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ASD Awareness Research

Discussion in 'Autism Spectrum News, Events and Research' started by Rafia, Jan 30, 2017.

  1. Rafia

    Rafia New Member

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    Hello. My name is Rafia Haque and I am a final year undergraduate Psychology student at Swansea University. We are conducting a study to increase our understanding of factors of diet and well-being in individuals with an autism spectrum disorder (ASD). As this forum is for individuals with an ASD, we believe that members of this group are in an ideal position to give us valuable first-hand information from their perspective.

    The research has been ethically approved by the Swansea University Ethics department. The study will take approximately 60 minutes and requires participants to complete a series of online questionnaires about their ASD, diet and well-being. Participants are not required to disclose their name and all information acquired will be kept strictly confidential. Each participant will be given a number code when collecting and analysing the findings.

    We understand that this study may cause distress and upsetting feelings. I would like to emphasise that participants are not required to participate if they feel that they may be distressed by questions about these topics. If participants agree to take part, they have the right to withdraw from the study at any time without any reason.

    Your participation in our research will be very much appreciated and could lead to greater public awareness of these issues in individuals with an ASD.

    The link to my questionnaire can be found here Studying factors of diet and well-being in individuals with an autism spectrum disorder (ASD) - Start

    Many thanks in advance.
     
  2. xudo

    xudo something and nothing

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    Hi from Cardiff :) I'm happy to take part, I'll go do it now.
     
  3. Southern Discomfort

    Southern Discomfort Smarter than the Average Bear V.I.P Member

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    Pretty simple to do considering I don't engage in self harm or restricted or binge eating.
     
  4. xudo

    xudo something and nothing

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    Done, but there were a few that didn't make sense in terms of how the questions were phrased, and the answers available. Also the last section on self harm didn't specify what the behaviour was that I was supposed to be answering about, unless I missed it.
     
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  5. Rafia

    Rafia New Member

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    Ah ok, many thanks for completing. Really appreciate it :)
     
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  6. Rafia

    Rafia New Member

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    Thankyou for completing :)
     
  7. Southern Discomfort

    Southern Discomfort Smarter than the Average Bear V.I.P Member

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    You're very much welcome.
     
  8. nakedphil

    nakedphil Well-Known Member

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    very difficult screen reading and/or using mouse. gave up, too tedious, silly/misleading questions and no explanations, my normal form filling skills
     
  9. Bolletje

    Bolletje Overly complicated potato V.I.P Member

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    Finished, but as @xudo stated, some of the questions about eating have nonsensical answers, would look better on the questionnaire to correct that.

    IIRC the question was about how often you feel hungry, the answers were agree and disagree.

    Oh, and it would be nice to be able to skip to the end immediately if you don't engage in any self-harm, saves a lot of clicks :D
     
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  10. muffi86

    muffi86 one & only since '86!

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    I've taken it..

    But found it hard as my trouble eating has nothing to do with self harm or trying to loss/gain weight..
    Displaying eating disorder traits is more because of.. not happy tryin new food, "fear" of unknown, new textures.. hard to explain!

    Also, one of my self harm which started as a sorta replacement for cutting, is now something I don't need/want..
    It's just become a habit I can't seem to stop..
     
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  11. toothless

    toothless this is mr shadow,my support cat

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    if you want to do true ASD awareness you need to include questions that cover the whole spectrum,not just aspergers,ive seen those questions before on the aspie quiz and i just dont relate to a lot of them.
    id love to help contribute but i just dont relate to the questions,i never got as far as eating issues or self harm, i do have eating issues-i can only eat once a day and it has to be at 11:30pm,its also a very rigid diet, and i have self harmed since a toddler;ie smashing my head off anything,i am prescribed helmets on the NHS but prefer to wear baseball caps as theyre not as hot and i still get pressure.
    i also cut myself as a sensory issue,i smear the blood ive done it since i was little, i have cut as well when i dont understand what im feeling.
    so i would have loved to gave my input if the questionaire was better aimed towards ASD and not just one part of it.
     
    • Agree Agree x 1
  12. Rafia

    Rafia New Member

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  13. Rafia

    Rafia New Member

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    Bump

    Only need 10 more people to fill out my questionnaire! Any feedback is welcome too :)

    Thanks in Advance