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Son recently diagnosed with ASD

Sthira

Active Member
Hi all,

My 4 1/2 year old son was recently diagnosed with ASD. The psychologist said he was high functioning, which, I assume, means he has good language skills (which he does.) In any case, my wife and I were a bit surprised by the diagnosis. We were really expecting anxiety or maybe depression given that our home life is pretty chaotic due to my wife's own mental health issues (depression, anxiety, emotional dysregulation, etc.)

What strikes me as strange is that at home, when he's in a good mood, he seems quite normal. Very good eye contact, very expressive (and appropriately so) via facial expressions, body posture, etc. He's also good at reading other people's moods (a necessary survival skill in my home.) He also has a good sense of humor, likes playing jokes, likes playing games were we pretend to deceive each others, etc. He understands and employs metaphors, and seems to have some facility at creating his own, some of which, in my view, are pretty sophisticated for a 4 1/2 year old. That said, when he's in a bad mood or being asked to do something he doesn't want to do (e.g. go to the autism evaluation center) he can be withdrawn, have a flat affect, be less communicative, not make much eye contact, keep to himself, etc. Now my understanding is that people with ASD have brains that are wired somewhat differently. If so, does this preclude the possibility that a person with Aspergers could show these symptoms (i.e. flat affect, little eye contact, social withdrawal, non-literal language problems, etc.) when in stressful situations, but act pretty normally in situations where they are comfortable?

My son does have some phobias that impact him socially. The sight of blood or even mention of it, for example, can make him physically sick. He's also extremely worried about babies and small children getting their saliva on him or his toys. Being hurt by others kids is another issue. A small child once stepped on his hand at the playground and for weeks afterwards he'd run down from the play structure as soon as any child younger than 3 came near. He told us that he thinks a lot about when he got hurt playing with other kids in the past. He also has an obsession with signs which seems to be related to concerns about danger.

I'm keeping an open mind about all this, and my wife and I are starting to look into ABA, etc. But at the same time, I want to make sure that we're not overlooking other possible causes for some of his behavior. In any case, I'd really appreciate people's thoughts.
 
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A very warm, heartfelt welcome! :rose: All of us with ASD share one common thing: When in an environment that better supports our challenges, we do better. So yes, many of us do okay at home (or quiet, calm places that are sensory-friendly) than we may in school, in a chaotic restaurant, hair salon, shopping center, or at work.

At home: Okay eye contact.
Crowded bus terminal: Zero eye contact, major gaze avoidance
At home: Pretty good conversationalist.
On the commuter train: If I don't have a handy "social script" ready when the ticket-man comes along, I'll get all panicky, then all doofy, parrot back to him exactly what he says. "Hi, good morning." "Hi, good morning." :grimacing:
At home: Can interact socially in a fairly okay, calm manner.
In unstructured social situations: Use a social script while "tuning out" mentally... a social script is an automagic phrase, set of phrases, that we use because communication is terrifying, random, feels like suddenly and unexpectedly trying to land a commercial aircraft. "Uh-huh....yes.....yes....oh, right.....yup.....uh-huh...aahh,yes....uh-huh..." (People may find me charming, but I have NO clue what's going on socially) :flushed:

So yes, your son may behave differently at home than out and about in society.

Finding both a good ASD specialist and OT (occupational therapist) can help your son manage his emotional dysregulation and develop his Aspie toolkit for resiliency & coping, learn to read his body better, can teach you to help support his challenges, and can design a sensory diet to help him manage his condition much better. Woohoo! Early diagnosis is great for your boy!

Without a diagnosis, we can be judged, but with a diagnosis, we can be supported, to reach our full potential. :sunflower:

Best of luck to you and your dear little boy!
 
He sounds like me when I was little. My parents couldn't believe I had ASD either. It's not so much acting "normal" as being subjected to less stress and therefore responding to sensory impressions unclouded by stress responses.

Not sure why you'd want to ABA that away.
 
A very warm, heartfelt welcome! :rose:
Thank you, Warmheart.

