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Unmasking Autism: Discovering the New Faces of Neurodiversity

Unmasking Autism: Discovering the New Faces of Neurodiversity 2023-02-21

I have a problem with this book, e.g. how it portrays someone who wears large bulky headphones to the grocery store, because they can't tolerate the noise there. It looks down on sensory issues. The tone is as if you were worse if you have sensory issues. It's so inclusive that it excludes people who have legitimate issues.

I also have a problem how it is really about negative self-esteem and doesn't offer any insight about autism and how to deal with it. There is a lot of talk about self-esteem, none about autism itself. Anyone woth or without autism can have the experiences described in this book. I'm very sorry for what the author went through and it must have been awful to be a lonly young person who is a people pleaser and has anxiety and depression, however, lots of people have the same issues and it doesn't have to be exclusively autism. Most often than not, it's not. There are also other kinds of neurodoversity such as ADHD that I think are blended in in the book and called autism. I see ADHD as a legitimate problem and experiences of people with it as hard, valid and potentially isolating as well, but it's not the same thing as autism.

I can't relate to the book at all and it feels alienating and even speaks unfavourably about what I'm like. I am the science guy and I do wear bulky headphones to grocery shops and make poor eye contact - that isn't even a negative thing, but I got to know from this boom that it is.
Interesting that you viewed the book as having negative portrayals. I read it myself and thought it was the opposite in fact. I don't think that description you highlight was in any way done so in the book to be negative.

I have nothing but good to say about the author and the book in general. It's thorough, well sourced, well explained. For someone newly delving into the vast amount of information on the topic I thought this book to be invaluable in explaining masking and the harms that come from it. Especially as I had been unknowingly masking for most of my life.
 
I don't think that description you highlight was in any way done so in the book to be negative.
Of course. The book just favours one kind of people and "others" a streak of autism that the author doesn't speak to and doesn't represent, not caring how the descriptions might impact the "other" kind. I've had a conversation on the internet in which self-identified autistic people claimed that not looking another person in the eye (and looking at their nose or forehead instead, for example) is an exaggeration and not real and not going to shopping malls is exclusive to the intellectually disabled autistics. It's that kind of narrative. I find it hurtful. I also wonder how someone with intellectual disability might feel reading something like that. It's badly framed, badly worded. It's uncaring, not taking into account other perspectives.
 
Of course. The book just favours one kind of people and "others" a streak of autism that the author doesn't speak to and doesn't represent, not caring how the descriptions might impact the "other" kind. I've had a conversation on the internet in which self-identified autistic people claimed that not looking another person in the eye (and looking at their nose or forehead instead, for example) is an exaggeration and not real and not going to shopping malls is exclusive to the intellectually disabled autistics. It's that kind of narrative. I find it hurtful. I also wonder how someone with intellectual disability might feel reading something like that. It's badly framed, badly worded. It's uncaring, not taking into account other perspectives.

That is pretty messed up.
 
Of course. The book just favours one kind of people and "others" a streak of autism that the author doesn't speak to and doesn't represent, not caring how the descriptions might impact the "other" kind. I've had a conversation on the internet in which self-identified autistic people claimed that not looking another person in the eye (and looking at their nose or forehead instead, for example) is an exaggeration and not real and not going to shopping malls is exclusive to the intellectually disabled autistics. It's that kind of narrative. I find it hurtful. I also wonder how someone with intellectual disability might feel reading something like that. It's badly framed, badly worded. It's uncaring, not taking into account other perspectives.
Yeah I've got to 100% disagree. I get the exact opposite take from it, the book to me was incredibly caring, inclusive and thoroughly took in many different perspectives. I feel like you missed some points, and where also reading with a view to already be negative about the book. Because what you've described, and how the book reads to me at least, are pretty near polar opposites.
 
It's uncaring, not taking into account other perspectives.
I mean this aspect I'm describing specifically. The book does come across as trying to be inclusive, but seems unpleasant to me regardless, as if the author didn't take into account the experiences that I came with, with a "nobody is like that, it's not true, there are no real Sherlock Holmses on this earth" idea and that's dismissive. The quote was meant to be a description of a specific aspect of this book.
 
That was rude. Ad personam isn't an argument.
Folks are quick to yell "Ad hominem" when someone disagrees with them when they are expressing an opinion. But when the shoe fits, the shoe fits. I've read the book and you're blatantly mischaracterizing it. Based on your comments, I came to my conclusion. You are more than allowed to disagree but it doesn't change my view. Have a great life man, we're both allowed to have our opinions.
 
