PANDAS/PANS and "Late Autism"

[OkRad]

Funny, the Dr never mentioned this. I looked back over my records. I have the Dx and also bloodwork to show I do have the antibodies to several of the offending infections which cause this.

FOr me, it came on very fast at 14, totally different kid, not eating, OCD, reversal of skills, social, interatcions, etc.

I will be seeing a PANDAS Dr. Not much can be done now, but I think I am getting closer to knowing what happened to me. One thing for sure. I am NEVER going back to those a******es telling me I am just crazy. What a stupid ****** ******* that Dr was.

 

[Southern Discomfort]

I've only seen PANDAS cross over with tic disorders and Tourette's, never with autism. I'm a little skeptical of this one.

 

[Bolletje]

I don't know of a connection between PANDAS and autism, to be honest. But PANDAs with tics and OCD, yup. I hope you'll find more answers soon, it must be exhausting to still be in the dark about so much of what happened to you.

 

[OkRad]

no, it does not cause autism. It causes things that may look like it. /it is much more than tics. Regression, change in learning, writing, eating, personality, etc, widespread.

That happened to me and fast. I had every one of these except aggression and typical tics, instead of odd repetative behavours that were more like hyper/could not stop moving.......

Symptoms | PANDAS Network
SYMPTOMS
Symptom presentation and severity can vary from child to child. It can also vary in each exacerbation. Below is a list of possible symptoms a child may exhibit. Not all need to be present. Not all possible symptoms are listed.

OCD (OBSESSIVE/COMPULSIVE DISORDER)
See OCD in a Young Child for a list of how OCD can present itself. OCD is not only obsessive hand washing!

RESTRICTIVE EATING
This includes selective eating to full out food refusal.There can a variety of reasons why the child experiences this, including contamination fears, sensory sensitivities, trouble swallowing, fear of vomiting or weight gain, and more. If restrictive eating is resulting in severe weight loss, call your provider immediately.

TICS

ANXIETY

EMOTIONAL LABILITY
Emotional lability includes not being able to control one’s emotional response. It may include uncontrollable crying or laughing. This is a neurological symptom.

DEPRESSION

IRRITABILITY AND AGGRESSION

BEHAVIORAL REGRESSION
This includes baby talk.

DEVELOPMENTAL REGRESSION

DETERIORATION IN SCHOOL PERFORMANCE
This includes deterioration in math skills, inability to concentrate, difficulty retaining information, and school refusal. School performance can also be a result of another contributing symptom, such as OCD or severe separation anxiety.

CHANGES IN HANDWRITING
This includes margin drifts and legibility.

 

[momlovesheraspies]

Hi Okrad! as the mom of two kids, one with Aspergers (onset between birth and 3 years) and one with PANS (onset at 5 years) I think you are really onto something. We are working with the PANS clinic at Stanford and my PANS son's case is the real thing. He was completely typical before the onset of all the behaviors listed above. Now that he is far along in his treatment most of these behaviors have resolved, but his baseline has shifted. He now has many of the same traits as his aspie brother. Please look up the work of Rosario Trifiletti. There is a youtube presentation from the Autism One conference in which he suggests that Autism and PANS can be one and the same. Remember that both are clinical diagnosis. Neither one has a proven etiology. So, what you suspect is completely possible.

 

[Streetwise]

the problem is n.t's they go for easy, pandas makes you uncertain that danger will not happen thus you are nervous and fixed in your ability to accept other viewpoints i observed this in a girl of 8 or 9 years of age but as usual psychologists and biomedical researchers love easy-wehhey its autism now I can sit on my destructive bum(bottom,posterior,ass,behind,cheeks)

I've only seen PANDAS cross over with tic disorders and Tourette's, never with autism. I'm a little skeptical of this one.