TinyTownFamily
Member
My son has Autism, he is non-verbal, has a very narrow diet, and he will be 7 soon and has been in 40-ish hours of therapy spread over 6 days and two counties per week since he was 2.5 years old. He now attends some school with about 20 other students, including two that are hearing impaired, and he has a dedicated aide to help him through the day. School is going well.
This has been a very successful 6-months for him as he has finally expanded his diet beyond Cheerios and apple juice, he became day-time potty trained, has started to mimic, and he will attempt to say some words when asked, although he has a long way to go before he would be understood by an un-associated person.
We have recently lost his Medicaid and SSI, so he hasn't received those services since December. I sat in on hundreds of hours of therapy so I am trying to do what I can to help him. We have just gotten a few hours a week of therapy through insurance, but it is very expensive and we probably won't be able to sustain it, especially since SSI says that they want $6,000 back because they believe they overpaid for services in previous years.
It is so frustrating! As if we don't have enough on our plate, we have to deal with these SSI problems, sigh. I struggle with the frustration getting me down, but as we are now about 6-weeks out from that shock, it is getting better.
As we explore more options, we decided to post some videos online of him from years ago to test the waters to see if we could garner a little income from that to help us through this. I am not sure if that will be successful, but it is easy to do while I work on other options.
As I have more time currently because I am not spending a full-work-week taking him to all of his therapy, I have been researching what I can to try and help me to help him become the best version of himself that he can be. I am very encouraged with his recent progress...that he may be able to become self-sufficient some day. I so worry about what will happen to him after I am gone, it is very scary, he is such a sweet little pea!
He has had so made much progress in the last 6-months and I am really hoping that the loss of services don't cause a regression. He has had a great deal of difficulty dealing with the schedule changes, it is a real struggle dealing with the changes, but he hasn't lost any ground yet with the important progress that he has recently made. Fingers crossed!
That is my introduction, thank you for reading! I am excited to explore the forums to try and learn more! Have a nice day!
This has been a very successful 6-months for him as he has finally expanded his diet beyond Cheerios and apple juice, he became day-time potty trained, has started to mimic, and he will attempt to say some words when asked, although he has a long way to go before he would be understood by an un-associated person.
We have recently lost his Medicaid and SSI, so he hasn't received those services since December. I sat in on hundreds of hours of therapy so I am trying to do what I can to help him. We have just gotten a few hours a week of therapy through insurance, but it is very expensive and we probably won't be able to sustain it, especially since SSI says that they want $6,000 back because they believe they overpaid for services in previous years.
It is so frustrating! As if we don't have enough on our plate, we have to deal with these SSI problems, sigh. I struggle with the frustration getting me down, but as we are now about 6-weeks out from that shock, it is getting better.
As we explore more options, we decided to post some videos online of him from years ago to test the waters to see if we could garner a little income from that to help us through this. I am not sure if that will be successful, but it is easy to do while I work on other options.
As I have more time currently because I am not spending a full-work-week taking him to all of his therapy, I have been researching what I can to try and help me to help him become the best version of himself that he can be. I am very encouraged with his recent progress...that he may be able to become self-sufficient some day. I so worry about what will happen to him after I am gone, it is very scary, he is such a sweet little pea!
He has had so made much progress in the last 6-months and I am really hoping that the loss of services don't cause a regression. He has had a great deal of difficulty dealing with the schedule changes, it is a real struggle dealing with the changes, but he hasn't lost any ground yet with the important progress that he has recently made. Fingers crossed!
That is my introduction, thank you for reading! I am excited to explore the forums to try and learn more! Have a nice day!