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What Not to Say to The Female Aspie by Nele Muylaert - The Curly Hair Project

Vinca

Speaking through Pictures
V.I.P Member
(Not written by me)


Published on 19 Jul 2014
Nele of the curly hair project gives an audio version of her popular blog post http://thegirlwiththecurlyhair.co.uk/...

There are a number of things the female Aspie will hear over and over again. Even though the neurotypical will say it with the best intention, it can still be quite hurtful and upsetting.





Published on 17 Feb 2015
Nele talks about the prejudices surrounding autism spectrum disorders (ASD) and how the things people can say about this misunderstood, complex, condition, can be very hurtful.


 
A NOTE: Copy/pasted from one of Vinca's links.

1. ‘Well, we all feel like you do, overwhelmed in social or noisy situations.’

Yes, I have no doubt that you do. I honestly believe most social situations can be quite challenging and scary for all of us, ASD or NT. However, for someone with Asperger’s Syndrome, the intensity is magnified an awful lot. So imagine that you, as an NT already find those situations overwhelming, and now can you imagine how we experience them? We experience them so much more strongly, and this causes our anxiety to go through the roof, and our social energy tanks to be depleted in no time.

2. ‘Maybe if you weren’t so emotional and all over the place all the time…have you tried being more consistent?’
Yes, we have. No, it is not possible. Female Aspies have very black and white minds, and it’s very often a matter of giving it our all, or giving it nothing at all. This can come across to others that we’re being either extremely fierce, defensive, or even as a ‘know it all.’ On top of that we deal with delayed emotional processing, which means we might still be feeling things from situations that were a long time ago. This can cause us to react in a very strong way, and very unexpectedly too. We are not overly emotional, we just process emotions at a much slower rate. Nor are we inconsistent in our ways, we act when we can define these emotions. When we do show these emotions, whether you understand them or not, please be kind and understanding, and help us place the feelings we have by validating them.

3. ‘Maybe you just need to go out more.’
I cannot even begin to count the amount of times I have heard this. If we could do that, we would. But the world is an incredibly overwhelming place for us. Imagine experiencing everything a thousand times as strong, and how that would exhaust you? On top of that, we often feel very confused as how to react in certain social situations, and this too exhausts us. Sometimes, even deciding to go out can empty our social energy tank* entirely.

4. ‘Can’t you try harder, and challenge yourself?’
Yes, we could. But then we would face a burn out or depression very very quickly. By pushing ourselves into situations that make us anxious and uncomfortable, we drain our social energy tank very quickly. We can push further, but that will exhaust us to an extent that will definetly lead to shutdowns or meltdowns. You help us a lot more by taking us out one on one, to a place we like and for a scheduled period of time, than to force us to do things that will make us feel very anxious.

5. ‘Maybe you should try…you know…to wear different clothes? Or try make up?’
Most Aspie females are quite specific about their clothing. We don’t dress to the occasion, we dress to what feels nice and comfortable. Dressing for the occasion is very difficult for us, because we often do not understand why we should wear clothes that make us feel uncomfortable. Most of the time we don’t understand why clothing can indicate a position, or status, and we might feel dressing to the occasion also means playing the part that goes with the occasion. This is incredibly exhausting and overwhelming for the female Aspie.

6. ‘Oh, Asperger’s? Yeah, I know all about that. I know someone with Asperger’s.’
Wonderful! The more you know about it, the better it is!! But like with NT’s, Aspies are individuals, and each have their own habits, routines, structures and quirks. We react differently, to different situations. So rather then immediately judging us as ‘all the same’, do take the time to get to know us. We might surprise you.

