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Do you like being autistic?

Do you like being autistic?

  • Love it. There are no disadvantages.

    Votes: 0 0.0%
  • Love it. The benefits outweigh the disadvantages.

    Votes: 8 23.5%
  • Like it.

    Votes: 4 11.8%
  • Not sure/Neutral.

    Votes: 13 38.2%
  • Dislike it.

    Votes: 0 0.0%
  • Hate it. The disadvantages outweigh the benefits.

    Votes: 6 17.6%
  • Hate it. There are no benefits.

    Votes: 1 2.9%
  • I'm not autistic.

    Votes: 2 5.9%

  • Total voters
    34
I just came across the most counterintuitive statistic. Being completely blind or paraplegic looks a hell of a lot more depressing than what we go through, right?
Not to me, no...I can't assume about people's lives or inner experiences just because they are blind or paraplegic -- especially if they were born blind or paraplegic.

I can't even assume any other autistic person's life is anything like mine...there is so
much variety in autism phenotypes (ie outward presentations and inner experiences, symptom clusters, alone -- nevermind all the life experience that interacts with all that) that there are autistics I relate less well to than some NTs.
Turns out, people with those conditions have much lower rates of depression and suicide than those on the spectrum. And those with borderline personality disorder are far more depressed than all the categories above. Hard to believe, but I doubt you can prove me wrong.
It's not hard for me to believe.

Why is it hard for you to believe? (I'm not trying to be abrasive or judgemental here - I am genuinely curious)
 
I voted Hate it. There are no benefits. I would take a cure in an instant. Not one good thing came out of it. Not even intelligent. I got the brain of a 5th grader. The social skills of a toddler. The cure is death.
 
I voted Hate it. There are no benefits. I would take a cure in an instant. Not one good thing came out of it. Not even intelligent. I got the brain of a 5th grader. The social skills of a toddler. The cure is death.
If people treated you with respect...

And wanted to be your friend...

And accepted you just as you are...

Would you still hate it?

If nobody else cared that you have toddler-level social skills, and didn't see that as bad; Would you still see it as bad?

If nobody else thought it was bad to have "the brain of a 5th grader"; Would you still think it was bad?

I am really asking you these things. I am not arguing. You are allowed to feel what you feel. I accept what you have said. I'm just curious about why.

And I will accept whatever you answer - I won't argue against anything you answer.(I will also accept if you don't answer anything.)
 
I just came across the most counterintuitive statistic. Being completely blind or paraplegic looks a hell of a lot more depressing than what we go through, right? Turns out, people with those conditions have much lower rates of depression and suicide than those on the spectrum. And those with borderline personality disorder are far more depressed than all the categories above. Hard to believe, but I doubt you can prove me wrong.
Scattered thoughts to explain my own perspective (in case I came across in some
bad way, wondering about yours - truly I am curious still) -- to share why I cannot assume, and am curious about how one does assume:

Personally, acquired blindness would absolutely destroy me because I rely so so much on visual-spatial processing to do truly everything in my life...but I can't assume the same is true for everyone...

Some people with full 20/20 sight have no images in their minds, ever, and could also theoretically have nonverbal learning disability and be the exact opposite of me in how they think and process the world...so might find it way easier to adapt than I would...

And I would guess (in ignorance, I can't speak for anyone born blind) for many born blind, it's just normal - they must have struggles and challenges sighted people don't have, but I can't assume they would have the same feelings about their normal range of senses lacking sight as I would have about losing sight when it is my most relied-upon sense...

I also remember reading an article as a teenager about someone who had been blind most or all of his life, had an experimental medical procedure restore his sight, and it was really hard for him -- gaining sight was (at first at least) a complete nightmare - it was overwhelming and he couldn't make sense of the visual sensory input....made me think...


Deaf culture also makes me unable to assume that any disability should ever automatically be considered tragic, or be ranked against others in a "good vs bad" or "more vs less acceptable/difficult/[whatever thing]" way...

Every individual life is too complex, every individual mind is too complex, to make such assumptions.... shifting cultural norms and social barriers and prejudice determines a lot about how a disability is experienced...often (not always -- again cannot speak for anyone but me beyond citing very limited second-hand or third-hand knowledge from someone else's words) more than the disability itself does...