Folks are quick to yell "Ad hominem" when someone disagrees with them when they are expressing an opinion. But when the shoe fits, the shoe fits. I've read the book and you're blatantly mischaracterizing it. Based on your comments, I came to my conclusion. You are more than allowed to disagree but it doesn't change my view. Have a great life man, we're both allowed to have our opinions.
If this is a repeating situation for you, maybe you should avoid ad hominem arguments then and explain how you interpreted what someone said and why instead. You've decided to call me names instead of having a dialogue and now you expect me not speak up.

I've read the book and you're blatantly mischaracterizing it. Based on your comments, I came to my conclusion. You are more than allowed to disagree but it doesn't change my view. Have a great life man, we're both allowed to have our opinions.
Oh, so your own judgement is the point of reference to being right? That's the vibe I'm getying from this sentence as well:

Because what you've described, and how the book reads to me at least, are pretty near polar opposites.
You're basically saying here that I'm prejudiced against the book, because our perspecrives on it are "polar opposites". I have no idea where you got this idea that having opposite perspectives on a book means someone is prejudiced against it. If one person loves apples and another person hates apples, there is no "attitude" behind it on either end. Similarly, different experiences can influence having different perceptions of books.
 
I can't relate to the book at all and it feels alienating and even speaks unfavourably about what I'm like. I am the science guy and I do wear bulky headphones to grocery shops and make poor eye contact - that isn't even a negative thing, but I got to know from this boom that it is.

Yeah, I know what you mean, "stereotypical" autistic traits get love in fictional shows but not among autism advocates. But to be fair the autistics who would be inclined to write self-help biographies are a self-selecting group. I wrote this massive 40-page treaty on this brilliant idea to increase availability + consistency in logs by sacrificing durability guarantees but I'd probably not do more than a couple of pages for a biography.
 
But to be fair the autistics who would be inclined to write self-help biographies are a self-selecting group. I wrote this massive 40-page treaty on this brilliant idea to increase availability + consistency in logs by sacrificing durability guarantees but I'd probably not do more than a couple of pages for a biography.
Fair point. You have to be the more humanistically or socially inclined type to wirte a self-help book.
 
The author has not been diagnosed with autism. I realize that self-diagnosed people seem to be the majority in online spaces for autism and use that to claim a consensus that self-diagnosis is valid. Things like this book demonstrate one of the reasons that it isn't. Writing a book about leaning into the socially accepted aspects of autism as an identity is alienating to people with the disabling and not accepted aspects (actual autism).

I don't think the central idea of the book is worthwhile. If the concept of masking is reframed as developing and using social skills, it is not in fact a good idea to "unmask" because neurotypical people do not accept autistic people and are not likely to start soon.

I fully welcome self-diagnosed people to participate in autistic communities because most of them probably have autism, but saying they suspect they have autism vs claiming to have autism should be done. Writing a book about how to act as an autistic person without having a diagnosis is going way too far.
 
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What specifically did Devon Price say that people find offensive? My experience of the book wasn't like that. I felt he was advocating for self-acceptance and focusing on what made you feel happy and alive. The exercises were specifically directed toward that, from what I recall.
 
Chapter List

Introduction: Alienation

1. What is Autism, Really?
  • Defining Autism
  • “Typical” Autism
  • Why is Autism Synonymous with White Boys Who Love Trains?
  • Suspect You’re Autistic?
  • A Few Notes on Terminology
2 Who Are the Masked Autistics?
  • Autistic Women and Gender Minorities
  • Black and Brown Autistics
  • Highly Verbal and Outgoing Autistics
  • Autistics with Other Conditions
  • “Highly Functioning” Autistics
  • Meeting Masked Autistics and Finding Your Place in the Community
3 The Anatomy of the Mask
  • What is Masking?
  • The Double Bind of Being “Well-Behaved”
  • Masking as Overcorrection
4 The Cost of Masking
  • Problem Drinking and Substance Use
  • Eating-Disordered Behavior
  • Detachment and Dissociation
  • Adherence to Rigid Rules and Belief Systems
  • Fawning and Compulsive People Pleasing
5 Rethinking Autism
  • Rethinking Autism Stereotypes
  • Celebrating Special Interests
  • Rediscovering Your Values
  • Feeling Gratitude for Your Autism – and Your Past
6 Building an Autistic Life
  • Divergent Design
  • Reimagine Success and Time
  • Do Your Own Thing, Your Own Way
  • Be Radically Visible
7 Cultivating Autistic Relationships
  • Self-Disclose – When It Makes Sense To
  • Cultivating Unmasked Friendships – Find Your “Strawberry” People
  • Communicate Clearly and Honestly
  • Letting Go of Neurotypical Expectations
  • Finding (and Making) Your Community
8 Creating a Neurodiverse World
  • Expanded Legal Protections for Disabled People
  • Broadened Social Norms
  • Expanded Public and Professional Education on Neurodiversity
  • Universal Health Care and Basic Income
  • Abolition of Carceral Systems
  • Unmasking is for Everyone
Conclusion: Integration

Acknowledgements

Notes

Index
Thank you for including this index. I just purchased the book because of this post :)
 
I fully welcome self-diagnosed people to participate in autistic communities because most of them probably have autism, but saying they suspect they have autism vs claiming to have autism should be done. Writing a book about how to act as an autistic person without having a diagnosis is going way too far.
This is such an interesting perspective. It sounds like you believe the diagnosis of autism is an obvious yes or no, and there is no journey toward diagnosis; no grey area, no 'maybe' before landing on certainty. May I ask how old you were when you were diagnosed?
 