‘Just as each neurotypical person is very different with different talents and gifts, each person with Asperger’s Syndrome is as different as any other person with Asperger’s Syndrome.’ Olivia Goudreault

7. ‘Can’t you just let go, for this once? Just you know…be human a bit and enjoy the party?’
No, we can not. We have very strict routine, and structures, and it takes a great deal to step out of those routines. When we do, this is a massive change for us, and no matter how hard you will try to make us feel relaxed, there will always be a level of anxiety within us. Let me illustrate this with an example…

Last week I finally went for a drink with my fellow students. What was very fun for them, turned out to be very stressful for me. I kept asking myself all sorts of questions such as ‘what should I say, how, and when should I say it?’ When is it acceptable to leave?’ ‘This lady is looking at me, I don’t understand it, am I doing something wrong?’ ‘Will I be home in time for my 12 o’clock lunch?’. Even though I enjoyed the company of my friends, the scenario was entirely new to me, and to compensate I have all these why and what if questions in my head. This is why it is incredibly hard for us to let our hair down, so to speak.

8. ‘Well, since you’re so quiet, i’ll just leave you alone then.’
Female Aspies do not deal well with passive aggressiveness. The reason for this is that passive agressiveness is really a message, that has a secondary hidden message in it. Due to our literal minds, we don’t always grasp this, and would much rather have you be honest with is. Say what you mean, and mean what you say.

9. ‘You know, you would understand people more if you tried being a bit more empathetic.’
Female Aspies are incredibly empathetic. We just can’t translate it as verbally as NT’s can. We feel very deeply, and extremely intensively, and will show it in our own way. If you want us to understand people better, please take your time and explain your habits to us, and explain why you do the things the way you do them. We often feel like aliens on a strange planet, and help with understanding is always greatly appreciated. By explaining us your habits, you will see how empathetic we really are, and how intensively and beautifully we can perceive things.

10. ‘But you look so normal.’
I’m sorry, I didn’t know there was a dress-code for Asperger’s Syndrome. I must have missed that when I got the invitation to the Aspie Party. Be very aware that most female Aspies have a strong shapeshifting ability. This allows them to act ‘normal’ for a short period of time, although it is very draining to them. Spend a little longer with them, and you will automaticaly notice our little quirks and ways.

Asperger’s Syndrome does not have a face, nor a dress style, or a unified way of acting. It’s something unique to us all, and well worth discovering.



*’Social energy’ and ‘social energy tank’ are phrases from the eBook, ‘The Visual Guide to Social Energy.’ It’s well worth a read, particularly if you are new to the curly hair project/theories!



What do you think of our 10 things you shouldn’t say to the female Aspie? What would be number 11? Comment below!
 
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8. ‘Well, since you’re so quiet, i’ll just leave you alone then.’
Female Aspies do not deal well with passive aggressiveness. The reason for this is that passive agressiveness is really a message, that has a secondary hidden message in it. Due to our literal minds, we don’t always grasp this, and would much rather have you be honest with is. Say what you mean, and mean what you say.

Okay, serious question (please, & thank you in advance for any response): Why would saying this sentence to someone be passive/aggressive? If someone is sitting quietly & seems to want to be alone, another person might think they want to be alone so .... in looking for something to say, to explain what they are thinking & then what they will be doing, says, "well, since you're so quiet I'll just leave you alone then" .... meaning I'll just let you be, leave you to your silence, & not disturb you. This could be meant entirely sincerely & innocently in good faith.

OR do you mean if the person KNOWS that the autistic person does not want to be alone but just wants to be quiet? OR do you mean in cases where the 'person' is being passive/aggressive because they really want the autistic person to behave differently & not be so quiet at that moment? Or other?

I am sorry to put you through this extra exercise AsheSkyler, but I truly don't understand.

PS - I also really disdain when someone is passive/aggressive towards me or is sarcastic etc... I also like straight forward, honest, sincere, mature communication meant in good faith, with good will.
 
I'm glad I read this. It must be horrible having to hear those things over and over again :eek:
I do have a dumb NT question though. If someone told me that they had Asperger's, what's the best way to respond?
I've tried thinking it through many times in the past, but I have this odd fear that the dreaded "but you look so normal" response will somehow come out unbidden. In which case I would be horrified with myself. It's such a stupid thing to say, but we NTs will speak without thinking.
 