A lot goes into whether a life is good or bad, lived in endless pain or filled with profound joy -- and both profound joy and profound suffering can co-exist -- not just one or the other at different times in different contexts but together, simultaneously in overlapping contexts (maybe not for everyone, but certainly for me) ....and perspective and values are shaped by experiences ...why should a life with paraplegia or blindness be automatically worse than a life with autism? (This is not rhetorical, I really don't get it...but I would like to get it...)

I have personally found physical disability to be waaaaaay easier to adapt to and live with than any of my neurodivergence.....

I don't walk well anymore -- Not that many years ago my legs started just..not working right, and it took faceplanting on concrete on crowded train platforms like a toddler taking their first steps and going a little too fast several times when hurrying (not even jogging - something was going very wrong with the messages from brain to legs and this is just one example of the signs) to catch a train or bus before I admitted I needed a cane...then two canes...then:

I ended up with several spinal fractures (those had multiple causes but spinal inflammation seems to be part of it) and two massive knee effusions that have destroyed one of my knees -- all as part of severe systemic inflammation that for long periods before I had any adequate treatment, rendered my legs literally unbendable (as well as bizarrely uncooperative) before I ever even got to see a rheumatologist (turns out i have a spondyloarthropathy among other immune system issues) and after the spinal fractures I couldn’t walk at all for a time and had to use a wheelchair to go just from my bed to my bathroom...which is directly beside my bedroom..,,for a while I thought I would never be able to walk again, and nobody could tell me either way if that was so. This was hard for me, but easier than being autistic....

Eventually I was able to use a walker and today I use crutches, and I am very happy about that but it’s made my life a lot different than when I needed no mobility aids or just a cane. I will probably need the crutches forever. My doctor is pretty sure I have nerve damage in my spine.

I need crutches just to stand up for any significant time, I can only walk without them for short distances in my house and when I have walls to lean on and falling doesn’t matter...I have had to go back to using my wheelchair when the inflammation gets extreme, not even always just because of back pain that can make it truly impossible to walk-- just because one or (usually) both of my legs literally don't bend...
 
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I just came across the most counterintuitive statistic. Being completely blind or paraplegic looks a hell of a lot more depressing than what we go through, right? Turns out, people with those conditions have much lower rates of depression and suicide than those on the spectrum. And those with borderline personality disorder are far more depressed than all the categories above. Hard to believe, but I doubt you can prove me wrong.
(Response cont'd...)

All that mobility stuff I acquired fairly recently in my life and have found to be waaaaaay easier to cope with than all the autism stuff, even though being autistic is just normal for me...I’m used to being autistic, it isn’t inherently painful for me and I don't actually think of it as bad, but I have often wished I wasn't autistic because of how other people treat me -- autism is only painful because of ableism, and prejudice...the social difficulties that come out of being autistic wouldn’t be so painful (maybe just frustrating sometimes) if people were accepting, aware, and not so biased and rejecting and dehumanizing, not so prejudiced and closed minded and cruel.

By contrast to how people judge my autism, people are mostly not very judgy or not-at-all judgy to me about the mobility impairment stuff -- they are mind-bogglingly judgy about all the neurodevelopmental neurocognitive stuff.

(Please note: this is not me arguing autism is worse than mobility impariment or any other impairment/disability -- not for anyone but myself, and not even really for myself because I don't consider it my autism that causes me significant suffering but how people misjudge me and my autism-related traits and differences and challenges that causes me significant suffering)

There are mobility aids, ramps, elevators, accessible transit, there is in most places (not where I live though) home care if you need it for mobility and movement impairments... there is technology.

For autism? Pretty much nothing. Even AAC, people can reject it and insist you speak - it's insane. People resent me (and quite often refuse without citing any reason at all) and judge me as an entitled, self-important, not-sure-what-all-goes-into-this-but-it-makes-me-think-of-people-using-the-disparaging-term-"special snowflake" for simply asking to communicate in writing! People underestimate me constantly, treat me like a toddler, refuse me the basic legal rights I have as an adult human being with full mental capacity to make his own decisions. I am constantly misjudged because of autism things, because of sensory needs, difficulty with speech and uncommon perspective and unusual cognitive processing alone.

