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For those diagnosed late

142857

Well-Known Member
V.I.P Member
A few of us were diagnosed late. Or never diagnosed at all, like myself, but came to the conclusion that we have AS/HFA fairly late.

I was wondering what you thought was wrong with you, why you thought you were "different" and didn't fit in.

I had measles encephalitis as a very young child and I still have the St Jude medal that my grandmother bought for me (patron saint of lost causes). It was a serious condition in the late 60s and most didn't survive it. I got absolutely hammered with antibiotics (tetracycline mainly), to the extent that my teeth looked horrific and several dentists told me that I had the worst staining they had ever seen. So I thought that perhaps this had affected me somehow. My father was abusive and borderline insane, although he could also appear almost charming and almost in control when he wanted to. My 2 siblings who don't show any signs of being on the spectrum, plus my brother who I am 99% sure is an Aspie, have all suffered depression and adjustment issues because of our childhood, and none of them reached anything like their real potential (all are in the 99th percentile for intelligence, all are smarter than me. My sister is an admin assistant, one brother is a builder's labourer/ex taxi driver, the other brother has never had a job). So I thought that was another factor. The clumsiness and lack of coordination I attributed to my height (around 2 metres / 6'6") and maybe having big feet (US size 14), although I knew other guys around my height who were far better coordinated than me.

I remember when I was in my late teens/early 20s watching a TV show about kids with autism. It struck me that they were a lot like I remembered myself as a kid. I asked my mum about it and she was very adamant that there was NO WAY that I had even mild autism. I don't know why I let it go so easy. My mother worked as a psychiatric nurse in the 1950s in Sydney's most infamous mental asylum, so you can imagine the sort of negative feelings she had about any sort of psychiatric or neurological condition.
 
When I was a kid I didn't have a clue,It felt like i was watching a wraparound tv,I witnessed the world

about me but I wasn't part of it,I was just observing.

Mom and dad were ok,Mom was a bit bipolar and Dad didn't say much, i suspect he was an aspie as well.

I had no friends at all,I could go thru an entire grade level without speaking to another child.

I really must have been different,several teachers said that I didn't belong with the normal kids,

I heard that again and again until I graduated.

Being ignored and disliked became normal for me but i did make friends with other outsiders

in junior high and high school,most of which also had mental or social disorders of some type.

People made no sense to me,still don't a lot of the time but age has lessened the impact that asperger's

has on my life.

I have never been diagnosed, but people who know me well have all said that when they learned about asperger's

I was the first person that came to mind.

Two years ago I learned of it myself and my life finally made some sense,strangely,the people around me had figured

it out long before I did.

That's when they would suddenly dissapear from my life.Thanks for letting me know you jerks!

Enough about how rough I've had it,life is no picnic for anybody. Things are good these days, I got family

children and grandchildren(thanks to my brothers actually but hey,I raised 'em too!) and all the gang

at the Karate School,so I guess things turned out ok.
 
Well, I suspect my mom of either AS or HFA. My dad I strongly suspect to be bipolar. None of this I really realized until long after my diagnosis around the age of 16/17.
According to my mom, my dad was a tad abusive without really knowing it when it came to punishments (carrying someone by the hair...really? I asked him about it when it came to mind and I was a young adult, and his logic was that it doesn't hurt the child. I informed him that he was dead wrong, and he looked a good mix of embarrassed and ashamed.) and reactionary temper (though not extensive). When I was about 8 my parents split, which resulted in probably a 6-9 month custody battle...that sucked.
After that, I was put on some fairly heavy medication for a few years that really did no good. After I insisted mom switch to a doctor that didn't insist that medication was the answer to everything, I was gradually taken off meds. All this during school didn't help either.

Anyway, that's all in the past. Took long enough, though. <_<
 
I always just thought I was shy. It's weird, I didn't think anything was wrong at all until year 7/first year of secondary/11 years old (for people outside the UK :P ). My confidence just seemed to hit the floor and I became sort of desperate to try and make friends. Didn't work. Well, it did, but I think it was all a big joke to them.

tldr; I thought I was just really shy... I guess I am to an extent, but I didn't know why.
 