I'm glad I read this. It must be horrible having to hear those things over and over again :eek:
I do have a dumb NT question though. If someone told me that they had Asperger's, what's the best way to respond?
I've tried thinking it through many times in the past, but I have this odd fear that the dreaded "but you look so normal" response will somehow come out unbidden. In which case I would be horrified with myself. It's such a stupid thing to say, but we NTs will speak without thinking.
Maybe, "I'm interested in hearing what it's like for you." That's a good thing you've given it thought.
 
Okay, serious question (please, & thank you in advance for any response): Why would saying this sentence to someone be passive/aggressive? If someone is sitting quietly & seems to want to be alone, another person might think they want to be alone so .... in looking for something to say, to explain what they are thinking & then what they will be doing, says, "well, since you're so quiet I'll just leave you alone then" .... meaning I'll just let you be, leave you to your silence, & not disturb you. This could be meant entirely sincerely & innocently in good faith.

OR do you mean if the person KNOWS that the autistic person does not want to be alone but just wants to be quiet? OR do you mean in cases where the 'person' is being passive/aggressive because they really want the autistic person to behave differently & not be so quiet at that moment? Or other?

I am sorry to put you through this extra exercise AsheSkyler, but I truly don't understand.

PS - I also really disdain when someone is passive/aggressive towards me or is sarcastic etc... I also like straight forward, honest, sincere, mature communication meant in good faith, with good will.


AsheSkyler didn't write this - it's copied from the blog: 10 things you shouldn’t say to the female Aspie
 
Okay, serious question (please, & thank you in advance for any response): Why would saying this sentence to someone be passive/aggressive? If someone is sitting quietly & seems to want to be alone, another person might think they want to be alone so .... in looking for something to say, to explain what they are thinking & then what they will be doing, says, "well, since you're so quiet I'll just leave you alone then" .... meaning I'll just let you be, leave you to your silence, & not disturb you. This could be meant entirely sincerely & innocently in good faith.

OR do you mean if the person KNOWS that the autistic person does not want to be alone but just wants to be quiet? OR do you mean in cases where the 'person' is being passive/aggressive because they really want the autistic person to behave differently & not be so quiet at that moment? Or other?

I am sorry to put you through this extra exercise AsheSkyler, but I truly don't understand.

PS - I also really disdain when someone is passive/aggressive towards me or is sarcastic etc... I also like straight forward, honest, sincere, mature communication meant in good faith, with good will.
Maybe, there is an underlying tone of disdain when a person says this. Like, "if you're just going to be anti-social, I'll go enjoy myself with the normal human beings". Sarcasm and passive aggression are closely linked, with the latter seeming to have deeper levels of hidden meaning than the former.
I have great difficulty understanding when someone means more than they say, but I'm sometimes grateful for being oblivious. Otherwise, I would be offended or upset a lot more than I am.
The problem is when the person being passive aggressive brings up a conflict later on that you didn't know you were having with that person, after they've been stewing over it for awhile. Like they get upset that you didn't pick up on their hints and approach them yourself earlier.
 
Okay, serious question (please, & thank you in advance for any response): Why would saying this sentence to someone be passive/aggressive? If someone is sitting quietly & seems to want to be alone, another person might think they want to be alone so .... in looking for something to say, to explain what they are thinking & then what they will be doing, says, "well, since you're so quiet I'll just leave you alone then" .... meaning I'll just let you be, leave you to your silence, & not disturb you. This could be meant entirely sincerely & innocently in good faith.

OR do you mean if the person KNOWS that the autistic person does not want to be alone but just wants to be quiet? OR do you mean in cases where the 'person' is being passive/aggressive because they really want the autistic person to behave differently & not be so quiet at that moment? Or other?

I am sorry to put you through this extra exercise AsheSkyler, but I truly don't understand.