This is such an interesting perspective. It sounds like you believe the diagnosis of autism is an obvious yes or no, and there is no journey toward diagnosis; no grey area, no 'maybe' before landing on certainty. May I ask how old you were when you were diagnosed?
I don't understand. Diagnosis is done by a medical professional with training to do so. It is yes or no.

I don't know what you mean by journey toward diagnosis. In my case, my primary care physician asked if I had autism and recommended that I get assessed by a professional. I did that and was diagnosed with autism.

There is "maybe" before and after diagnosis. Before diagnosis, there was no certainty at all. Doctors can be wrong about things so some uncertainty remains afterwards. What I said is that people should not attempt to diagnose themselves and say that they have autism. People cannot diagnose themselves with any condition, especially complicated neurological ones, because they lack an outside perspective and expertise. An assessment from a professional is needed to have any certainty at all.

As an aside, if you are surprised to see someone with autism failing to see "grey" areas that are obvious to you, I recommend that you look up black and white or dichotomous thinking in autism.

The author of this book seems to think that autism is not a medical problem, and is instead an identity to be adopted. They are against diagnosis by professionals. I don't agree with any of that.

In any case I regret posting my original message in this thread because I didn't even read all of the book. It made me mad before the end of the introduction and I stopped reading after a few chapters and threw it in the trash where I think it belongs. I also wish I hadn't posted a message that could antagonize half the people in this forum. There is no point in doing that and I really value the posts of a few members that are not officially diagnosed.

Since I have unwisely decided to post in this thread again, I will drop a couple of quotes from the introduction. (I went back to see why it made me mad).

“He confessed to me that he’d recently been assessed for Autism. I had just completed my PhD in social psychology, so he wanted to know if I had any knowledge about Autism Spectrum Disorder.
“Sorry, I really don’t know about that,” I told him. “I don’t study people with mental illnesses; my research is on the social behavior of ‘normal’ people.”

The author admits in the introduction that they have no relevant training for writing a book about autism. Definitely not for diagnosing autism in themself or others.

“When my cousin told me all this, I felt dread. I didn’t want any of it to be true because in my mind, Autism was a shameful, life-ruining condition. It made me think of people like Chris, an uncoordinated, “cringey” Autistic kid I’d gone to school with whom nobody had treated well. Autism made me think of withdrawn, prickly TV characters like Benedict Cumberbatch’s Sherlock, and the Big Bang Theory’s Sheldon. It called to mind nonverbal children who had to wear big clunky headphones to the grocery store and were viewed as objects rather than people. Though I was a psychologist, all I knew about Autism was the broadest and most dehumanizing of stereotypes. Being Autistic would mean I was broken.”
This is ableism. The author holds themself above others with symptoms of autism that they don't have. People that have autism symptoms that the author has described as dehumanizing stereotypes are unlikely to enjoy this book.
 
I don't understand. Diagnosis is done by a medical professional with training to do so. It is yes or no.

I don't know what you mean by journey toward diagnosis. In my case, my primary care physician asked if I had autism and recommended that I get assessed by a professional. I did that and was diagnosed with autism.

There is "maybe" before and after diagnosis. Before diagnosis, there was no certainty at all. Doctors can be wrong about things so some uncertainty remains afterwards. What I said is that people should not attempt to diagnose themselves and say that they have autism. People cannot diagnose themselves with any condition, especially complicated neurological ones, because they lack an outside perspective and expertise. An assessment from a professional is needed to have any certainty at all.

As an aside, if you are surprised to see someone with autism failing to see "grey" areas that are obvious to you, I recommend that you look up black and white or dichotomous thinking in autism.

The author of this book seems to think that autism is not a medical problem, and is instead an identity to be adopted. They are against diagnosis by professionals. I don't agree with any of that.

In any case I regret posting my original message in this thread because I didn't even read all of the book. It made me mad before the end of the introduction and I stopped reading after a few chapters and threw it in the trash where I think it belongs. I also wish I hadn't posted a message that could antagonize half the people in this forum. There is no point in doing that and I really value the posts of a few members that are not officially diagnosed.

Since I have unwisely decided to post in this thread again, I will drop a couple of quotes from the introduction. (I went back to see why it made me mad).



