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Hello Everyone

Fitzo

Well-Known Member
V.I.P Member
I am a 67 year old woman living in Australia. My brother has a young child who is thought to have autism, but not officially diagnosed yet as there is a long waiting list to see a pediatrician for proper diagnosis. In the course of reading about autism I have come to the realisation that I probably have aspergers and our father probably did too. This came as a bit of a shock as I had never considered it previously, but also made sense of a lot of things about my life I had never had answers for.

I'm still coming to terms with how I feel about it because although it helps me understand myself, it also feels a bit like uggh.......another label to add to my list! Chronic depression, anxiety and insomnia have dogged me since my teens and I have always struggled with relationships of all types........friends, lovers, work colleagues and family.

Despite these difficulties I have managed to be fairly high functioning and have now retired from work, heaving a sigh of relief that I don't have to keep struggling to fit in, at least in that area. Being high functioning is a bit of a double edged sword because people perceive me to be fortunate and "successful" and therefore have nothing to be depressed or anxious about. I have always felt totally misunderstood.

I am going to see my doctor tomorrow and am considering asking for a referral to see a psychologist for a formal diagnosis and just generally someone to talk it all over with. I have spent a considerable amount of time over the course of my life talking to psychs and counsellors, but really haven't had much success or help from any of them. I'm not sure this time will be any different.

I would be interested to hear from anyone who has had a diagnosis late in life and whether it has helped them. I'm also wondering whether it is a good idea to tell people or just keep it to myself? I did tell my brother, but he seemed pretty disinterested. Not an unusual reaction from him. My family have always been dismissive of any of my mental health problems. Once again, probably because they have perceived me to be "successful", and I think there may be some jealousy involved.

I'd better end here or I'll be going on all day! :)
 
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I am a 67 year old woman living in Australia. My brother has a young child who is thought to have autism, but not officially diagnosed yet as there is a long waiting list to see a pediatrician for proper diagnosis. In the course of reading about autism I have come to the realisation that I probably have aspergers and our father probably did too. This came as a bit of a shock as I had never considered it previously, but also made sense of a lot of things about my life I had never had answers for.

I'm still coming to terms with how I feel about it because although it helps me understand myself, it also feels a bit like uggh.......another label to add to my list! Chronic depression, anxiety and insomnia have dogged me since my teens and I have always struggled with relationships of all types........friends, lovers, work colleagues and family.

Despite these difficulties I have managed to be fairly high functioning and have now retired from work, heaving a sigh of relief that I don't have to keep struggling to fit in, at least in that area. Being high functioning is a bit of a double edged sword because people perceive me to be fortunate and "successful" and therefore have nothing to be depressed or anxious about. I have always felt totally misunderstood.

I am going to see my doctor tomorrow and am considering asking for a referral to see a psychologist for a formal diagnosis and just generally someone to talk it all over with. I have spent a considerable amount of time over the course of my life talking to psychs and counsellors, but really haven't had much success or help from any of them. I'm not sure this time will be any different.

I would be interested to hear from anyone who has had a diagnosis late in life and whether it has helped them. I'm also wondering whether it is a good idea to tell people or just keep it to myself? I did tell my brother, but he seemed pretty disinterested. Not an unusual reaction from him. My family have always been dismissive of any of my mental health problems. Once again, probably because they have perceived me to be "successful", and I think there may be some jealousy involved.

I'd better end here or I'll be going on all day! :)
 
Welcome.

I'm self diagnosed at 54 and I celebrate my AS for it answers my life long question of "why don't I fit in", your story certainly resonates with my own life experiences.

You are in a good place, welcome to your tribe.
 
I am a 67 year old woman living in Australia. My brother has a young child who is thought to have autism, but not officially diagnosed yet as there is a long waiting list to see a pediatrician for proper diagnosis. In the course of reading about autism I have come to the realisation that I probably have aspergers and our father probably did too. This came as a bit of a shock as I had never considered it previously, but also made sense of a lot of things about my life I had never had answers for.

I'm still coming to terms with how I feel about it because although it helps me understand myself, it also feels a bit like uggh.......another label to add to my list! Chronic depression, anxiety and insomnia have dogged me since my teens and I have always struggled with relationships of all types........friends, lovers, work colleagues and family.

Despite these difficulties I have managed to be fairly high functioning and have now retired from work, heaving a sigh of relief that I don't have to keep struggling to fit in, at least in that area. Being high functioning is a bit of a double edged sword because people perceive me to be fortunate and "successful" and therefore have nothing to be depressed or anxious about. I have always felt totally misunderstood.