PS - I also really disdain when someone is passive/aggressive towards me or is sarcastic etc... I also like straight forward, honest, sincere, mature communication meant in good faith, with good will.
It's all in word choice and inflection/accentuation/emphasis/whatever-it's-called. Usually what gives it away as being passive aggressive and rude is the inflection on "SINCE you're being so quiet" along with adding "just" in "I'll just leave you alone" instead of simply saying "I'll let you have some peace and quiet". "Since" and "just" are favorite words to add when you're mad. It's also some kind of guilt trip to make you feel bad for hurting somebody's feelings who wanted your attention but you weren't giving them what they wanted. Kind of shaming you for ignoring them and doing what many consider to be rude. If it's important like a house being on fire, I could understand it being bad to be zoned out, but for random things like talking about what a cloud is shaped like then I really don't get why people get so offended when you'd rather have a sit and think.

Some people you can trust and take it at face value that they're being respectful of you. Polite people do still exist, it just gets hard trying to figure out which ones they are. :p
Some of them are very obvious, like if they make the surprised face and back off quickly. As if they're a little embarrassed at having disturbed somebody. Sometimes with an apology with it. I think the more rude ones kind of stand around and walk off slowly with a huff, and if they apologize it tends to be sarcastic. There's also the bestial eye contact to consider. People upset for having disturbed you are more like to have submissive contact: eyes averted. People upset at you for being quiet are more prone to challenging/dominant eye contact: unblinking glare. Or an eye roll.

Personally, I tend to use it in the way you do, but only with people who know me well enough they can take it at face value because so many have used it the wrong way. Like on my husband, for example. If he's really involved in a game with his buddies or he's obviously in pain from a headache, back ache, or whatever, I tell him "consider yourself kissed" as a way to express affection without disturbing him or making him hurt further. But a more catty wife would say that with condescending airs to let her husband know that he should have dropped everything and paid attention to her regardless of the impact on him.


AsheSkyler didn't write this - it's copied from the blog: 10 things you shouldn’t say to the female Aspie
Aye, I just copy/pasted from one of Vinca's links and then in my grand and classic scatterbrained fashion forget to say so at top. I edited my post now. :oops:
 
I will have to finish listening, but wow for what I have heard so far; I LIKE this lady very much and I was nodding my head in enthusiasm ie yes, oh wow yes, that is so accurate and wow goodness me, so me!!!!

I have had the: why you so quiet; cat got your tongue or something? And I just want to escape.

I am off to a bbq today and to say I am dreading it, is rather an understatement; I don't want to go and seriously, panicking about it right now! These are people I know, but do not for the most part, get me. So it is Suzanne putting on her socialising mask and hopes the mask doesn't slip off! Ironic because for a few days, I have felt trapped at home and so, here is my chance to get out and see people and I want to stay home being trapped!!

Oh and because I look normal; well I must do, due to the comment when I have said that I have aspergers; oh really? Wow you look so normal and well, I get that ie anxiety etc etc. I guess I am part to blame because I am on the defensive and so, because not everyone has heard of it, I end up piling in with: oh it is on the autism spectrum and of course, they see in their mind's eye, classic autism and think: there is no way she is autistic. So I should stop trying to help them, me thinks lol

As it happens, a lady I particularly like, she is accepting I have aspergers and doesn't even question the fact that it is self diagnosed. I explained that I am hesitant to say to those who should and need to know, because when I did try, this one person said: oh you can't go around the internet, self diagnosing and laughed and talked about something else!

I feel that getting my husband to believe me, is a big step. If he believed me, he would be more willing to work with me, but he tends to: well if you say you got it, I guess I will just take your word for it! I did say though: that he has the opportunity in getting to know me, just as I know him ( I do know the nt's mind very well) and so this video is going to be shown to him for I feel that she can explain it far better than I can, because she is uncluttered with emotions of: trying to convince ones!

