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Dystonia and ASD

I had my appointment. The whole experience was nerve wracking to say the least. The appointment journey I always struggle with. It is 2 hours to get there, but I am grateful to be able to get patient transport. They arrived though late and I got to my appointment 30 minutes late. My overwhelming kicked in before depature but we did our best in the car. The video from yesterday I showed my consultant. The good or bad thing eh work it out my foot was shaking through my trainers so why even take them off. So frustrating. The unsettled journey and panic wasn't helpful. I am going to be referred for an MRI for my spine and my consultant will write to my GP trying to get me on a low dose medication for the 3 years of movement untreated. I gave the reasoning why. Less is best so no nerve conduction this time. 1st time it was so bad for my nerves ??? shakes head. But I am trying to relax. That's an update and only time will tell with the MRI perhaps some answers. I am in the hospital lounge now waiting to be returned home. Free tea and coffee++.
 
Last edited:
Rachie said:
I had my appointment. The whole experience was nerve wracking to say the least. The appointment journey I always struggle with. It is 2 hours to get there, but I am grateful to be able to get patient transport. They arrived though late and I got to my appointment 30 minutes late. My overwhelming kicked in before depature but we did our best in the car. The video from yesterday I showed my consultant. The good or bad thing eh work it out my foot was shaking through my trainers so why even take them off. So frustrating. The unsettled journey and panic wasn't helpful. I am going to be referred for an MRI for my spine and my consultant will write to my GP trying to get me on a low dose medication for the 3 years of movement untreated. I gave the reasoning why. Less is best so no nerve conduction this time. 1st time it was so bad for my nerves ??? shakes head. But I am trying to relax. That's an update and only time will tell with the MRI perhaps some answers. I am in the hospital lounge now waiting to be returned home. Free tea and coffee++.
Click to expand...
Probably want to check out if its the same toes and any other issue, fingercrossing for the MRI scan.
 
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