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Self-Diagnosis: At what point do you decide you're an Aspie?

David D

Well-Known Member
As I stated in my introduction here, I'm 51 and self-diagnosed. I'm 90% sure I'm an Aspie based upon doing lots of reading and taking several online tests, but mostly based upon comparing myself to what I've read about people with Aspergers. I consider myself "borderline" as I can function in social situations (I fake it pretty good), although I MUCH prefer to be alone. I can also have a lot of empathy (I get emotional very easily as a matter of fact). That being said, I have enough Aspie traits that I am fairly certain I am.

I did find a local doctor that specializes in Autism and Aspergers, but for children. I met with home for one session. He didn't personally feel that I had strong enough symptoms to declare that I have Aspergers, but again, his focus is on children, not adults.

As weird as this may seem, I actually want to declare that I have Aspergers as it would explain why I am so different than many people. It actually sets me at ease because it gives me a reason to be "me". Does that make sense to anyone? Am I wrong? Can I call myself an Aspie based on how I feel?
 
This is America and you can call yourself anything you want. I believe that a professional diagnosis is something that you would do if you were uncomfortable with self diagnosing, or for a medical reason like you were going for a disability. Many people are self diagnosed. I have been misdiagnosed a couple of times, only to have a later "Professional" tell me No, it's something else. So where is the comfort in "Their Opinion" anyways?
I get along socially, I am very emotional, and on rare occasions I even experience empathy. If you believe that you have it, then I would say you do to. You will know better than anyone.
 
I self diagnosed relatively recently based on research and reading different people's experiences. When I found this forum a lot of everyone's experiences clicked with me. Personally I think if it clicks and gives you an "ah ha" moment where it helps explain a lot of what you have dealt with your whole life but were never able to explain that is good enough for me. I don't need to spend money on someone who doesn't know me like I know myself to give me a diagnosis when it is perfectly clear to me that I am an Aspie. And I am very thankful for this forum and the people on sharing their experiences. It has helped me understand myself better and accept my quirks and Aspie nature :)
 
Ditto on the " ah ha" moments!

It was actually my wife who had the first "ah ha" a couple of years ago while she was reading an article in Time magazine about a guy who has Aspergers. She turned to me after reading it and said "This is YOU!". That's when it all started. Since then, I've done lots of reading about Aspergers and had many "ah ha" moments. It all makes so much sense whenever I read about people with Aspergers. Ive been telling my wife for years that I don't feel like I belong here and that I'm on the wrong planet. I chuckled when I found out that there's a website called "Wrongplanet"!

The best thing about discovering Aspergers is that now I know that there are other people like me, and I don't feel as alone.
 
Ditto on the " ah ha" moments!

It was actually my wife who had the first "ah ha" a couple of years ago while she was reading an article in Time magazine about a guy who has Aspergers. She turned to me after reading it and said "This is YOU!". That's when it all started. Since then, I've done lots of reading about Aspergers and had many "ah ha" moments. It all makes so much sense whenever I read about people with Aspergers. Ive been telling my wife for years that I don't feel like I belong here and that I'm on the wrong planet. I chuckled when I found out that there's a website called "Wrongplanet"!

The best thing about discovering Aspergers is that now I know that there are other people like me, and I don't feel as alone.

That's odd! I actually typed planet, and the it got corrected to forum. I guess discussing that other place is taboo? I don't belong to that forum and don't have any interest to. Hope I didn't offend anyone.
 
I'm self diagnosed. My exboyfriend who is an aspie brought it up to me, and I refused to admit he could be right. Both of my sisters have autism along with developmental delays, and I refused to believe that I could possibly have it too. I wasn't "like them." Cut to six years later, I decided to do a bit of research. I needed to know why I felt so alien. Months later, I came to the conclusion that my exboyfriend had been correct.
 