Forgot number 9. This is what my husband says: He said just this morning: you don't go to the baker shop anymore, I hope now because you think you have aspergers, that you are using it as an excuse to not go ie oh I have aspergers, I cannot possibly walk to the baker, that is just a few feet away!!! I said: would you like to know why I do not go there? Because first, what is the point of spending more than the supermarkets charge for bread, and there are massive holes in the bread? And because I, in a whim of: stop complaining, do something about it and very crudely said in horrible French that I was not happy with the bread and she made excuses and changed from a smiler to me, to "oh no it is you again, what now"! If those did not exist, I may well be able to go, even if my heart is in my throat with nerves.

He believes that if he accepts I have aspergers that I am going to use it against my marriage!!! That hurts!
 
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I liked part one of this video, but part two had some kind of beeping noise in the background that was driving me crazy. I tried turning off the sound and activating closed captioning, but the translation was very garbled. Is there a transcript of part two somewhere?
 
I read this a while back, along with the male Aspie version and they both resonated - I just nodded all the way through all 10 of them, I hear them all a lot:

#1. If 'We all' feel like me, are they saying I haven't got Aspergers? I get blank looks back..
#2. Have they tried being someone they're not?
#3. Can anyone hear my teeth grinding?
#4. Remember when you didn't see me when I was crazy for two years? That's what happened when I tried too hard!
#5. Can anyone take me shopping and pick the 'right' clothes for me?.. Any takers?.. Anyone?.. No?
#6. ..Aaand I'm not like them, right? That's because I'm like me!
#7. Can't you just let go, for this once.. and be Autistic a bit? Come and meet my mates!
#8. I'd sooo like to not be quiet.. can't you please just be patient and open minded and start talking to me first?
#9. You would understand me more if you stopped expecting me to be like you all the time!
#10. I wish I felt normal, then I wouldn't suffer so much with the above..

I also get this quite a bit:
#11. You seem to want to be different.. can't you just accept yourself for who you are?
- I can accept myself now, after a life time of trying and finally finding my way - the question is, can/will you and everyone else?

I always find #9 fascinating as people aren't even aware that they do the things they do that confuse me and when I point a thing out they deny they did it!

Wireless, I'd love for people to genuinely accept the possibility that I'm different, so even if they did give an inappropriate response, I'd have learned not to be so sensitive to it and know that it doesn't matter - it's ok for people to say the wrong thing sometimes by mistake, but the annoying thing through ignorance just gets more annoying and more invalidating.
 
I have had the: why you so quiet; cat got your tongue or something? And I just want to escape.
I am off to a bbq today and to say I am dreading it, is rather an understatement; I don't want to go and seriously, panicking about it right now! These are people I know, but do not for the most part, get me. So it is Suzanne putting on her socialising mask and hopes the mask doesn't slip off! Ironic because for a few days, I have felt trapped at home and so, here is my chance to get out and see people and I want to stay home being trapped!!
Just yesterday, my husband and I went to a parade with his family. We all sat in lawn chairs in the back of his parents' pick-up truck to get a good vantage of the festivities. My husband's brother invited additional friends to come sit in the truck, so it became very crowded and I was stuck in the front of the bed, crammed in like a sardine.
My husband's mother and grandmother were sitting next to me, "cackling away", as my SIL puts it, and I was becoming more agitated. I felt trapped and overwhelmed. When I get anxious, I get quiet. I just sat there for about 30 minutes, staring down silently, until my husband took our baby from me to change her diaper. I took that opportunity to get the Hell out of the truck and take a walk to cool my head. When I returned, I did NOT get back in the truck and spent the rest of the parade standing to the side of it.
I was able to be slightly more sociable at this point, even making a joke about a person in a panda costume in the parade that referenced "Sexual Harassment Panda" from South Park (met with blank stares and silence), but as soon as my husband asked if I wanted to leave, I said, "yes!"
 
This feels like a nicer way to explore aspie-NT communication and socialization styles. I'm getting useful things from the questions the NTs are asking. I'm grateful!
 

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