I am going to see my doctor tomorrow and am considering asking for a referral to see a psychologist for a formal diagnosis and just generally someone to talk it all over with. I have spent a considerable amount of time over the course of my life talking to psychs and counsellors, but really haven't had much success or help from any of them. I'm not sure this time will be any different.

I would be interested to hear from anyone who has had a diagnosis late in life and whether it has helped them. I'm also wondering whether it is a good idea to tell people or just keep it to myself? I did tell my brother, but he seemed pretty disinterested. Not an unusual reaction from him. My family have always been dismissive of any of my mental health problems. Once again, probably because they have perceived me to be "successful", and I think there may be some jealousy involved.

I'd better end here or I'll be going on all day! :)

Hi Fitzo. Welcome to AF!!!

I vote be very cautious who you share your diagnosis with. I had told only a few about my certainty I had Asperergers, but one had a very bad reaction to it. That left me feeling bad and recovery took a little while. Others on here have written of similar difficulties.

It would be a good idea for you to look up Autism specialists in your area so you can request one for referral to them. Non-specialists seem to waste a lot of time with wrong diagnoses.
 
Welcome Fitzo.
I was diagnosed late in life only two years ago at age 58.
I have always been high functioning but struggled due to anxiety, depression, and no social skills.
Having to wear a mask and act constantly in the world is tiring. The only place I could be relaxed and just be me was with my parents. I knew they loved me no matter what so I built a big wall around me to the rest of the world. Never learned to fit in or really even wanted to.
But, when my parents died, the bubble world broke and I find myself feeling very alone inside that wall.
I was relieved to find why I had been so different and everything I learned about being on the spectrum was a big "ah-ha, that's me." But, the anxiety and feeling alone with just myself, which I can't find happiness with, is something I have struggled with for the past four years since my Mom's death and I am going through therapy with a psych that is an autism specialist.
So I feel lost at this point, but, I keep looking for a way to be happy living in the world that I can't seem to bond with.

This song/video well describes how I feel:
 
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Welcome.

I'm self diagnosed at 54 and I celebrate my AS for it answers my life long question of "why don't I fit in", your story certainly resonates with my own life experiences.

You are in a good place, welcome to your tribe.
Thanks so much Keigan. It is certainly quite a relief to know I actually have a tribe! :)
 
Hi Fitzo. Welcome to AF!!!

I vote be very cautious who you share your diagnosis with. I had told only a few about my certainty I had Asperergers, but one had a very bad reaction to it. That left me feeling bad and recovery took a little while. Others on here have written of similar difficulties.

It would be a good idea for you to look up Autism specialists in your area so you can request one for referral to them. Non-specialists seem to waste a lot of time with wrong diagnoses.

Hi Alaska. Thanks for your advice. I think one of the areas I have had problems in the past is probably telling people stuff I might have been better to keep to myself.
I hope I can get to see someone who knows what they are talking about, but it might be difficult as I live in a regional area and my options will be somewhat limited. Judging by the scores I have from online questionnaires, a formal diagnosis is probably not really necessary, but I just feel I need a sounding board more than anything at this point.
I'm sure reading others experiences will help me a lot at this point. Thanks for making me feel welcome :)
 
Welcome Fitzo.
I was diagnosed late in life only two years ago at age 58.
I have always been high functioning but struggled due to anxiety, depression, and no social skills.
Having to wear a mask and act constantly in the world is tiring. The only place I could be relaxed and just be me was with my parents. I knew they loved me no matter what so I built a big wall around me to the rest of the world. Never learned to fit in or really even wanted to.
But, when my parents died, the bubble world broke and I find myself feeling very alone inside that wall.
I was relieved to find why I had been so different and everything I learned about being on the spectrum was a big "ah-ha, that's me." But, the anxiety and feeling alone with just myself, which I can't find happiness with, is something I have struggled with for the past four years since my Mom's death and I am going through therapy with a psych that is an autism specialist.
So I feel lost at this point, but, I keep looking for a way to be happy living in the world that I can't seem to bond with.

This song/video well describes how I feel:
Thank you Susan for sharing your experience.
I wish I had felt a close connection to my parents, but I never have. I only came to the realisation about four years ago that my mother (who is still alive - age 93) has narcissistic personality disorder which was another big "ah-ha moment" and once again explained a lot of things I never understood. My relationship with her has always been extremely difficult and she has never made me feel loved. She has never accepted my depression or insomnia as everything is always about her, and she just has absolutely no empathy. Consequently, I had to learn to be pretty independent and have managed to survive without really feeling close to anyone for the vast majority of my life. Like you, I have built a big wall around myself and yes, it can be pretty lonely. I guess I've just been doing it for a lot longer so have learned to cope most of the time by keeping myself busy and fulfilled with creative projects etc. I haven't had a bad meltdown for about three years since my last romantic relationship ended and even before discovering Aspergers, had come to the conclusion that I was better off being single.
I hope you soon get to a place where you feel a level of contentment with your life and your world. I imagine joining this forum was a good place to start. I wish you good fortune on your journey. :)
 
I KNEW i had it, even had a dx but went back since the dsm changed and the dr RUDELY informed me i didnt have it. He sat back in his chair with crossed arms and sarcastically said, "so what do you think of all this autism stuff?"

