptoms cross over with other neurologic and psychological conditions. Personally, I am not a fan of so-called "self-diagnosis". Best to have a professional screening and an official diagnosis. A professional diagnosis will allow you some limited legal and employment accommodations and protections in most developed countries.

For some self-evaluation prior to seeking a professional diagnosis.

Autism Spectrum Quotient (AQ). If you score above 30, it is likely you have autistic traits. This is not diagnostic.

Empathy Quotient (EQ) for Adults - Autism Research Centre. Download the test and the answer key.

Systemizing Quotient (SQ) (Adult) - Autism Research Centre. Download the test and the answer key.
 
There is "thinking" you are autistic,...and then there is "I am" autistic. Keep in mind, autism signs and symptoms cross over with other neurologic and psychological conditions. Personally, I am not a fan of so-called "self-diagnosis". Best to have a professional screening and an official diagnosis. A professional diagnosis will allow you some limited legal and employment accommodations and protections in most developed countries.

For some self-evaluation prior to seeking a professional diagnosis.

Autism Spectrum Quotient (AQ). If you score above 30, it is likely you have autistic traits. This is not diagnostic.

Empathy Quotient (EQ) for Adults - Autism Research Centre. Download the test and the answer key.

Systemizing Quotient (SQ) (Adult) - Autism Research Centre. Download the test and the answer key.

I'll just add that some assessors are wholly incompetent, so it's not always a given that an assessment will be done well. Sometimes it's done badly, and self-diagnosis becomes an anchor for acceptance until such time that a competent professional can be found.
 
I'll just add that some assessors are wholly incompetent, so it's not always a given that an assessment will be done well. Sometimes it's done badly, and self-diagnosis becomes an anchor for acceptance until such time that a competent professional can be found.

Zozie,

I had read some of your other posts regarding this topic and your experience,...sorry to hear about all that. When I did my testing and interview process, it seemed pretty thorough. I specifically sought out autism centers that dealt with adults,...3 out of the 5 in my area just did children. Who would have thought that there would be 5 centers in my local area?o_O I had over an hours worth of performance testing with two other staff, meanwhile, my wife was being interviewed. Then, I had my interview and further testing,...and after that, another hour of written testing. It was a good 3-4 hours. Received a full 10 page report.

Take care. :)
 
Just to add, @Neonatal RRT is male and a health worker, as is his partner, so he was in both a better position to choose and possibly to pay for his assessment than many women may be, especially those with children and on benefits, and also as the diagnostic criteria have been based around an idea that this is a male condition, easier to recognise using the standard criteria. His experience isn't unfortunately typical of what happens for women.
 
Just to add, @Neonatal RRT is male and a health worker, as is his partner, so he was in both a better position to choose and possibly to pay for his assessment than many women may be, especially those with children and on benefits, and also as the diagnostic criteria have been based around an idea that this is a male condition, easier to recognise using the standard criteria. His experience isn't unfortunately typical of what happens for women.

Agree. There has been some "catching up" with regards to female diagnosis as of late,...but as you say,...the testing criteria still appears to have some bias towards males.
 
There is "thinking" you are autistic,...and then there is "I am" autistic. Keep in mind, autism signs and symptoms cross over with other neurologic and psychological conditions. Personally, I am not a fan of so-called "self-diagnosis". Best to have a professional screening and an official diagnosis. A professional diagnosis will allow you some limited legal and employment accommodations and protections in most developed countries.

For some self-evaluation prior to seeking a professional diagnosis.

Autism Spectrum Quotient (AQ). If you score above 30, it is likely you have autistic traits. This is not diagnostic.

Empathy Quotient (EQ) for Adults - Autism Research Centre. Download the test and the answer key.

Systemizing Quotient (SQ) (Adult) - Autism Research Centre. Download the test and the answer key.

Thank you for sharing the links. I’ve tried at least one of those kinds of tests already and found it... ambiguous to the point of being useless.

Almost none of what I’ve read about autism in men has been helpful.

I am the ultimate authority on myself - and I’m much more interested in understanding my own limitations and strengths than I am about having a piece of paper saying I have them.

I'll just add that some assessors are wholly incompetent, so it's not always a given that an assessment will be done well. Sometimes it's done badly, and self-diagnosis becomes an anchor for acceptance until such time that a competent professional can be found.

Thank you for sharing. :) I think I will look up some of your contributions to find out about your experiences with diagnosis. May I ask what country you’re in, for context? I’m in the UK.

Just to add, @Neonatal RRT is male and a health worker, as is his partner, so he was in both a better position to choose and possibly to pay for his assessment than many women may be, especially those with children and on benefits, and also as the diagnostic criteria have been based around an idea that this is a male condition, easier to recognise using the standard criteria. His experience isn't unfortunately typical of what happens for women.

