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Help Understanding Severe Autism

Pariah Dog

Well-Known Member
I occasionally read posts around here that mention severely autistic family members and such. People who are non verbal, can not perform basic functions like show any understanding of numbers for example. Individuals completely unable to take care of themselves without help...

Where I lose the plot is, I don't understand the difference between these types of conditions and what I would think of mental retardation, in the classical sense of having very limited intelligence. A severe autistic would have to demonstrate that their intelligence is not impacted I would have to imagine? How can a person tell if the individual can not communicate or really show anything much in the way of development?

I am often bothered when people think of aspies or autistics as "retarded." However when we are talking about really severe cases I have to say I really don't grasp it.
 
Hi there. I watched some youtube videos on the severe form of autism and found it very interesting. This one girl, who could not speak and other issues, found that she could use a computer and became so good that at last, she could communicate with her family and they attend to her needs.

Those who are completely retarded ( what a horrible word):( usually have very active brains.

What comes across so often, that when one sense goes, another one takes over. So a blind person finds that their hearing gets super tuned and a deaf person eye sight is extra bright. Of course, if one is both, pretty sure there is something that they can acheive.

Blame "professionals" for lumping aspergers in the same context as autism. Aspergers was discovered, because a group of children had SIMILAR traits; but that was all and thus, named after the man who discovered this, as is the case all the time. It is stupid supposed professionals, who turn things around and I bet it is because it makes their work harder and they do not want that.

One lady said to me: it is a shame that aspies are not given more credit, because you actually, know more about aspergers than those who claim to know, since you get obsessed with finding out all you can and she is absolutely spot on! But the problem is that "professionals" want a puppet in front of them; not some one who can tell them their job and thus it takes a lot of discipline to keep quiet.

I am waiting for a psychiatrist appointment and intend to go to get a professional diagnosis of social anxiety. Now, if the therapist is a good one, they will determine aspergers, but I cannot cope with going in and they slamming me that I have not got aspergers. I have had to cope with blind stupidity from "professionals" and so have to be very careful this time around.
 
I also carry this confusion... This is never to demean a person with severe "autism," but in the area I live in most people here that word "Autism," and often say some really horrible stuff... Some of that horrible stuff has been said towards me, even in some medical settings. I have been made to feel less than others, when in fact I could probably diagnose them with (GAS) General A** hole Syndrome and not even come close to disclosing the monsters they truly are... Sorry I'm still in my horsey mood, but it will go away soon... : )
 
It might be helpful to think of the analogy of a computer:

A computer has a main processor, one for video, one for sound, etc. It also has circuit paths that carry information between these processors and the speakers, screen, and whatever else.

A person of low IQ ("retarded", though I loathe that word), has a main processor that isn't as powerful though their other processors function and the circuits are connected correctly.

A person with severe autism has circuit paths that are NOT laid out correctly, so no matter how powerful the processors, they don't get the inputs and outputs to the correct places.
 
@Chance can I be so bold as to ask what does horsey mood mean ?I've never heard of it before ,couldn't find it on Google -thanks:)

It just means I'm in a funk... I'm sort of on the edge of being a jack ass...and don't even know why???
Blunt but being honest... : )

Confession: I'm on my meds and they make me feel like crap, but they keep me from shutting down so much when I have something tough to deal with... They give me this I don't give a poop attitude and I do not like it, because that is not the real me... I hate meds. I hate having to take them at times.
 
I'm sure somewhere there's a chart that explains it; @tree probably has a line on one since she's our go to person for answers. Nevertheless, this is something I've often wondered about. I can grasp the concept of Autism being a spectrum. I view it as points on a line with each of us sitting on one of those points. Some of us are gathered together on one point, whereas others on another; yet we're all still on the same line. What I'd like to know is where exactly is my point on the line in comparison to others?

See I struggle with it horribly... really horribly??? I only see this vast spectrum of confusion.
 
It just means I'm in a funk... I'm sort of on the edge of being a jack ass...and don't even know why???
Blunt but being honest... : )

Confession: I'm on my meds and they make me feel like crap, but they keep me from shutting down so much when I have something tough to deal with... They give me this I don't give a poop attitude and I do not like it, because that is not the real me... I hate meds. I hate having to take them at times.
Could you get a low-dose of your medicine ,it's the one thing about the SSRI I take you barely know it was doing anything !but it is a mild SSRI.
That's what got me into trouble I stopped taking mine too quickly and it was bad ,never done that again.
 
