• Welcome to Autism Forums, a friendly forum to discuss Aspergers Syndrome, Autism, High Functioning Autism and related conditions.

    Your voice is missing! You will need to register to get access to the following site features:
    • Reply to discussions and create your own threads.
    • Our modern chat room. No add-ons or extensions required, just login and start chatting!
    • Private Member only forums for more serious discussions that you may wish to not have guests or search engines access to.
    • Your very own blog. Write about anything you like on your own individual blog.

    We hope to see you as a part of our community soon! Please also check us out @ https://www.twitter.com/aspiescentral

My name is Jess, I think I may be on the spectrum

Reasons that I believe I may be autistic: Socially, I can't look people in the eyes, I don't understand social cues at all, I cannot start or continue even casual conversations. I have the hardest time finding clothes to wear. Forget it if the stitches aren't just right, if it doesn't look or feel right on my legs or arms, and I wear the same few pairs of clothes over and over. When it comes to food, I cannot eat foods that don't look, feel, and smell just right. I eat the same few foods over and over. I have to organize and line things up over and over daily. I have a meltdown if things are not perfect or just right. Things around the house must be done just right or I get upset and shut down instantly. I have child-like obsessions, such as horses and unicorns. I only have 1 friend that I like to spend time with one on one, and I cannot handle being in a group. I cannot get through a store without a meltdown, the sounds, lights, and people are just too much. I am very repetitive with things I say. My meltdowns, shutting down, panic attacks, and withdrawls cause me to not even be able to do basic self-care, such as eating, getting out of bed, showering, and brushing my teeth. I am constantly picking my skin. There is more, but I will have to write tomorrow.

You need not say more. You are like us. I know what you are feeling. And everyone else here does too. Even with our differences in how we act and perceive our Autism.

Social is the hardest thing and the most common trait among all of us, due to executive function issues. With practice, we can learn to pick up on things NTs naturally know how to pick up on. But it'll always be difficult.

People can be unpleasant to be around. Especially in long periods. In large groups. In uncomfortable places. Public places.

It's like it feeds this idea in us that we are the outcast among outcasts. The alien in a room full of humans. But these things are not bad, if you don't make it feel that way.

Routine is a common thing for us too. And serious upset to that routine is, and always will be, distressing. But because life is what it is. We have to face these interruptions frequently, whether we like it or not.

It's hard. It always is. But you've made it this far. You can still make it farther yet.

You are not as alone, as you feel.
 
Welcome @JessicaAnne1994

Whether you wish to get an assessment or not, is ultimately up to you. Though you will get access to alot of help, if you wish to have it, if you are found to be ASD. And once you have the diagnosis. A whole world of opportunities will be open to you.

Though if you are curious about if you are or not. There are online tests out there that could help with measuring this for you. Though these tests are BY NO MEANS a tool for diagnosing autism. Just something to give you an idea overall.

Try this one and see what you get:

RAADS Test
What kind of opportunities?
 
Hi and welcome to the forum.


This depends on what a diagnosis will do for you, and that's highly dependent on what country you live in. In Australia my ASD2 diagnosis got me a full pension and all the benefits that go with that. In effect - early retirement. I'm socially secure for the rest of my life, in fact better off than many people that work for a living. Getting a diagnosis here is also quite cheap compared to a lot of countries, it cost me Au$500 all up, in US money that's about $300.
I'm not so much worried about getting a check money wise, being that I could get a check for my MDD diagnosis. I want to know so I can quit questioning if I have it or not.
 
I'm not so much worried about getting a check money wise, being that I could get a check for my MDD diagnosis. I want to know so I can quit questioning if I have it or not.
By the time I went for a diagnosis I knew very well that I was autistic, but it did also give me a sense of validation and vindication. It did feel nice for a while. :)
 
For what it's worth, my observation in this forum for a very long time has reflected that most people who come here and suspect they are autistic, go on to have it validated by medical professionals. That most likely your instincts will tell you what deep down, you already know.
 
What were the signs that you were autistic? If it's okay to ask. Validation I'm sure does feel nice.
I was weird and didn't fit with other kids from as early as I can remember. I also have an IQ of 172 and an eidetic memory which sort of makes me stand out from others. My school life was torturous and I quit that as soon as I was legally old enough that my father couldn't refuse. He certainly objected but he had no legal right to compel me. He was a lawyer by the way.

Once I left school I learnt a trade and I was very successful in that. The people that trained me also taught me social skills that I never learnt as a kid and I became very successful socially as well. But I was always different, I'm someone that actually prefers being alone, I don't get lonely, I get the opposite, I get all peopled out and need a break from them from time to time.

I didn't find out anything about autism until I was in my late 40s but I learnt about my own needs well enough that I limited my social activities to those that I wanted and avoided all others. I even used to tell people during job interviews "I'm here to work, not to party. I'm not interested in any social club, Christmas party or Melbourne Cup Day barbecue. I'm not very social and prefer to be left alone to work.".

