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Exhaustion

Jenisautistic

Jenisautistic

Well-Known Member
V.I.P Member
Life goes so fast yet it’s so Tiring. Especially for autistic people.

I feel like life is going past me. While there are still a lot of things I need to do and haven’t done or want to do.

Also, I feel like I can never relax even for a second. It’s always something I need to do or something I need to do in the future.

My muscles also get really tight and I can barely move sometimes when that happens.

Unrelated, but also all my memory is very bad.

I have trouble with writing reading processing anything.

I tried to read. I tried to write. I tried to relax about my lack of ability to do most things and I am trying to take it one step at a time to improve.

My psychiatrist does not want to change my medicine


He said it’s been working so well with the medicine. I’m on now. And he doesn’t want anything to happen I guess.


My new PCP says I have an iron issue something with my iron reserve stores are low, low ferritin
. Which could be behind some of his exhaustion, but I never thought it would be causing something this bad.

Just a note my life is not exceptionally bad it’s just all this is loading me down a bit
 
Sorry to hear that you're struggling, Jen :(

I can relate. I find that I tend to take on too much and tire myself out, and I also feel like my life is going by too fast. I remember being 16, 18, 20 years old like it was yesterday, and I'm turning 32 this year!
Time goes by way too fast in adulthood.

I hope you get some rest, get some treatment for your low iron and start feeling better soon.
 
Anemia , has said to cause that tired feeling . Thought for myself to be deeply involved in my healthcare .So when Doctors tell me to take some med or the other . Since I have access to the internet . I take time to research adverse effects of any reccomended medicine . And then try to find a food or supplement that may have the more positive effects ,similiar to the medicine that was reccomended . Thanks to the Net.
But thats just me . But If I feel well enough, sometimes ,I try alittle bit of coffee for a pick up sometimes. Have been told that tiny amounts of nootropics helps energy and memory.
Russian Cosmonauts use them too. I have read , had tried some too. Seem to work for me.
Hope you feel better soon , have enjoyed your utube broadcasts in the past Jenni..
Thank You
 
Jenisautistic said:
Life goes so fast yet it’s so Tiring. Especially for autistic people.

I feel like life is going past me. While there are still a lot of things I need to do and haven’t done or want to do.

Also, I feel like I can never relax even for a second. It’s always something I need to do or something I need to do in the future.

My muscles also get really tight and I can barely move sometimes when that happens.

Unrelated, but also all my memory is very bad.

I have trouble with writing reading processing anything.

I tried to read. I tried to write. I tried to relax about my lack of ability to do most things and I am trying to take it one step at a time to improve.

My psychiatrist does not want to change my medicine


He said it’s been working so well with the medicine. I’m on now. And he doesn’t want anything to happen I guess.


My new PCP says I have an iron issue something with my iron reserve stores are low, low ferritin
. Which could be behind some of his exhaustion, but I never thought it would be causing something this bad.

Just a note my life is not exceptionally bad it’s just all this is loading me down a bit
Click to expand...
You have been carrying a heavy load for years, and now it is even heavier. I would take some of that load if I could, and I'm sure everyone here would take some as well. You are one of our success stories, even if you don't feel it.

They say adversity makes you stronger, but it also makes you so damn tired. Don't destroy yourself trying to do everything. It sounds like help is available for you, don't be too proud to accept it. Slow down once in a while and enjoy life.
 
@Jenisautistic - Anemia will definitely make you feel tired all the time. The doctor may prescribe iron tablets for you. You also can increase your iron consumption by eating dark green leafy vegetables and red meats like beef and liver. I'm not a fan of liver but I sometimes cook calves' liver for a friend who loves it and who is chronically anemic.
 
There are two types of iron in your blood. There’s the iron that is freely running around in your blood, which is usually tested for.

Then there is ferritin, the stored iron. For reasons I don’t understand low Ferritin affects energy. Often it is not checked for. Normal ranges are 10 to 220 ng/ml, which is a very wide range. It has been suggested that the lower levels are not really enough.