I've only had a handful of people judge me and treat me strangely because I was in a wheelchair (and that was down to the thankfully less and less common belief that physical disability always happens with cognitive disability...so really they were being judgy about cognitive disability, not the mobility impairment)....and zero people have judged me and/or treated me strangely because of the crutches.

People are usually respectful and offer appropriate assistance with issues that come up because of my mobility impairments... In contrast: people get mad at me and shame me and shun me and "other" me and treat me like I'm a wilfully bad, awful, worthless, lazy, stupid person for autistic impairments. Or like I'm a vulnerable toddler who needs a stern but gentle non-autistic adult to control my life and make all my choices for me.

One of the most powerful and harmful types of trauma is interpersonal trauma, because human beings are social animals -- highly interdependent emotionally even if not practically (and many of us, also practically); Most humans, autistic or not, want and need connection with others -- and our autism (or more accurately: how we are misjudged because of our autistic differences) often causes others to socially isolate us and mistreat is -- perhaps much more profoundly than any sensory or mobility impairment would...this probably varies from place to place -- from one social context to another. But at least where I live, mobility impairment is far more accepted and accomodated than any kind of neurocognitive/neurodevelopmental difference is.

So...not hard for me to believe at all, about the suicide rate/depression comparisons.

And with Borderline Personality Disorder -- (anyone more knowledgeable than me please correct me on this if I am way wrong) I think that is usually related to severe victimization in childhood/youth and extreme difficulties with emotional regulation and relationships in adulthood that are related to survival behaviours that persist and become maladaptive, all with typical desire for social connection...plus, personality disorders are intensely stigmatized, I would say moreso than Autism is...all very powerful explanations for worse depression than the other disabilities you mentioned.

Again this is just a partial somewhat scattered and rambling explanation of my own perspective....

I also can’t think of a time when I had never met someone in a wheelchair or who needed a walker or a cane for much more than a sore or unstable knee..or who was deaf/Deaf or blind. There are many people of all ability levels and walks of life with paraplegia. My mom took me everywhere when I was a little boy, and knew all kinds of people with all kinds of abilities as acquaintances and friends.

I’ve known lots of people with moderate to severe cerebral palsy (CP) with various issues with mobility and speech -- first person I met in kindergarten. One of the people I knew who had CP was an adult I met as a teenager; He was and probably still is a very successful lawyer. He and I never exactly saw eye to eye on the idea that “The only disability in life is a bad attitude” but I admired his intelligence and shared a lot of values with him, and he was a very kind man - a role model in many ways. I am pretty sure he had quadriplegic cerebral palsy - meaning it affected all of his limbs and made movement of all kinds (including speech) a challenge...he was not depressed as far as I ever knew, although I was quite young and did not know him for a particularly long time, and he may not have shared certain aspects of his life with me...but still: He arguably had and likely still has a much better and happier life than I have ever had and probably ever will have -- even if you exclude my newish mobility impairments from any comparison.)
 
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It's not hard for me to believe.

Why is it hard for you to believe? (I'm not trying to be abrasive or judgemental here - I am genuinely curious)

My list of limitations always seemed trivial and petty when compared to those completely unable to walk or see. If the way other people treat us is the top metric- then yes, autism is much rougher than mobility impairment. You can all boost your charisma scores, find out which mistakes you're unknowingly making, and come off far less weak to others by reading the most useful book ever to me: 48 Laws of Power.
 
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My job vocational consoler said to me, I can't work because of my autism. I knew it from the start. But with all of this "You got this" and "You can do anything" BS normie advice, she finally realized after getting kicked out of multiple groups and volunteered groups I could never work. That is why my psychologist put me down all marks as very poor.
 
I voted "neutral" because I have absolutely no idea what I would be like if I wasn't autistic.

To have an opinion I would need access to a lifetime of experiences I haven't had, and never will have.
 
I just came across the most counterintuitive statistic. Being completely blind or paraplegic looks a hell of a lot more depressing than what we go through, right? Turns out, people with those conditions have much lower rates of depression and suicide than those on the spectrum. And those with borderline personality disorder are far more depressed than all the categories above. Hard to believe, but I doubt you can prove me wrong.
I'm not surprised as happiness primarily comes from good relationships. Therefore, people with conditions that lead to weaker relationships (autism, borderline personality disorder) will likely have higher rates of depression. Blindness is visible and there are communities for the blind, which might help blind people feel more socially connected.
 

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