By the time I was 30 I was earning seriously good money and taking on management roles as well, and my social life took off big time. I wish I knew about autism back then. All the friends I had grown up with had settled down to have families but I was a party boy, out and about 7 nights a week and spending all the money I earned quite freely. I was having a lot of fun, the world was my oyster.

Then in my late 30s I started burning out. I knew nothing about burnout and kept pushing myself to keep performing as well as I used to, but that just makes the burnout worse. I moved back up to Darwin hoping a slower pace of life would help and to some extent it did but I still kept burning out. In the end I was so disenchanted with the world I lived in that I came to the decision "I can't live like this any more.".

I've never had fixations of self harm though, I just needed something different but didn't know what. We all have idle daydreams from time to time about escaping to a remote tropical paradise. I was already living in such a paradise, all I had to do was walk out the front door and that's literally what I did. I told my neighbours to help themselves to everything I owned before the landlady claimed it and left the front door open for them. I kept my favourite SLR camera and lenses and a spare pair of jeans and that was pretty much it.

I wandered off in to the rain forests to live like a feral, was homeless for 12 years. I ended up living on various people's properties in a remote community where I was accepted because I have a helpful nature and I'm not shy of physical work, and I'm a bit of a computer geek which was also handy.

I had been out there for nearly a decade before I heard a program on the radio discussing autism and for the first time in my life I had a way of understanding what had happened to me and why I am this way.

A few years later after falling out with another property owner and having to find somewhere else to live I decided that I was getting a bit too old for that life and I knew how the welfare system worked in the state that I grew up in, South Australia. So I jumped on a plane down to Adelaide, put my name down for a diagnosis and put myself through the homeless system to get social housing.

It only took 3 months to get cheap permanent housing, it took a year on a waiting list to get my diagnosis, by then I was 55 years old. I've been comfortably housed and financially stable ever since.
 
I was weird and didn't fit with other kids from as early as I can remember. I also have an IQ of 172 and an eidetic memory which sort of makes me stand out from others. My school life was torturous and I quit that as soon as I was legally old enough that my father couldn't refuse. He certainly objected but he had no legal right to compel me. He was a lawyer by the way.

Once I left school I learnt a trade and I was very successful in that. The people that trained me also taught me social skills that I never learnt as a kid and I became very successful socially as well. But I was always different, I'm someone that actually prefers being alone, I don't get lonely, I get the opposite, I get all peopled out and need a break from them from time to time.

I didn't find out anything about autism until I was in my late 40s but I learnt about my own needs well enough that I limited my social activities to those that I wanted and avoided all others. I even used to tell people during job interviews "I'm here to work, not to party. I'm not interested in any social club, Christmas party or Melbourne Cup Day barbecue. I'm not very social and prefer to be left alone to work.".

By the time I was 30 I was earning seriously good money and taking on management roles as well, and my social life took off big time. I wish I knew about autism back then. All the friends I had grown up with had settled down to have families but I was a party boy, out and about 7 nights a week and spending all the money I earned quite freely. I was having a lot of fun, the world was my oyster.

Then in my late 30s I started burning out. I knew nothing about burnout and kept pushing myself to keep performing as well as I used to, but that just makes the burnout worse. I moved back up to Darwin hoping a slower pace of life would help and to some extent it did but I still kept burning out. In the end I was so disenchanted with the world I lived in that I came to the decision "I can't live like this any more.".

I've never had fixations of self harm though, I just needed something different but didn't know what. We all have idle daydreams from time to time about escaping to a remote tropical paradise. I was already living in such a paradise, all I had to do was walk out the front door and that's literally what I did. I told my neighbours to help themselves to everything I owned before the landlady claimed it and left the front door open for them. I kept my favourite SLR camera and lenses and a spare pair of jeans and that was pretty much it.

I wandered off in to the rain forests to live like a feral, was homeless for 12 years. I ended up living on various people's properties in a remote community where I was accepted because I have a helpful nature and I'm not shy of physical work, and I'm a bit of a computer geek which was also handy.

I had been out there for nearly a decade before I heard a program on the radio discussing autism and for the first time in my life I had a way of understanding what had happened to me and why I am this way.

A few years later after falling out with another property owner and having to find somewhere else to live I decided that I was getting a bit too old for that life and I knew how the welfare system worked in the state that I grew up in, South Australia. So I jumped on a plane down to Adelaide, put my name down for a diagnosis and put myself through the homeless system to get social housing.

It only took 3 months to get cheap permanent housing, it took a year on a waiting list to get my diagnosis, by then I was 55 years old. I've been comfortably housed and financially stable ever since.
Thank you for sharing your story!
 
