• Welcome to Autism Forums, a friendly forum to discuss Aspergers Syndrome, Autism, High Functioning Autism and related conditions.

    Your voice is missing! You will need to register to get access to the following site features:
    • Reply to discussions and create your own threads.
    • Our modern chat room. No add-ons or extensions required, just login and start chatting!
    • Private Member only forums for more serious discussions that you may wish to not have guests or search engines access to.
    • Your very own blog. Write about anything you like on your own individual blog.

    We hope to see you as a part of our community soon! Please also check us out @ https://www.twitter.com/aspiescentral

I was diagnosed (for a second time)

PastelPetals

PastelPetals

Well-Known Member
V.I.P Member
Today I got news.....I am still autistic.

This sounds funny of course due to autism being a permanent thing but I was tested again for my neuropsych eval for my 18th birthday and transition to adulthood.

The doctor only talked to my parents today but she will talk to me soon. She told my parents that she was surprised that anyone who has spent time around me in the past could not tell. I think that as well but she is a specialist so I think she might be biased.

It is realer to me everyday even though I have known in my heart since I was a child and known on paper since 14 that I am autistic and part of that is getting people to understand that I am autistic instead to difficult and intentionally slow. But I am a girl and so people sometimes assume it can't be the case. (including many people as a child who just thought I was a bad kid and quite odd)

Have any of you received the news more than once that you are autistic?
 
Yes hard to see how a diagnosis of this type of brain difference would change. Are your parents coming around to it and understanding it better? I hope so. It's unusual for your business to be discussed with anyone else when you are an adult, unless you give permission, do you know why that happened and are you happy with it?

I am not diagnosed, and because I don't need to be now at 63 I won't be pursuing diagnosis, which I think would be ASD1. It fits what I experience, and my extensive work to change core communication issues in unstructured social interaction were always unsuccessful. Maybe if they start doing diagnosis by brain photographs in my lifetime, I ll get one.
 
Thinx said:
Yes hard to see how a diagnosis of this type of brain difference would change. Are your parents coming around to it and understanding it better? I hope so. It's unusual for your business to be discussed with anyone else when you are an adult, unless you give permission, do you know why that happened and are you happy with it?

I am not diagnosed, and because I don't need to be now at 63 I won't be pursuing diagnosis, which I think would be ASD1. It fits what I experience, and my extensive work to change core communication issues in unstructured social interaction were always unsuccessful. Maybe if they start doing diagnosis by brain photographs in my lifetime, I ll get one.
Click to expand...

Yes I am ok with it. the eval started when I was 17 and now my parents have power of attorney for medical stuff anyway however they never do anything without my permission (hence why they don't get info from my therapist) It is important they know this stuff though as they need to help me advocate as I go into transition programs and getting services as an adult. I am still more dependent on them than other people my age might be with their parents due to being autistic and the way it shows up in me (asd 2).

My mom is very understanding and so is my dad. Even though I was diagnosed as a teen I was diagnosed with an assortment of developmental disabilities and learning disorders before so they had time to get used to it. I think at some point parents care less about a label and more about being able to get help for their kid. The reason I even got the news a second time was so that I could get adult services. I think it's silly they won't just believe past tests or my own words and writing but that is how it works.
 
It's great to hear how supportive and proactive your parents are. My mom refuses to believe anything except that l am a brain dead Martian and that my real father was a diseased psychopath therefore l must be the same. I now wonder if he was autistic. In my childhood and later years,l was perfectly content to stick to myself and didn't have friends. But my house never felt very friendly or if l brought a friend over, my mother would become the best friend instead of me. It was quite strange. She would adopt them, and l would think, why can't you treat me like that. Talk about emotional neglect. You have your life together, you have your priorities and your parents respect you.
 
Have any of you received the news more than once that you are autistic?

In a way yes. I was diagnosed as PDD-NOS in 2nd grade which is an autism type disorder to my knowledge and then I was diagnosed with Level 1 ASD in 4th grade. Although I did have one therapist in 5th grade that thought I was normal and just had social anxiety issues exacerbated by OCD and ADHD. My current therapist wasn't able to tell I was on the Spectrum either until I told him so I guess I do a pretty good job of blending in.
 
PastelPetals said:
Today I got news.....I am still autistic.

This sounds funny of course due to autism being a permanent thing but I was tested again for my neuropsych eval for my 18th birthday and transition to adulthood.

The doctor only talked to my parents today but she will talk to me soon. She told my parents that she was surprised that anyone who has spent time around me in the past could not tell. I think that as well but she is a specialist so I think she might be biased.

It is realer to me everyday even though I have known in my heart since I was a child and known on paper since 14 that I am autistic and part of that is getting people to understand that I am autistic instead to difficult and intentionally slow. But I am a girl and so people sometimes assume it can't be the case. (including many people as a child who just thought I was a bad kid and quite odd)

Have any of you received the news more than once that you are autistic?
Click to expand...
Yes within a span of 6 months by a gp then a team from autism diagnosis
 
PastelPetals said:
Yes I am ok with it. the eval started when I was 17 and now my parents have power of attorney for medical stuff anyway however they never do anything without my permission (hence why they don't get info from my therapist) It is important they know this stuff though as they need to help me advocate as I go into transition programs and getting services as an adult. I am still more dependent on them than other people my age might be with their parents due to being autistic and the way it shows up in me (asd 2).

My mom is very understanding and so is my dad. Even though I was diagnosed as a teen I was diagnosed with an assortment of developmental disabilities and learning disorders before so they had time to get used to it. I think at some point parents care less about a label and more about being able to get help for their kid. The reason I even got the news a second time was so that I could get adult services. I think it's silly they won't just believe past tests or my own words and writing but that is how it works.
Click to expand...
They haven't been taught to respect children
 
PastelPetals said:
Today I got news.....I am still autistic.

This sounds funny of course due to autism being a permanent thing but I was tested again for my neuropsych eval for my 18th birthday and transition to adulthood.

The doctor only talked to my parents today but she will talk to me soon. She told my parents that she was surprised that anyone who has spent time around me in the past could not tell. I think that as well but she is a specialist so I think she might be biased.

It is realer to me everyday even though I have known in my heart since I was a child and known on paper since 14 that I am autistic and part of that is getting people to understand that I am autistic instead to difficult and intentionally slow. But I am a girl and so people sometimes assume it can't be the case. (including many people as a child who just thought I was a bad kid and quite odd)

Have any of you received the news more than once that you are autistic?
Click to expand...

Hello there my young friend great to see you again.

I have been evaluated thru out my life from 4 until i got finaly discoverd with also having ASD so yes & as can be seen they have found more and more diagnosis. After that they decided to toss in the towel as they also concluded " multible diagnosis yet to find but due to possibilities of locating them all is less then good the effort is not worth pursuing " And i agree no point of digging anymore

Quote Even though I was diagnosed as a teen I was diagnosed with an assortment of developmental disabilities and learning disorders Quote

Thats not as strange as you may think either as i also got my ID diagnos in my teens the ASD was discoverd way later as was my learning disabilities even tho i was born with them all. + 30 - if i remember right 80 % that have either ASD and or also ADHD also have ID and learning disabilities.

The most common developmental disability is intellectual disability. Cerebral palsy is the second most common developmental disability, followed by autism spectrum disorder. Other developmental disabilities may include: Attention-Deficit/Hyperactivity Disorder = ADHD
 
Last edited:
You must log in or register to reply here.

New Threads

Top Bottom