I don't have a formal diagnosis. I participate on a prosopagnosia (faceblind) forum and several members disclosed they also had AS. The forum allows a lot of OT discussion and I couldn't ignore how much I was like these people. I eventually found some online tests and tested positive and absolutely believed I have AS. I don't believe my insurance would pay for a professional diagnosis so I didn't tell a lot of people. My son mentioned he had rekindled a friendship with an old college friend who had become a psychologist. I asked my son to ask this person how accurate an online test is and how much it would cost for me to be diagnosed by a professional. The answer was the cost would be high, but I could trust the online test because they were really quite accurate. I have no doubt I have AS and when, at a later date I was seeing a counselor, I asked her for her opinion. She readily agreed. I have read everything I could find about AS and firmly believe I have it. I also realize that my father was even more an Aspie than I. I wish he were alive so I could tell him he isn't a jerk as he had been told all his life. I still would like to get a professional diagnosis but really can't afford it.
 
I'm currently self diagnosed and awaiting a formal assessment. I relate so well to everything I have read about AS, that as far as I'm concerned the answer to Life, the Universe and Everything is not 42. It's Asperger's. Seriously, my entire life and my relationship failures can all be explained by AS in myself and my partners. If the assessors decide that I don't have it, well I won't be eligible for any government funded benefits that may be available. But there is absolutely nothing preventing me from adopting coping mechanisms to manage the problems I know that I have and benefiting from same. I'll also be much better at identifying the problems with potential partners much sooner and avoiding a whole lot of hurt and disappointment.
 
Beware of some doctors. The one you saw already seems to me to be perhaps confused by his use of "strong enough symptoms". I have heard this before where aspergers in an individual is said to be "mild" or "severe" and so on. In actual fact, my ability to cope with aspergers in my twenties was extremely poor so my symptoms then could be classed as severe, whereas today I cope with AS quite well and appear to be a "mild case". None of that (in my view) is beneficial to understanding aspergers. In my experience, symptoms may change as you age and much depends on how you personally deal with it.
My advice is to read up as much as you can on the subject, talk to people who have aspergers and keep an open mind always to your diagnosis. Be wary of doctors as I find the lack of understanding in such circles was surprising.

As I stated in my introduction here, I'm 51 and self-diagnosed. I'm 90% sure I'm an Aspie based upon doing lots of reading and taking several online tests, but mostly based upon comparing myself to what I've read about people with Aspergers. I consider myself "borderline" as I can function in social situations (I fake it pretty good), although I MUCH prefer to be alone. I can also have a lot of empathy (I get emotional very easily as a matter of fact). That being said, I have enough Aspie traits that I am fairly certain I am.

I did find a local doctor that specializes in Autism and Aspergers, but for children. I met with home for one session. He didn't personally feel that I had strong enough symptoms to declare that I have Aspergers, but again, his focus is on children, not adults.

As weird as this may seem, I actually want to declare that I have Aspergers as it would explain why I am so different than many people. It actually sets me at ease because it gives me a reason to be "me". Does that make sense to anyone? Am I wrong? Can I call myself an Aspie based on how I feel?
 
Thank you for that advice. I'm pretty comfortable with my self diagnosis, but tend to be very uncertain of myself in general (except for those things that I'm gifted with), so it's a little uncomfortable declaring that I'm an Aspie with strong conviction. I keep telling myself that I have enough symptoms to be an Aspie, and that the doctor I saw did not have experience with adults.

I suppose, as Peace said, no one knows me better than me.
 
I am sometimes one to caution about the pitfalls of self-diagnosis, but to be perfectly honest, the more I think about it, the less trust I have for neuropsych testing. Thinking back on my own examinations, the room for bias on the part of both tester and patient was enormous.

"No one knows me better than me"...Pretty much, yeah.