I was shy too and struggled making friends. My entire social circle(consisting of two people :D) was dependent on the guy involved and when me and him fell out as such me and the other friend drifted away. I made friends with these 8 girls. Probably around 4 were SEN pupils. But got bored. By Year 9 I didn't want any friends(but regardless, ended up stuck with a few people sitting with me every lunch time for a month >_<).
In Primary school my Mum told me other people struggled equally making friends(I basically only had 1 or 2 friends the entire way through Primary school and didn't get along in big groups) so I just assumed everyone else felt the same. I also assumed everyone else thought the entire class hated them, rofl. TBH, when I was in Primary school I didn't really compare myself to others that much, I only really thought about how I felt, and I suppose due the lack of regard, subconsciously assumed that's what everyone else felt the same.
I don't know if that's poor ToM. IMO it's sort of like juvenile(by juvenile I literally mean 3 year old level) solipsism syndrome... not read up on that disorder for a while.
Now I have the opposite problem and think no one could relate with me.
EMZ=]
 
I always wondered why I was different and what was wrong with me.
I moved from "just to smart for them" to
anti-social personality disorder to
Attention disorder to
finally just giving up.

Then I was diagnosed.

Still not sure I shouldn't just give up though.
 
I was diagnosed at 21, just this week. I have spent my ENTIRE life wondering, "what is WRONG with me?" I remember being in PRE SCHOOL and asking the other kids if I could play too and they'd say I was too weird-- what does weird even mean when youre 3 years old? I've never been able to understand. I figured people just thought I was stupid. I've never been shy, I almost wish I was, then maybe I would have protected mysel from the constant onslaught of rejection.

Now that I know what it is I don't know if I feel better or what. I am relieved to know what it is, but now I know it's not something I can fix. :\
 
It sucks you've gone so long without knowing, Ruby. :( I'm in the same boat with 4 years less on the price tag.
 
Well, I found out when I was about 15/16. If I had of known earlier then maybe things wouldn't be in such a mess right now. Having said that though, it's better late than never.
 
Very true. Although, to be honest. Nothing has changed in my life since finding out, other than understanding my past a little better. I've made no special attempt to 'help' myself'. I don't see how I can. I'm happy enough and get help with situations when I need it. What more do i need? :)
 
I'm 20 now

I had no idea what it was until a few months ago, and neither did anyone else which is the scary thing,

regardless of the brain scan I had when I was 5 or 6 which apparently showed that I had "abnormalities".

or rather "a bit autistic" when I asked my mum a few weeks ago. My parents still don't understand it.
 
Imagine not finding out until you're 33, then! Sorry, I do sympathise. I just didn't know what was 'wrong' with me. Not that, finally, getting a diagnosis seems to have helped, yet. There's still supposed to be things we can do, to improve our social skills, etc!
 
I didnt really tell there were anything wrong to be honest but i were diagnosed late because there were trouble of seeing my behaviours of what they were. I know when i lived in one area they thought i were an attention seeker and also i were delayed in my speech at a very young age. The reason they declined an diagnosis of aspergers is cos of my delays in my speech at a young age and also at age 13 were trying to find the right diagnosis fitting my criteria it turned out with a diagnosis of autism and learning disabilities .
 
Congratulations! Not sure what the winner will get, though.

Bruce, as a slightly older Aspie like myself (not that 33 is old, but it is significantly older than a lot of the embryos on this forum) do you feel that your traits have become less severe over time? Do you get along better with people now than you did 5, 10 or 15 years ago? If you have other issues (OCD, ADD, sensory issues etc) have these diminished with time?
 
Fortunately, I don't have the other issues. Well, GP wouldn't diagnose me as hyperactive, when I was a child, so I may have a bit of that. Don't know about Aspie traits, really. Whether they've decreased or I deal with the problematic ones better is debateable! It doesn't seem like much improvement, to me! Got a couple of Aspie friends, in real life, which is some improvement. Chris, you're obsessed with pie! 3.14159265359...!
 

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