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Certified "Mentally Disabled" Aspie?

Hadarian

Well-Known Member
I have been officially diagnosed as "mentally retarded" now. I guess the "pc" term is "disabled," but I don't want to mince my words. This is the diagnosis I have to live with now and, while I was quite happy at the prospect of being diagnosed with Asperger's, or even social retardation (because it's actually true), since I got this new label of "mentally disabled," I have been feeling very bad about myself and people who refuse to see me as I really am, not least because throughout my entire life, my family has been communicating, not least in straight words, that I am stupid. Well, now it's official. So every time my brother shouted at me that I was retarded, well... he was right.

Is it common for people on the high-functioning end of the spectrum to get told or diagnosed as mentally disabled? I don't mean mentally ill or suffering from a mental health issue, which is psychological. I mean mentally disabled, like someone whose brain did not develop right and thus has defective brain activity and processing ability.

I have been told that I cannot be evaluated for Asperger's, because I was born with a very rare genetic disorder which, due to circumstances beyond my control (my father), was not properly treated for the necessary amount of time. The result is that it affected my neurological development. Ironically, unfortunately, the symptoms are uncannily similar to the symptoms of Asperger's, so the psychiatrists said they would not be able to tell if I am suffering from Asperger's or my disorder.

My disorder literally hinders the development of the brain in childhood if not treated properly. My treatment ceased at age 3, but should have continued until age 6. I maintain, however, that I am not mentally disabled as people mean, but now I have been labeled this way, when I really wanted to choose my label as autistic, because I don't think I'm just stupid because of my disorder. I think people think I'm stupid because I have ASD.

I am very upset by this label I have been given. I have an IQ of 123, I graduated from university with honors. I have worked as a translator from several languages, one of them the grammatically complex Finnish.

So is it normal for people on the spectrum to be told they're stupid or "mentally disabled"?

The "cognitive disabilities" I have that caused my doctor (a specialist in my disorder) to give me this certificate, were:

“the patient describes moderate restrictions of cognitive functions in the form of slow processing of information, difficulties assimilating verbal instructions and slow learning. She also describes social difficulties with difficulty having contact with other people for longer periods of time, especially several people at once, but prefers to be alone."

What nobody ever takes into consideration is why I process information more slowly than other people and why I have trouble following spoken instructions and speech in general when people talk too fast--and I told my doctor--when I process information, I do it thoroughly and deeply, so, yes, it takes me longer and I get left behind when people keep talking, I'm still processing what they said earlier. But then I pick up details and flaws in logic that the speaker doesn't perceive. And still, they tell me I'm retarded.

I'm thinking about pursuing an ASD evaluation privately and not telling the psychiatrist that I have this disorder. If I could get a positive ASD diagnosis, I would be proud to call myself an "Aspie," rather than say "yeah, I'm stupid and slow, just like you think I am."
 
Some Doctors are just stuck in the old ways of terminology and names for things. He/She just happened to be one of them.
 
@Aura Celeste,
I have been told that by peers, alternating with them being shocked (sometimes scared) when I figure out something way ahead of them.

I have never been called retarded by professionals, except (as you said) in the social arena.

Why does a doctor, who scored your IQ at 123, call you retarded, unless it is in a very specific arena?
 
...I am very upset by this label I have been given. I have an IQ of 123, I graduated from university with honors. I have worked as a translator from several languages, one of them the grammatically complex Finnish....

In other words, you're not "mentally retarded". Not in the literal sense anyways. Professionals don't always get it right either, and they screwed up in your case.
 
Some Doctors are just stuck in the old ways of terminology and names for things. He/She just happened to be one of them.
"Retarded" is still semantically accurate. It just carries too much baggage, now. I consider myself to be neuro-socially retarded, but I do not voice that phrase.
 
Far be it for me to questioning the so called pro`s

BUT (and among other things i was born with MBD (minimal brain damage (see my sig ) said difficulties that they seem to support their claim on you being mentally retarded Well i have them as well and im NOT diagnosed retarded (i should also ad my IQ is on the LOWER end of normal 83 -93 apparently ) and im STILL NOT labeled mentally disabled ( i believe you have to be on around 70 or below to get that diagnose if i remember correctly ) and as youre even OVER 100 (wich is normal) how they can claim youre mentally retarded is to be honest beyound me (scratching head ) further more adding youre work skills etc... NA something is NOT adding up here dear

SO i would demand to get a new evaluation with another team NOT the previous one

If you were to be as they claim mentally retarded as would DEFENETLY be the case in my case as well and im NOT
 
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@Aura Celeste Bollocks and a pox on the diagnostician. No way!

Professionals aren't always right.

I'm thinking about pursuing an ASD evaluation privately and not telling the psychiatrist that I have this disorder. If I could get a positive ASD diagnosis, I would be proud to call myself an "Aspie," rather than say "yeah, I'm stupid and slow, just like you think I am."

Very few people in any in the Autistic community would stop you from calling yourself an Aspie. To me, that is who you are and if you are able to access a private ASD eval, then why not? I don't know what they'd require in terms of records though?

You are not slow and stupid.