Both my brothers are severely autistic and as adults in their 40s they still can't count to 5, they also have no understanding of money and can't do most things one would expect from a "normal" adult, sadly they will need 24/7 care for the rest of their lives. They are most definitely autistic as they both have very strong autistic traits that are extremely obvious and they were also originally diagnosed as autistic by the highest UK expert in the field in the 1970s who is Professor Michael Rutter (now Sir Michael Llewellyn Rutter as he was later knighted for his work with autistic children). I was also diagnosed autistic, although unlike them I started showing signs of improvement as I grew up and am now classed as higher functioning, I can now read + write and do many things a "normal" person can, but I have still kept many autistic traits many of which are also seen in my brothers to a greater degree.

Even though my brothers can't do many things a "normal" person can, they still have special interests and obsessions, for instance David is exceptionally good at drawing and can spend all day doing it. He can talk, although his voice is immediately different and he is difficult to understand by people who don't know him and are used to his voice. David often gets very "worked up" and obsesses over many things to the extreme and what many would consider as a small thing can upset him for ages, both my brothers are still cared for by my now elderly parents and they have always found it difficult to keep them calm. David can repeat and go on alarming over something for hours or even days, this could be triggered by something as small as myself visiting them on a different day to the usual day so my parents are very careful when I visit. Both my brothers are extremely vulnerable (I am to a lessor degree), for instance if David was approached by someone and asked to hand over his bike (yes he can actually ride, although only on the pavement as he isn't capable of understanding the rules of the road), he will just do it and this has actually happened in the past, he also used to have things stolen at school (yes even at a special needs school). David can talk to people he knows better, but to strangers he almost closes down to a muted state and if pushed he will then talk in a very deep voice while looking at the floor, he will only say short things to strangers like "yes", "no" or "don't know". David paces and often can't stay still (I am the same), but he goes one stage further and often makes hooting sounds while shaking his hands, something which is obviously not socially acceptable to people who don't understand.

Once they tried to teach David to catch a bus to a day centre, after weeks of training going on supervised journeys, they finally tried to let him travel alone, unfortunately it was a total disaster. It worked for a couple of days, then David didn't turn up at the day centre and was found at the bus stop having a severe melt down (he will scream and bite his finger), after an investigation it was discovered that he'd walked onto the bus showing his pass as he was trained to do, but the driver called him back wanting to look at his pass again as he'd flashed it too quickly for him to read, David was then very stressed and confused as this wasn't exactly the same routine as his training and he apparently got very "worked up" and left the bus screaming and biting his finger. On another occasion his bus didn't turn up and he didn't know how to use other buses going to the same location as he didn't truly recognise the numbers on the bus (he could only recognise the one as an image). After a while he started having a melt down at the bus stop and was brought home by the police after a concerned citizen called them (luckily the police understood). It was soon realised that this just wasn't going to work as he was unable to improvise if anything changed even slightly out of routine, also he was considered far too vulnerable alone.

Regarding development, well my brothers and I where all very slow with developing language as very young children, I for instance wasn't fully understood by everyone except my parents until I was 7 and my voice is still considered different even at 48 years of age. By around 1 year old we hadn't started saying anything but gibberish and noises, while most children at that age would be saying their first words like "mummy" for instance, this was still the same even at 2 years old when most children would be putting together simple sentences. Before I could even fully talk properly however I was putting together electronic circuits as a very young child and I was also very good at chess (to me I sounded like I could talk normally, then my parents played back a cassette recording of my voice which I didn't believe was me as I couldn't understand it). At 10 years old when I was introduced to computers (the Commodore Pet in 1979) I was very soon writing complex programs. My brothers never made a recovery like I did, but they are still intelligent in some ways while very "backward" in others, you could say that as adults they have a mental age of a very young child, but in some ways they're nothing like children and they're just different.
 
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It would be better to think of the spectrum as a 3 dimensional plane than a line.

Like this:

Where the planes of the 3D space represent the abilities of the brain and the plane would represent the particular configuration of the individual.
 
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I occasionally read posts around here that mention severely autistic family members and such. People who are non verbal, can not perform basic functions like show any understanding of numbers for example. Individuals completely unable to take care of themselves without help...