Can anyone share the signs and symptoms of Autism 1, 2, and 3?
I finally have some appointments next month about getting diagnosed.
There are no specific symptoms. Those are designations of how much support you need.

In America:
  1. 3s require a legal guardian (as an adult).
  2. 2s require a conservator (of estate), but not usually a guardian.
  3. 1s require neither.
 
Today was a huge struggle. Sometimes it really gets to me that I am unable to socialize normally or pick up on social cues :( It seems like lights, smell, and touch get to me as well. Then again, I prefer being alone and don't really get lonely but I do get peopled out easily.
 
What does everyone else's day look like? If it's okay to ask. I am not sure if it's a part of autism but I have an extremely hard time just getting through everyday life and simple tasks.
 
I'm retired and on a pension so I have no obligations. I get up and get a coffee then play video games, sometimes taking a break from that to browse the net. I eat when I'm hungry and sleep when I'm tired and that's about it. The only visitor I ever have is the rental management lady when she does her yearly inspection. Life is good.
 
What kind of opportunities?

I never did reply to this did I? Oops. :P

By being offically diagnosed, you will have support services for Autism available to you. General life skills, work help, and SSI/SSDI. Things to help you understand, and funtion, better in a world that is NT dominated.

Today was a huge struggle. Sometimes it really gets to me that I am unable to socialize normally or pick up on social cues :( It seems like lights, smell, and touch get to me as well. Then again, I prefer being alone and don't really get lonely but I do get peopled out easily.
What does everyone else's day look like? If it's okay to ask. I am not sure if it's a part of autism but I have an extremely hard time just getting through everyday life and simple tasks.

For me, life isn't too bad. My own mental health is the biggest determinating factor in if I will have a good day or not, alot of the time. Psychosis sucks.

Though I do find being around large crowds in general to be difficult. Especially in public spaces, where there are few places to hide from it. I still trip up with jokes and some cases of sarcasm.

But outside that. It's stuff like direct sunlight, extreme temps, and unbearably humid days that can be a bit hard for me. More annoyances than anything else, really.
 
What does everyone else's day look like? If it's okay to ask. I am not sure if it's a part of autism but I have an extremely hard time just getting through everyday life and simple tasks.

I used alcohol to suppress much of the difficulty. Alcohol really does suppress the same part of brain involved in sensory processing and other autistic symptoms. You'll find many ex-alcoholics on this forum.

So I had a successful corporate career. But even with alcohol, I would lock myself in my bedroom all day when I wasn't hyperfixating at work. And when I was out in the wide world (walking and such) I refused to be without hyperfixating on a screen or book. I was super emotionally detached. It's been like that all my adult life.

My husband got fed up with it and forced me to go to therapy, which took a couple of years to get diagnosed. Although my husband figured out I was autistic before the therapists did, and simply didn't tell me.

Now, I don't lock myself up in my room anymore. I don't use a screen anymore. I don't detach anymore. But it's come with a lot of changes. I wear sunglasses. I wear the same clothing everyday. Meltdowns are a regular occasion. It is an enormous effort to even watch videos. My husband has to sit down with me and review the day's schedule everyday because I can't manage it myself.

My career is fine, I just gave up the corporating part and focused on the engineering part. I managed to reduce my working hours greatly by eliminating the BS part in favor of recovery.
 
Your still young being considered disabled could really truncate your career, self diagnosing is easy to do.
 
Hi and welcome to the forum.


This depends on what a diagnosis will do for you, and that's highly dependent on what country you live in. In Australia my ASD2 diagnosis got me a full pension and all the benefits that go with that. In effect - early retirement. I'm socially secure for the rest of my life, in fact better off than many people that work for a living. Getting a diagnosis here is also quite cheap compared to a lot of countries, it cost me Au$500 all up, in US money that's about $300.
I don't know where she is at but in Canada if you are looking it's around 2-3000 and most health insurance does not cover it unless you are a child. If you are an adult that slipped through the cracks like I did, no help or supports with trying to get a diagnosis. And, while I'm sure it's better in more urban parts of the country, my own area has nobody that can do official adult diagnosis. I've only been able to fine one psychiatrist who does assessments via virtual appointment, and even they are so booked up that they aren't even accepting names to be on the waitlist.

Unless you are looking to get a diagnosis to get access to supports there isn't much point in Canada right now for an adult to jump through those hoops. The sad/weird thing, you could probably get an ADD assessment done for under $500 and get access to a plethora of government supports as adult ADD is readily recognized.

@Outdated I always marvel at the information about your own experiences and the systems in Australia. Your country, at least here in Canada, is considered to be ahead of things for mental health research and supports. When I was in Rehab, 90% of the workbooks they were given me were coming the CCI there. Link below.

CCI - Self Help Resources for Mental Health Problems
 

New Threads

Top Bottom