They told you wrong.
 
That’s a pretty deep post. I have to say, the label you have been given, whether correct or not, the words that the NTs have chosen to label you... sounds politically incorrect to me.

They have chosen to label you as ‘mentally disabled’. That’s because you’re not like them, and they think that because you’re not like them, you must be disabled.
Well I’m sorry but as you say... your IQ is 123, you graduated uni with honors, and have a talent for languages.

A part of me truly believes that it’s not a disability or a defect, to be different. Perhaps we’re simply just ‘different’ as a result of nature. Maybe the planet needed a group of people who weren’t like NTs. Perhaps it needed people to be a bit less sociable. Perhaps we process things slower, not because we’re flawed, but because nature needed people to properly absorb and analyse. So that the insight of our interpretation of those things, can be shared and translated differently, in order to have a better more insightful view to them.

I think the problem here is the label... ‘mentally disabled’. How about no. How about something a bit more generous to our talents. How about ‘neurologically diverse’ why not? We’re not harming anyone, we’re not incapable, we are different however. But there’s a large group of us, and many are achieving amazing things. So no I wouldn’t call you ‘mentally disabled’.
 
Okey just found this

One shares, according to ICD-10, intellectual disabilities at different levels based on what intelligence ratio the person in question is on, this is termed as profound, severe, moderate and mild. [8] In the term weak talent, they fall within the lowest level fixed within the normal zone IQ 70-85.

So as i said as im NOT diagnosed mentally disabled she`s MOST DEFENETLY not correctly diagnosed either

Added

ICD-10 2004

Mental and behavioural disorders
(F00-F99)

Mental retardation
(F70-F79)

A condition of arrested or incomplete development of the mind, which is especially characterized by impairment of skills manifested during the developmental period, skills which contribute to the overall level of intelligence, i.e. cognitive, language, motor, and social abilities. Retardation can occur with or without any other mental or physical condition.


Degrees of mental retardation are conventionally estimated by standardized intelligence tests. These can be supplemented by scales assessing social adaptation in a given environment. These measures provide an approximate indication of the degree of mental retardation. The diagnosis will also depend on the overall assessment of intellectual functioning by a skilled diagnostician.


Intellectual abilities and social adaptation may change over time, and, however poor, may improve as a result of training and rehabilitation. Diagnosis should be based on the current levels of functioning.


The following fourth-character subdivisions are for use with categories F70-F79 to identify the extent of impairment of behaviour:
.0 With the statement of no, or minimal, impairment of behaviour
.1
Significant impairment of behaviour requiring attention or treatment
.8
Other impairments of behaviour
.9
Without mention of impairment of behaviour
Use additional code, if desired, to identify associated conditions such as autism, other developmental disorders, epilepsy, conduct disorders, or severe physical handicap.


F70 Mild mental retardation
[See before F70 for subdivisions ]
Approximate IQ range of 50 to 69 (in adults, mental age from 9 to under 12 years). Likely to result in some learning difficulties in school. Many adults will be able to work and maintain good social relationships and contribute to society.
Includes: feeble-mindedness
mild mental subnormality


F71 Moderate mental retardation
[See before F70 for subdivisions ]
Approximate IQ range of 35 to 49 (in adults, mental age from 6 to under 9 years). Likely to result in marked developmental delays in childhood but most can learn to develop some degree of independence in self-care and acquire adequate communication and academic skills. Adults will need varying degrees of support to live and work in the community.
Includes: moderate mental subnormality


F72 Severe mental retardation
[See before F70 for subdivisions ]
Approximate IQ range of 20 to 34 (in adults, mental age from 3 to under 6 years). Likely to result in continuous need of support.
Includes: severe mental subnormality


F73 Profound mental retardation
[See before F70 for subdivisions ]
IQ under 20 (in adults, mental age below 3 years). Results in severe limitation in self-care, continence, communication and mobility.
Includes: profound mental subnormality


F78 Other mental retardation
[See before F70 for subdivisions ]


F79 Unspecified mental retardation
[See before F70 for subdivisions ]
Includes: mental:
· deficiency NOS
· subnormality NOS


 
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A doctor who used the word "retardation" even in a diagnosis could be reprimanded in the UK, just the same as if they used the words "spastic" or "mongoloid".
They are offensive and outdated words.
If you are autistic, have an IQ of 123 and had no significant speech delay in infancy then you meet the former criteria for Asperger's syndrome and may legitimately regard yourself as Aspie. Even if you did have a speech delay, the term has become generic enough that no-one could have a reasonable argument against you using it.
Having discussed some of this with @Sarah S on the forum and in PMs, it seems to me that the attitude towards autism in Sweden at this point in time leaves something to be desired.
 
A doctor who used the word "retardation" even in a diagnosis could be reprimanded in the UK, just the same as if they used the words "spastic" or "mongoloid".
I understand the offense at "retarded." Are they still allowed to use the word "delayed," which means the same thing? (The concept is even present in "Pervasive Development Disorder.")
 
