My youngest grand daughter has a lot of Aspie traits that I've seen for several years. She started school this last year and had some problems. The consular at school has suggested that she might have Aspergers Syndrome. Her parents are trying to get a diagnosis for her. Since the school has said something, I have had a few discussions about AS with our daughter. Like all NTs, she is having trouble understanding what this is all about. One of the things that I have been asked is "How does it feel to be a Aspie?". I explained how it is for me and how it has been in the past for me. However, how it is or was for me is probably very different from other Aspies. So this poses a good question. How does it feel to be a Aspie?
My 7 year old daughter was diagnosed in November, I then figured out that I am as well. My life suddenly makes so much sense. For both of us it's hard to be in noise, if we are we cannot stay still. We cannot focus. We cannot focus on 1 person speaking, everything it just well, crazy. As a student, we both get overwhelmed with perfection anxiety. The obsessive need to know that it is all done correctly, but there is a chance that it's NOT!! Escape, avoid, escape, avoid!! And that's all happening while there are 25 other sets of eyes on you, with each of those bodies comes a set of their own annoying sounds. I was often told to leave and sit in the hall. My daughter resorts to screaming uncontrollably while hiding under her desk. Home is the safe place, we can suck our thumbs, talk about animals, talk to the pets, and even be the pets if that's what we decide we want to escape into for fun. Once there are plans it's this constant doom, for me it sounds like a million thoughts rattling in my head. "OK WE ALL HAVE TO BE READY, LOOK NORMAL, MAKE SURE WE DON'T SMELL, DRESS APPROPRIATE FOR THE WEATHER, IS IT SUNNY? I NEED SUNBLOCK, OH SUNGLASSES OR MY EYES ARE GOING TO HURT, OH HER SUNGLASSES SO SHE DOESN'T HAVE A MELTDOWN THE SECOND WE WALK OUT THE DOOR......I HAVE TO GET HER READY. UGH SHE'S GOING TO MELTDOWN AND WE'RE ALL GOING TO MELT DOWN, PACK THIS BAG WITH EVERY IMAGINABLE THING I MAY NEED IN THAT WORLD OUTSIDE MY DOOR. I CAN'T DO THIS." This is not fun for either of us because in her head she hears- "WHERE ARE WE GOING?! HOW MANY PEOPLE WILL BE THERE, WILL THERE BE SCARY SOUNDS IN THEIR BATHROOM? THE LOUD TOILETS ARE ACTUALLY TRYING TO EAT ME. IS THERE GUM IN THE CAR, I HOPE DADDY DIDN'T FORGET THAT I LIKE TO CHEW GUM IN THE CAR!!! MOMMY WANTS ME TO PUT SOCKS ON, I HATE SOCKS, AHHHHH THEY NEVER FEEEEEL RIGHT!!! THESTRINGS THEY NEVER FEEL RIGHT! WHY DOES EVERYONE WANT TO TORTURE ME? NOW SHOES? I CAN'T FIND MY SHOES!! IT'S TOO HARD I JUST CAN'T DO IT! I NEED MY BUNNY, THERE IT IS!" she will follow that by sucking her thumb, rubbing bunny on her nose and letting her eyes roll back. As for me, I'm jealous of her for being able to sensory regulate because the hell she just raised is enough to put both of us into the nut house. Now I need to go put on my pretty blue trench coat, as to not be made out by the world of NTS who will judge me for my daughters behavoir. My cloak of chameleon, 1000s of makeup and fashion videos on YouTube, and constantly telling myself to breath normal, speak normal, and not sit with knees to my chest, later and I pass as socially acceptable. If only they knew that their constant clicking of the pen is driving me insane. If they only knew that I am home all the time, don't drive, and suck my thumb at 32. If they only knew that the little girl eating rocksalt off the ground was once the very person they are talking to so normally. By the end of it all I just want to be home, back into my self education, aspiecentral, pinterest, with messy hair, no makeup, and the same clothes for 3 days. That's how it feels to us.