• Welcome to Autism Forums, a friendly forum to discuss Aspergers Syndrome, Autism, High Functioning Autism and related conditions.

    Your voice is missing! You will need to register to get access to the following site features:
    • Reply to discussions and create your own threads.
    • Our modern chat room. No add-ons or extensions required, just login and start chatting!
    • Private Member only forums for more serious discussions that you may wish to not have guests or search engines access to.
    • Your very own blog. Write about anything you like on your own individual blog.

    We hope to see you as a part of our community soon! Please also check us out @ https://www.twitter.com/aspiescentral

Hello Everyone

OkRad said:
I know. It really hurt me too!!! I got gene testing which helped. Are you disabled? I am odd enough they felt it was warranted and that helped me a lot.

It is so rude thevway they r and then they want us to trust them. Yeah right!
Click to expand...

No I'm not disabled. I think that's part of the problem........I'm pretty good at appearing "normal". I haven't even thought about gene testing. It's still very early days with this whole AS thing for me.....so I have a lot to learn. I've ordered a book from the library which I'm picking up today and I've bought another one online which I'm waiting for.
But doctors really need to be aware of the damage they do when they just dismiss you out of hand........when you've just found a tribe you DO belong to for the first time in your life! Especially when it's not their area of expertise and they are clearly out of their depth. I intend to tell him that when I see him again. Yesterday I was too upset and hurt to say anything much because I really wasn't expecting that kind of reaction.
This forum is really the only thing keeping me level at the moment. Thank you to everyone for your help and suggestions :-*
 
Streetwise said:
You want to try having a Spanish GP,if he was any louder he would have a speaker on his head,announcing to another GP that's streetwise ( actually said my real first name )obviously indicating I was different,he couldn't have said it any louder if he tried standing in the corridor .
He showed absolutely no concern,when I said children were throwing things at my house,he actually said to me what did you do !!!!!!!!I never go to see him now .
Click to expand...

I don't blame you for not seeing him now! Why is it that the medical profession seems to attract people who think they're God.............and mental health seems to attract people with mental health issues of their own??? It's not surprising that people are turning to alternative therapists in droves....
 
Fitzo said:
No I'm not disabled. I think that's part of the problem........I'm pretty good at appearing "normal". I haven't even thought about gene testing. It's still very early days with this whole AS thing for me.....so I have a lot to learn. I've ordered a book from the library which I'm picking up today and I've bought another one online which I'm waiting for.
But doctors really need to be aware of the damage they do when they just dismiss you out of hand........when you've just found a tribe you DO belong to for the first time in your life! Especially when it's not their area of expertise and they are clearly out of their depth. I intend to tell him that when I see him again. Yesterday I was too upset and hurt to say anything much because I really wasn't expecting that kind of reaction.
This forum is really the only thing keeping me level at the moment. Thank you to everyone for your help and suggestions :-*
Click to expand...
Sometimes when i am upset i slam post. I know people here really get it. I hope we help because we truly understand!
 
Streetwise said:
Could you possibly travel to Brisbane or afford to ?I know Tony Attwood is a specialist in aspergers and his practice is there or was .
Click to expand...
Yikes! I just read what the charges would be for an assessment by Tony Attwood's clinic and I now understand why you used the word 'afford". It would cost me literally thousands from go to whoa! Not sure I need to know that badly!
 
Fitzo said:
That's a good suggestion spaceman. I would have to come up with a very good story though as she still won't even accept that I have something as innocuous as insomnia......even though I've had it for 47 years! If I say I'm tired because I had NO sleep last night she still asks why! I try not to take sleep meds and only take them when I'm at my wits end........but she gives me grief over that! So I tell her NOTHING. A narcissist only recognises things they've experienced themselves because they have NO empathy. In her mind I don't really even have an identity of my own. Also everything is always about her so if I'm less than perfect.....that must somehow be a reflection on her and she just can't deal with that. Still......it's a good idea if I can somehow convince her it's about her not me! Thinking, thinking............:)
Click to expand...

You won't have to make an elaborate fib. Just say, checked bloods: Iron def. Probably, Some meds Needed not sure yet, what type. That's why the questionare. As I guess eating and sleeping will be some of the qs?
 
spaceman said:
You won't have to make an elaborate fib. Just say, checked bloods: Iron def. Probably, Some meds Needed not sure yet, what type. That's why the questionare. As I guess eating and sleeping will be some of the qs?
Click to expand...
Thing is I slept well as a child. In fact it used to be a form of escape for me. The insomnia only started when I got married age 20, which was also when I first got diagnosed with anxiety, panic attacks and depression. I left home at 18 and by the time I got married was living 2000 klms away from my parents......and have never lived close to them since. Consequently they only knew what I chose to tell them which was as little as possible. I DO know that I apparently used to try and push my mother away even when I was a baby and I got locked in my room for refusing to say thank you to someone when I was only 2 or 3..........and my school reports said things like "could be top of the class but won't apply herself".......does that sound like AS to you?
 
Fitzo said:
Thing is I slept well as a child. In fact it used to be a form of escape for me. The insomnia only started when I got married age 20, which was also when I first got diagnosed with anxiety, panic attacks and depression. I left home at 18 and by the time I got married was living 2000 klms away from my parents......and have never lived close to them since. Consequently they only knew what I chose to tell them which was as little as possible. I DO know that I apparently used to try and push my mother away even when I was a baby and I got locked in my room for refusing to say thank you to someone when I was only 2 or 3..........and my school reports said things like "could be top of the class but won't apply herself".......does that sound like AS to you?
Click to expand...
I'm no expert. But it sounds familiar. Pushed my mother away at young age. Trouble for insolence but I'm just different. Could be good at school, but didn't do any work. Distracted. You may have to go solo then?

I feel for you. Get a book, write random memories and odd things at the back, and a small simple daily diary.. a few lines. From the front. I did this a few months ago. I'm getting assessed TODAY... at 1.00pm.

I'm taking that book, it's loaded with stuff by now.

Good luck
 
spaceman said:
I'm no expert. But it sounds familiar. Pushed my mother away at young age. Trouble for insolence but I'm just different. Could be good at school, but didn't do any work. Distracted. You may have to go solo then?

I feel for you. Get a book, write random memories and odd things at the back, and a small simple daily diary.. a few lines. From the front. I did this a few months ago. I'm getting assessed TODAY... at 1.00pm.

I'm taking that book, it's loaded with stuff by now.

Good luck
Click to expand...
Thanks for your help and suggestions. Good luck to you. I look forward to hearing how your assessment went.
 
Streetwise said:
In France for instance,there is the same problem,of not diagnosing high functioning autism in women,it is not recognised at all .
Click to expand...
If I may be a little more accurate, I would like to dispell that myth: France follows DSM-V, but women are absolutely able to get a diagnosis, it is recognized (I'm living proof). Women just have a harder time finding someone who understand the criteria are more subtle and varied than in men, like in most countries (and France is about 10 years behind on diagnosis in general, but there are more and more initiatives taken towards improvement.
Not that it matters much to Fitzo, Paris would be a very long commute from Australia ;)
 
OkRad said:
I know. It really hurt me too!!! I got gene testing which helped. Are you disabled? I am odd enough they felt it was warranted and that helped me a lot.

It is so rude thevway they r and then they want us to trust them. Yeah right!
Click to expand...
Happy birthday
 
You must log in or register to reply here.

New Threads

Top Bottom