Finding both a good ASD specialist and OT (occupational therapist) can help your son manage his emotional dysregulation and develop his Aspie toolkit for resiliency & coping, learn to read his body better, can teach you to help support his challenges, and can design a sensory diet to help him manage his condition much better.
He definitely has emotional dysregulation issues. But then my wife (his mom) does too, so up to this point I kinda chalked that up to the frequently chaotic situation in our home and the emotional abuse he has witnessed and, to a degree, has also experienced. What sort of things can an OT do to help with emotional dysregulation? My wife is currently going to group DBT (dialectical behavioral therapy) for her emotional dysregulation.

Woohoo! Early diagnosis is great for your boy!
Is 4 1/2 years old early for a high-functioning child? It is only in the past 6 months or so that we really started noticing some of the social awkwardness. I knew some people with Aspergers in grad school and they seem very different from him.

Best of luck to you and your dear little boy!
Thank you very much. He is a dear little boy and I love him so much.
 
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He sounds like me when I was little. My parents couldn't believe I had ASD either. It's not so much acting "normal" as being subjected to less stress and therefore responding to sensory impressions unclouded by stress responses. Not sure why you'd want to ABA that away.

Thanks, Ylva. I don't really know a whole lot about the treatment options at this point. ABA is what the psychologist at the autism center mentioned, and my impression is that there is a fair amount of research showing that it is "effective." Are there other things you could suggest that might help him to deal with his stress when he has to be in less than optimal environments.
 
ABA, from what I've read, succeeds in suppressing (not changing) autistic behaviors in about ten percent of the cases, but it's basically dog training.

In terms of managing stress, I'd venture to suggest meditation, yoga, learning to take time-outs himself when he gets stressed – because it's important for him to recognize that and not ignore it – and it might work to focus on a special interest because the world disappears. :)

Most of us don't recognize our limits easily and have to teach ourselves to take those time-outs as adults, beating the life-long habit of pushing ourselves until we melt down. It just seems more practical to know how early on.
 
ABA empowers the autistic person to develop his/her strengths. It permits the autistic to have more freedom and control to navigate in society while improving their sense of "I can so totally handle this!" :sunglasses: in challenging situations. If your psychologist will refer you to an ASD paraprofessional who can provide ABA for your child, he will soon begin to feel good about himself. :) Today, ASD specialists specialize in making autistics feel competent, and great about being autistic! :D Sure, he'll learn to stretch his comfort zones-- with targeted support. The strengths he will develop will help him feel confident, stable, and more balanced. This being 2015, ABA methods ( and the positive, affirming attitudes behind them ) have become wonderfully empowering.
 
Current experience. For the first time in my life, I am being guided in viewing my autism as positive, and enjoy hearing paraprofessionals enthusiastically frame many of my autistic tendencies as positive. (they even happily call my special interests "passions!" I love it! ) Much in attitudes of those working with autistics have really changed. I am so grateful.

Sthira, I am sending your family good thoughts as you get your little boy a great support team in place!
 
Sthira, I am sending your family good thoughts as you get your little boy a great support team in place!


Thank you very much, Warmheart. I am very hopeful for him. He's a smart and sweet little guy (though he has his moments.) I recently accepted a position at a company which is going to allow me to telecommute, so we're moving across the country to be closer to my extended family, which I think will be good for both him and his mom. My son has a cousin who is autistic (with language difficulties) and this boy's mother (my son's aunt) is working on her ABA certification; so I'm sure she will be a great resource for us.
 
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In terms of managing stress, I'd venture to suggest meditation, yoga, learning to take time-outs himself when he gets stressed – because it's important for him to recognize that and not ignore it – and it might work to focus on a special interest because the world disappears. :)


I would love to get him into meditation at some point. I've been doing meditation for most of my life, and it has helped me in so many ways. Right now I'm just trying to meditate around him. For example, when he wakes up in the morning I like for him to see me meditating in the bed next to him. Sometimes he'll climb into my lap and sit (reasonably) still for a few minutes. That's really sweet. His mom has also started to meditate as part of her DBT therapy, so we're trying to make opportunities for him to see us meditating together as well. I'm hoping this will establish the idea in his mind that meditation is something natural to do and maybe even enjoyable.
 
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