Let me just try to clarify this some (were actually it seems both from Vasterbotten ) SO as i have been dealing with the so called pro`s from UP there (in my case Skeleftea Moved down from there MANY years ago ) from age 15 - oh i think i was 28 when left for good) YES i agree that up north that dont know DIDDLY about this

And as i also stated and also proved there is NO WAY in in gods green earth that this diagnose given is accurate

As for the level of Swedish knowledge of said NPD diagnosis its regarded among the highest in the world BUT thats the southern parts (ie Our capital city Stockholm karolinska Hospital ) further up north id say NO they dont know diddly (i should ad that they dident find my ASD despite MULTIPLE evaluations up north and low and behold down south (gasp ) they did EMIDIETLY
 
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I understand the offense at "retarded." Are they still allowed to use the word "delayed," which means the same thing? (The concept is even present in "Pervasive Development Disorder.")

"Delayed" doesn't carry the same baggage as the 'R' word so is still in use. No child has been bullied at school with the words "delayed development" but countless ones have been called a "retard"
 
Let me just try to clarify this some (were actually it seems both from Vasterbotten ) SO as i have been dealing with the so called pro`s from UP there (in my case Skeleftea Moved down from there MANY years ago ) from age 15 - oh i think i was 28 when left for good) YES i agree that up north that dont know DIDDLY about this

And as i also stated and also proved there is NO WAY in in gods green earth that this diagnose given is accurate

As for the level of Swedish knowledge of said NPD diagnosis its regarded among the highest in the world BUT thats the southern parts (ie Our capital city Stockholm karolinska Hospital ) further up north id say NO they dont know diddly (i should ad that they dident find my ASD despite MULTIPLE evaluations up north and low and behold down south (gasp ) they did EMIDIETLY

It's similar here Sarah. There are geographical areas where knowledge and understanding are excellent, but there are others which are appallingly weak. In the same way as I mentioned above, regarding the impression I get of autistic understanding Sweden, our understanding in the UK leaves much to be desired since there is plenty of improvement to be made.
 
Thank you all for your replies.

I'm sorry for how I expressed myself. The doctor did not use the word "retarded," I did. I translated the certificate in question from Swedish, which said what I think translates as "cognitive disability".

Also, I didn't mean to put my doctor down. He is not a psychiatrist or a psychologist and he wrote the certificate to help me. Sorry I did not explain the context. He is a PKU specialist, PKU being the disorder I was born with. He gave me the certificate to hopefully help me get a job that suits me, because the last few jobs I've attempted ended up traumatizing me due to ... my "social-sensitivity issues."

The "stupid" and "retarded," I realize, now come from my family and that is why I have been using those words to describe myself. They have always thought I was stupid. And now they've officially been proven right. My family is the reason I was so upset by the certificate, actually. I just am becoming aware of this now after reading your replies. I know what I am and I see how my mind works. Yes, I'm socially retarded and kind of proud of it, because I have traded social finesse for a deeper more meaningful mind and thought process. But that my family thinks I'm stupid and have always treated me differently from everyone else because of it... this is what is upsetting me.

My IQ was tested many years ago, so it was not by the doctor who wrote the certificate.
 
Thank you all for your replies.

I'm sorry for how I expressed myself. The doctor did not use the word "retarded," I did. I translated the certificate in question from Swedish, which said what I think translates as "cognitive disability".

Also, I didn't mean to put my doctor down. He is not a psychiatrist or a psychologist and he wrote the certificate to help me. Sorry I did not explain the context. He is a PKU specialist, PKU being the disorder I was born with. He gave me the certificate to hopefully help me get a job that suits me, because the last few jobs I've attempted ended up traumatizing me due to ... my "social-sensitivity issues."

The "stupid" and "retarded," I realize, now come from my family and that is why I have been using those words to describe myself. They have always thought I was stupid. And now they've officially been proven right. My family is the reason I was so upset by the certificate, actually. I just am becoming aware of this now after reading your replies. I know what I am and I see how my mind works. Yes, I'm socially retarded and kind of proud of it, because I have traded social finesse for a deeper more meaningful mind and thought process. But that my family thinks I'm stupid and have always treated me differently from everyone else because of it... this is what is upsetting me.

My IQ was tested many years ago, so it was not by the doctor who wrote the certificate.

Thanks for clarifying that Aura :)

Even in it's clinical sense, I don't feel labelling someone autistic as socially retarded is accurate. Our social skills are not delayed if we are functioning adults otherwise. We will not gradually develop certain social skills - we simply lack them, but we often have strengths that compensate in other areas.
If it's of any comfort, I suffered similar difficulties within my own family. I was not called stupid, but I was forever regarded as disobedient and disruptive. I was the perennial "naughty boy" and that never changed. You are in good company here :)

BTW - PKU? Isn't that phenylanine deficiency?
 
Let me just try to clarify this some (were actually it seems both from Vasterbotten )

Actually, I just moved up to Norrbotten this past summer. My psychologist is up here, but the specialist I saw is in Umeå. He doesn't have anything to do with ASD. He is a specialist in my disorder and was just doing what was in his power to do to help me get help to find a job that wouldn't end up traumatizing me in some way.
 

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