Anyway, be yourself (when you can). :cool:
 
I have an odd way of looking at all of this. The fact is I lived decades of my life disadvantaged, trying to compete in a situation where I was different and misunderstood. For decades I had no idea aspergers existed and it affected my education, self confidence and ability to hold down a normal job. I saw a psychologist in the nineteen eighties when I was severely depressed and on meds but, at that time, there was still no familiarity amongst doctors with Hans Asperger's work or Lorna Wing. I often think that had I had the diagnosis years ago my life could have been so much better as it is today since finding out about aspergers has helped me regain control. When I concluded I had HFA some months ago I had a real hard time from friends and also a doctor I consulted. People were telling me there was no way I had "autism". Their argument was I could ride a bike, could speak more than one language fluently and could laugh and joke. This was a real hard time for me as I was doubting my own diagnosis, imagining that surely if I was on the autism spectrum I should be behaving in a more dramatic way. Now, after much research, I know I have HFA. I had to go back in my memory to early childhood because my parents now are too old and too indifferent to ever be interviewed but sometimes they tell me things that took place and it makes an impression. For example, my mother let it slip a few days ago she had to give up her job because I was unsettled at nursery school and that I was slow learning to read (typical of HFA). To be honest, for me, the whole thing just came together as the solution to one huge puzzle but, sure, I had major doubts at times and tried to keep an open mind. I mean, stuff like the sensitivity to fabrics which at first I didn't think applied to me and then I recalled there were trousers and shirts I simply wouldn't wear at school as they itched.
Back to the point: I did see a doctor but he seemed totally uninformed of high autism and finally referred me to an aspergers association which seemed far more clued up. So, I took the path of carrying on investigating aspergers and have now concluded that I have a new approach to it that may go against much conventional psychology due to the fact I have so many questions over aspergers. I tend to agree more with the group of psychologists that propose accepting the positive aspects of aspergers and then developing coping strategies for the negative traits (depression, isolation, anger, sensitivity, self confidence).
Actually I am one of those aspies you may meet who is not quite so obvious. My best friend had aspergers and was diagnosed professionally with the condition and his symptoms were far more obvious than my own (eye contact, shyness, stance, odd behaviour and higher more constant levels of depression. You only discover how deep my own symptoms are after some time, not at a superficial glance and these symptoms are deep enough to cause some people to often avoid me or call me "weird". Neither is the hurt you feel when you're ignored by family or people you know detected at a superficial glance which is why I urged caution when judging severity. We are all very different. Some of us cope better than others or have learned to act better in order to hold down a job which is why diagnosis is so complex an issue.
 
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As I stated in my introduction here, I'm 51 and self-diagnosed. I'm 90% sure I'm an Aspie based upon doing lots of reading and taking several online tests, but mostly based upon comparing myself to what I've read about people with Aspergers. I consider myself "borderline" as I can function in social situations (I fake it pretty good), although I MUCH prefer to be alone. I can also have a lot of empathy (I get emotional very easily as a matter of fact). That being said, I have enough Aspie traits that I am fairly certain I am.

I did find a local doctor that specializes in Autism and Aspergers, but for children. I met with home for one session. He didn't personally feel that I had strong enough symptoms to declare that I have Aspergers, but again, his focus is on children, not adults.

As weird as this may seem, I actually want to declare that I have Aspergers as it would explain why I am so different than many people. It actually sets me at ease because it gives me a reason to be "me". Does that make sense to anyone? Am I wrong? Can I call myself an Aspie based on how I feel?


I feel so happy that alot of people on this thread are also self diagnosed, I have been feeling that I was apart of the asbergers syndome for a few months now. I've read up heavily, took every test there is without bias or 'hoping' I have asbergers syndrome as asbergers explains EVERYTHING in my life. I would think of myself as a moderately severe, but then again, not sure, as long as I know I have asbergers I can now be understood more by my fiance and can fix a few things in my life by simply paying greater attention. :) I'm happy I have been diagnosed and I am 100% sure of it, because I relate to almost every single post on this forum, plus the on the rdos test I scored 185/200! I only have 21 of the NT symptoms haha. I've always known I was a strange person, always have been self concious of where to put my hands, wondering why people do the things they did, and wondering why I felt so awkward when speaking to people! I never have cared for talking to people, and alot of the time a joke or a tease is sent my way I get upset because most of the time they are 'literal'. This has caused so many awful arguments with my fiance. He now understands why, and he is normally a skeptic for self diagnosing! :bounce: :bounce:
 