Thank you so much for this context. I appreciate it. As far as I know, waiting times for diagnoses in my country are often more than a year - and I have these issues now, not next year.

In a way, I’m a little suspicious of the medical system when it comes to things like this. Self understanding is very important - but scientific validation of that understanding is coded male in our society and I’m not 100% on board with accepting that as the final word on anything going on inside my own head.

@everyone - does anyone else get frustrated with how much baggage the average person inserts into their communication? Sometimes I just want to cut through all of the fluff (like emotional platitudes) and say ‘just say it plainly!’. I’m wondering if anyone else can relate.
 
Oh my. Yes. It would explain A LOT. I feel like I’ve been exhausted almost all of my adult life - that I’ve never known that sense of peace or excess energy that people so often seem to have to fill their weekends and evenings with fun, productive things to do.

Well, aside from when I was out of work due to the pandemic - but that kind of led to a touch of depression in the end, so it didn’t really feel that restful.

I’ve genuinely had thoughts of ‘what’s the point?’ recently. Like, what’s the point in living like this? I don’t mean this in a depressing sense - just a practical one. I’m getting nothing out of it except somehow simply existing.

How did you get out of burnout? What did you have to do? What did it take?

I’ve honestly never met anyone else who has related to this sense of exhaustion. I miss the old me. If I weren’t so unable to think or do anything, I’d think my life is... miserable, right now. I used to write, to play music, to go for long walks in nature, to draw, to enjoy spending hours getting ready to go out (I love clothes). Now I just exist. I wear whatever is most comfortable. I can barely even face doing my washing, never mind doing fun projects. My creativity has just gone.

I've recently started wondering about how much fatigue has played a role in my life and functional abilities and... well, such. (maybe I'll post those thoughts later). Stress and fatigue. And how much energy depression takes, and... so many things. I've experienced many many years of crap, and a handful of years where things were really good, and calm and quiet, and now I'm in this in-between state, and have been for a couple years. I'm still trying to figure out what to expect of myself, and where I should expect my autism issues to be (or not be) etc. It's all pretty weird,=.

... Anyways, to answer your question about how I got out of it, I think I'd have to say it was a combination of graduating university, and therefore not having that stress, antidepressant medication, and several years 'off', where I didn't/don't have the stress of having to participate in the world unless I want to. At first I really, really, needed some time to myself (more than the few months of 'medical leave' or whatever between school years, or even the year or year and a half between degrees), and that took 2-3 years. I did do some volunteer research work for a bit, from home, but then gave that up. And then, I started trying to mentally sort out some of the traumatic experiences I'd had near the end (oh, and I supposed there was also delayed grief from a death in the family), but ran into difficulty, as I didn't have the energy to do it all myself, though I'm typically pretty good at such, so I started searching out a therapist who had experience with both autism and trauma (both very important, as just anyone isn't going to have a clue, and probably just make things worse!). While I was waiting for that to work out, I started writing an autobiography, so I'd know what I wanted to tell them, when I found somebody. That helped. As did discussing it with my current autism specialist (and psychologist) after she volunteered to help. And as the writing progressed. (I did it off and on, as the mood struck.)

Somewhere along the way, I was able to learn how to regain various skills and abilities I'd lost along the way, when I was so knee deep in University, and fighting with 'the system', etc. (and working on the whole identity formation/adulthood thing, which I'm beginning to think, more and more may have had as much to do with everything, as anything else. It took up a lot of energy!)
 
As a point of interest, I did the AQ test. My score on the was 36 - and I answered the questions based on my behaviour as a teen, before I’d learned to mask.

Probably would have got a higher score, but I don’t like museums. LOL. It’s a pretty badly designed test, on that basis. They asked whether I preferred theatres or museums, with no other detail or information given.


Theatres are usually comfortable, dark places where you’re allowed to focus purely on what’s going on on the lit stage. They also often use sounds and lighting in a structured way to indicate meaning or evoke emotion. There’s usually a lot of plush and soft furnishings to deaden sound. Talking is frowned upon, too, so people are usually quiet unless directed to participate. Their seating is, in my personal experience, usually squishy and velvety, in lovely dark reds. Theatres are great.

Museums, on the other hand, are usually loud, echoing spaces full of crowds of people milling about like lemmings. You can’t get away from them. They violate your personal space. The sounds bounce off all of the hard surfaces and it turns into a cacophony of horror and awfulness. Aside from that, they’re all fake - stuffed animals posed in horrible dusty tableaux. Urgh.

I doubt the people writing that test really thought this through. I can FEEL their bias through the test design. They clearly didn’t actually ask anyone how such things are experienced.
 
...I have problems with wet hands, too -

I highly reccomend no swimming in the Black Lagoon.

creature-from-the-black-lagoon-gif-6.gif
 

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