Where I lose the plot is, I don't understand the difference between these types of conditions and what I would think of mental retardation, in the classical sense of having very limited intelligence. A severe autistic would have to demonstrate that their intelligence is not impacted I would have to imagine? How can a person tell if the individual can not communicate or really show anything much in the way of development?

I am often bothered when people think of aspies or autistics as "retarded." However when we are talking about really severe cases I have to say I really don't grasp it.

For our five year old son Dylan, he is a "unique" case of Autism. Although he is nonverbal other than an occasional very rare word, number or letter, he mostly makes other sounds, like parts of words in an occasional attempt at such communication. And he cannot follow any direction but is in a zone to do what he wants and when he wants. He has both Autistic routine needs or else meltdowns occur, and severe sensory sensitivities and he also has severe hyperactive issues.

But, Dylan can understand much we feel, as seen how he navigates his IPad and performs tasks there, and he has problem solving abilities as seen there and in things around the home. And he does not look or act to have any condition from the surface, in terms of facial features, or unique mannerisms, other than a rare hand flapping or spinning himself. He has a normal range of expressing emotions, like crying for sadness, screeching and grimace expressions for frustration or anger, and giggling and laughing for happiness and silliness.

If anything Dylan seems less rigid and serious, and less quirky and more expressive in other ways, and looks less Autistic in terms of mannerisms, posture and how he expresses, than his high functioning Autistic brother Aaron, who is eight years old and can do everything at high level, but with Aaron having severer routine issues and some Autistic quirks.. But, Dylan is very delayed in terms of those other mentioned things in terms of verbal communication, following any directions, and doing any task for himself. We have to do everything for him, otherwise his personal needs will not get done.

So, we do not believe Dylan has "severe" Autism, as we have seen very low functioning Autistic children whereby they may seem more mentally challenged, with severer delays, have many delayed classic or fragile x features or have severe other limitations or behavioral issues, but instead he is a happy go lucky and carefree kid. If someone saw Dylan they would just think he was a one and a half year old instead of five, as he looks very small and young, but not different otherwise. In no way did supposed numerous medical professionals even pick up on the Autism, even after we parents told them we suspected it despite all the mentioned, from our minute-by-minute analysis.

It was only after Dylan turned age four after we showed several video clips to an Autism medical specialist of him hand flapping in the wind, keep running off without stopping, spinning himself, lining up and inspecting parts of things, covering his ears for slight sounds, etc. did that new doctor diagnose Autism, and after he observed Dylan refusing to get out of his stroller because of the new environment, and unable to follow any of his directions. Instead, Dylan just was in a zone to navigate quickly his IPad, often repetitively going back to the same program. He did show good memory and cognitive skills on those app programs.
 
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@Chance can I be so bold as to ask what does horsey mood mean ?I've never heard of it before ,couldn't find it on Google -thanks:)

Maybe this will help... Have you ever heard someone say, "Get of your high horse!" In Texas it just means sort of being snarky, uncaring, rude, crude, unacceptable... Not a good mood to be in, but being honest enough to confess it and want to get past it... Thats a good thing. : )
 
Many people who cannot communicate are considered "retarded". Even kids who cannot speak. They may be memorizing Pi in their little heads,but they are thought of as retarded by some dr or family members. If you think back to what people had to endure in the past who had ASD, you would cry. We are so lucky to be alive at this time...........
 
Many people who cannot communicate are considered "retarded". Even kids who cannot speak. They may be memorizing Pi in their little heads,but they are thought of as retarded by some dr or family members. If you think back to what people had to endure in the past who had ASD, you would cry. We are so lucky to be alive at this time...........
I agree, I wrote a reply on another thread about how many aspies would have ended up in awful asylums like Bedlam hundreds of years ago as they would have been considered "mad", and how even in the earlier 20th century they could have been institutionalised and given damaging treatment such as Electroshock Therapy (which worryingly is still occasionally used for who they consider mentally ill even today, it is now called Electroconvulsive therapy or ECT). I also referred to how aspies would have faced a lot of prejudice throughout history, one of the worst would have been during the Nazi uprising (many so called "handicapped" were murdered as well as the Jews as they didn't fit the profile for the master race). Finally I wrote about the difficulties aspies would have faced when no allowances were made when they used to be called up for mandatory national service. These are just a few examples.

Things are mostly better these days, although I think there's still quite a way to go for aspies to be fully understood and accepted and in some countries it must still be very difficult to survive as an aspie.
 
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