I was taken aback and went into fake mode.

"Ummmm . Not sure ...."

Triumphantly., as if he could not wait to tell ANOTHER middle aged neurotic woman that she was NOT autistic and just personailty disordered and mentally ill, he said,

"As soon as you walked in, we knew you didnt have it. You smiled and looked at us in the eye. Downright Warm."

Then he said i am just mentally ill. I went to a geneticist who tested me and found i have a chromosome 6 duplication. Which causes things very close to autism. He had the report. The report says it is NOT mental yet the autism dr never even looked at it.

I have food, sleep, sensory, social, dev issues and his advice was DBT!!!

He us a famous autism specialist so i have no chance at an appeal.

My point is be careful. If you know you have it and are comfortable w self dx or old dx , be happy in it,. This caused me no small amount of despair thinking am crazy and feeling like i lost a community.

Be aware that Some drs are now reserving the entire spectrum for classical symptoms which is hurting women who present differently.,
 
Welcome Fitzo.
I was diagnosed late in life only two years ago at age 58.
I have always been high functioning but struggled due to anxiety, depression, and no social skills.
Having to wear a mask and act constantly in the world is tiring. The only place I could be relaxed and just be me was with my parents. I knew they loved me no matter what so I built a big wall around me to the rest of the world. Never learned to fit in or really even wanted to.
But, when my parents died, the bubble world broke and I find myself feeling very alone inside that wall.
I was relieved to find why I had been so different and everything I learned about being on the spectrum was a big "ah-ha, that's me." But, the anxiety and feeling alone with just myself, which I can't find happiness with, is something I have struggled with for the past four years since my Mom's death and I am going through therapy with a psych that is an autism specialist.
So I feel lost at this point, but, I keep looking for a way to be happy living in the world that I can't seem to bond with.

This song/video well describes how I feel:

If you can get the music:

Pink Floyd the 'wall'. (The full movie, not the song we all know) is one hell of a journey about a protagonist .. and his 'wall' he gradually built. I wondered if the wall was mental illness. But now I think it's AS.

Hope you dig. J

-All in all it was all just bricks in the 'Wall'
 
Hi and welcome to AF.
I'm 39 and I officially start my assessment with AS specialist **tomorrow**
I've struggled with the things you say in your first post. Sounds very familiar family similarities etc.

I'll let you know how it went and what to expect for when you get to see someone.

As for telling people I have had a mixed response. One listened but don't see it or get it, and keeps saying oh that's normal, or I also think that etc. Others have had an argument with me. I was inches away from ERUPTION and he backed down. Took me days to get over it. Family have been supportive, but don't want to go into it as much as me.

I'm not telling anyone until my formal assessment, then I may facebook it out there. See what positive comments I get, and I'll follow on fb. Delete and block the ones I don't like. And start my new life as real me, like I wish I did when I was a kid.

Good luck xx
 
Hello .... welcome and all that..!!
You will fit right in here.... we are a very 'mixed bag'... :)
I'm nt my son is Aspie.... and my partner is Aspie (undiagnosed) they are not related....
 
Hi and welcome to AF.
I'm 39 and I officially start my assessment with AS specialist **tomorrow**
I've struggled with the things you say in your first post. Sounds very familiar family similarities etc.

I'll let you know how it went and what to expect for when you get to see someone.

As for telling people I have had a mixed response. One listened but don't see it or get it, and keeps saying oh that's normal, or I also think that etc. Others have had an argument with me. I was inches away from ERUPTION and he backed down. Took me days to get over it. Family have been supportive, but don't want to go into it as much as me.

I'm not telling anyone until my formal assessment, then I may facebook it out there. See what positive comments I get, and I'll follow on fb. Delete and block the ones I don't like. And start my new life as real me, like I wish I did when I was a kid.

Good luck xx

Good luck to you.... :)
 
Thank you ladybug. I hope I got a good Dr, I don't fancy much what happened to OkRag. I'll try to paste it thick, without embellishing. I'll be true. But tread carefully. My mother is coming with me. She says things I can't remember, I was lawayse like it .. good old mam. But don't get me wrong, very narcissistic, my nemesis. But in this case.. a saint
 

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