If it were I, I would gladly take that ferritin test.
 
I can relate to time feeling l like it's going by faster than we can keep up. I've lately felt like minutes are passing in seconds and hours are passing in minutes. Or close to it. Especially on days where things are particularly busy.
 
Shamar said:
You have been carrying a heavy load for years, and now it is even heavier. I would take some of that load if I could, and I'm sure everyone here would take some as well. You are one of our success stories, even if you don't feel it.

They say adversity makes you stronger, but it also makes you so damn tired. Don't destroy yourself trying to do everything. It sounds like help is available for you, don't be too proud to accept it. Slow down once in a while and enjoy life.
Click to expand...
I appreciate that
 
WhitewaterWoman said:
There are two types of iron in your blood. There’s the iron that is freely running around in your blood, which is usually tested for.

Then there is ferritin, the stored iron. For reasons I don’t understand low Ferritin affects energy. Often it is not checked for. Normal ranges are 10 to 220 ng/ml, which is a very wide range. It has been suggested that the lower levels are not really enough.

If it were I, I would gladly take that ferritin test.
Click to expand...
Yes I have had that test

That’s actually how they found out.

They’re telling me to eat red meat like once a week. And dark green lettuce, beats and nuts too.
 
Jenisautistic said:
Yes I have had that test

That’s actually how they found out.

They’re telling me to eat red meat like once a week. And dark green lettuce, beats and nuts too.
Click to expand...
If your ferritin is low, you should be getting supplements, not just red meat once a week. Ask what your ferritin level is and then research it yourself on the internet.
 
Jenisautistic said:
Life goes so fast yet it’s so Tiring. Especially for autistic people.

I feel like life is going past me. While there are still a lot of things I need to do and haven’t done or want to do.

Also, I feel like I can never relax even for a second. It’s always something I need to do or something I need to do in the future.

My muscles also get really tight and I can barely move sometimes when that happens.

Unrelated, but also all my memory is very bad.

I have trouble with writing reading processing anything.

I tried to read. I tried to write. I tried to relax about my lack of ability to do most things and I am trying to take it one step at a time to improve.

My psychiatrist does not want to change my medicine


He said it’s been working so well with the medicine. I’m on now. And he doesn’t want anything to happen I guess.


My new PCP says I have an iron issue something with my iron reserve stores are low, low ferritin
. Which could be behind some of his exhaustion, but I never thought it would be causing something this bad.

Just a note my life is not exceptionally bad it’s just all this is loading me down a bit
Click to expand...
Yeah, this has been a problem for me too. I think it's called executive dysfunction. Like when something is due, my brain is like: "DO IT! DO IT! YOU HAVE TO DO IT!" And my body just refuses to move. I sometimes do that when i'm hungry too

With the memory thing, I relate to that very well. I can't even remember yesterday, or forget that on the weekends I went out with my friends. It kinda makes me feel disassociated like i'm not anchored to this world sometimes. I really wish I could control time. I would make go 2x slower than it usually is. I wish I could slow down time.
 
Thanks for sharing this. I always get so much out of your description of your experiences. They help me feel less alone because I relate so much to what you have to say....especially about the exhaustion and dietary things. My thought would be to remember that things have a tendency to get better if I am open to it.
 
RemyZee said:
Thanks for sharing this. I always get so much out of your description of your experiences. They help me feel less alone because I relate so much to what you have to say....especially about the exhaustion and dietary things. My thought would be to remember that things have a tendency to get better if I am open to it.
Click to expand...


You’re welcome. It’s always good to hear advice and shared experiences as well.
 
Jenisautistic said:
I will do further research, although I forgot to mention I also take vitamin b 12
Click to expand...
Most people can absorb vitamin B12 by taking pills. But some people can’t. They have to get their B12 by once a month injections.

So, if your next blood tests don’t show an increase in your B12 talk to your health care provider about getting injections.
 
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