I had to think a lot about this. Before I responded. I always knew I was different. I was told as child I was different. I learned different I reacted different than most kids my age did to things. But when I was young they didn't know about girls and autism. They just thought I had a learning disability and that was all. I went to therapy when I was high school to make friends. Still they didn't think I had autism I was just lonely. Then came college and finally my master degree in Clinical social work. I learned all there was to know about Autism, for fun mind you. I was working with both of my internships and they both suggested I get tested for AS. Well. Needless to say that I was dx'd with it in 2008-09 officially then again with it in 2013 for a re-evaluation. It was recommended due to the changing of status of the DSM. I just it made me feel good to finally have a name for what I already knew. I was different. I also have something called NVLD.

I guess my suggestion would be. Talk to a specialist that deals with adults. I found that my re-evaluator was ignorant of girls with autism because he normally worked with boys. So it makes a difference. I would just find the Autism center for your area and ask them if they do evaluations. I would get it done. It really helps to understand that there is something going on and it has a name.
 
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My wife thought I should look into Aspergers because she thought AS fit my 'quirks' (my word). I found a test and took it. I scored high enough that I thought AS might really explain me and the feelings I can't really explain to people. I say I'm an Aspie and not a gaslighting asshole.

I have found and taken two tests online, one of which was in a link on this forum. The results don't quite match up, so I'd appreciate it if someone would direct me to some more tests that you feel are good. I would like to see what kind of trend I notice.

Hey, some of you have a test result at the bottom of your posts...how did you put it there?
 
That's odd! I actually typed planet, and the it got corrected to forum. I guess discussing that other place is taboo? I don't belong to that forum and don't have any interest to. Hope I didn't offend anyone.

I used to go to the forum that must not be named but stopped because there are too many snarky people there. I suspect a lot of so called aspies there are really sociopaths and/or narcissists. Curiously, here, some of the aspies have acknowledged sociopathic tendencies but they almost never exhibit these traits in an aggressive way. Perhaps the "other site" chooses moderators who are sociopathic narcissists. Whatever the reason this site is much warmer, fuzzier, safer and more nurturing.
 
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I needed a diagnosis because I did not see my own aspieness. My wife told me on several occasions that she thought I was aspie. Eventually I went to the autism society and was diagnosed.

I concur with the OP that it was an epiphany to learn I was on the spectrum. Finally an answer I sought for decades was revealed to me and changed the way I live my life.
 
My wife thought I should look into Aspergers because she thought AS fit my 'quirks' (my word). I found a test and took it. I scored high enough that I thought AS might really explain me and the feelings I can't really explain to people. I say I'm an Aspie and not a gaslighting asshole.

I have found and taken two tests online, one of which was in a link on this forum. The results don't quite match up, so I'd appreciate it if someone would direct me to some more tests that you feel are good. I would like to see what kind of trend I notice.

Hey, some of you have a test result at the bottom of your posts...how did you put it there?

Have you taken that particular quiz?
 
I used to go to the forum that must not be named but stopped because there are too many snarky people there. I suspect a lot of so called aspies there are really sociopaths and/or narcissists. Curiously, here, some of the aspies have acknowledged sociopathic tendencies but they almost never exhibit these traits in an aggressive way. Perhaps the "other site" chooses moderators who are sociopathic narcissists. Whatever the reason this site is much warmer, fuzzier, safer and more nurturing.

I haven't tried the un-nameable place, but I do agree that "this site is much warmer, fuzzier, safer and more nurturing" than pretty much any internet site I'm familiar with.

Some people here speak of lack of empathy, but I get the impression they do care about other people; maybe simply without a lot of emotion behind it. Like Data in Star Trek Next Generation, going on and on about how he doesn't have emotions, while, in spite of his complaining, being the gentlest character on the show.
 

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