The author admits in the introduction that they have no relevant training for writing a book about autism. Definitely not for diagnosing autism in themself or others.


This is ableism. The author holds themself above others with symptoms of autism that they don't have. People that have autism symptoms that the author has described as dehumanizing stereotypes are unlikely to enjoy this book.
It's unfortunate you did not finish the book. I'm not sure how far you got, but what she was saying (in the parts you quoted above) is that prior to discovering she was autistic, she had a narrow paradigm about what autism was and it was not a well informed or positive paradigm. She then dove into a study of autism and her perspective was radically changed.

I am a 67 year old female. I also had a very narrow and negative concept of autism (based on a cousin) until I learned that MANY of the younger members of our family were formally diagnosed with autism. One of my nieces has 3 sons - all with autism ranging from non-verbal to very high functioning. Two nieces have been diagnosed with ADHD and will undergo further assessment for autism. (I only have one nephew). And then it began showing up in my grandchildren and younger family members...

Growing up, I often felt different and alone - but I went to 15 schools in 10 years so chalked my struggles up to that. But in retrospect, even when I went to the same school for 3 years, I never felt like I fit in. I began to look into autism when my sister began to raise her autistic grandson because her ADHD daughter couldn't. I looked into it not for myself, but because I wanted to be able to have well informed discussions with my sister. Much to my surprise, I kept seeing myself over and over and over again in what I was learning.

I would give anything to be assessed, but it is simply not going to happen. There are not enough specialists to deal with autistic children where I live - let alone assess adults (which I understand is almost a specialty in itself). So for me - yes - this is a journey. I am left to my own devices. The book in question has been HUGELY helpful in providing the kind of information I yearn for by identifying autistic traits followed by real life examples. She also deals with autism from an adult female perspective, which again is SO helpful.

I do not know if I am autistic, but I do know that I have MANY autistic traits. I am married to a man who is almost certainly autistic and 17 years into our relationship he is still the most amazing man I have ever met in my life. I cried during our wedding ceremony because I was so grateful that we found each other.

I have nothing to gain from being autistic except perhaps an understanding of the struggles I have had throughout my entire life, and honestly, that would bring some compassion for myself. Some peace. And those are no small things after all these years...
 
It's unfortunate you did not finish the book. I'm not sure how far you got, but what she was saying (in the parts you quoted above) is that prior to discovering she was autistic, she had a narrow paradigm about what autism was and it was not a well informed or positive paradigm. She then dove into a study of autism and her perspective was radically changed.

I am a 67 year old female. I also had a very narrow and negative concept of autism (based on a cousin) until I learned that MANY of the younger members of our family were formally diagnosed with autism. One of my nieces has 3 sons - all with autism ranging from non-verbal to very high functioning. Two nieces have been diagnosed with ADHD and will undergo further assessment for autism. (I only have one nephew). And then it began showing up in my grandchildren and younger family members...

Growing up, I often felt different and alone - but I went to 15 schools in 10 years so chalked my struggles up to that. But in retrospect, even when I went to the same school for 3 years, I never felt like I fit in. I began to look into autism when my sister began to raise her autistic grandson because her ADHD daughter couldn't. I looked into it not for myself, but because I wanted to be able to have well informed discussions with my sister. Much to my surprise, I kept seeing myself over and over and over again in what I was learning.

I would give anything to be assessed, but it is simply not going to happen. There are not enough specialists to deal with autistic children where I live - let alone assess adults (which I understand is almost a specialty in itself). So for me - yes - this is a journey. I am left to my own devices. The book in question has been HUGELY helpful in providing the kind of information I yearn for by identifying autistic traits followed by real life examples. She also deals with autism from an adult female perspective, which again is SO helpful.

I do not know if I am autistic, but I do know that I have MANY autistic traits. I am married to a man who is almost certainly autistic and 17 years into our relationship he is still the most amazing man I have ever met in my life. I cried during our wedding ceremony because I was so grateful that we found each other.

I have nothing to gain from being autistic except perhaps an understanding of the struggles I have had throughout my entire life, and honestly, that would bring some compassion for myself. Some peace. And those are no small things after all these years...
I read enough to know that the book is not for me.

I have no problem with what you are doing, as I said before. Suspecting that one might have autism is fine. If learning about autism and things people with autism do to feel better helps you, I think that is great.

If you go on to decide you definitely have autism, write a book about it, and position yourself as an autism expert without credentials or even an autism diagnosis, I will object.
 
It's unfortunate you did not finish the book. I'm not sure how far you got, but what she was saying (in the parts you quoted above) is that prior to discovering she was autistic, she had a narrow paradigm about what autism was and it was not a well informed or positive paradigm. She then dove into a study of autism and her perspective was radically changed.

I am a 67 year old female. I also had a very narrow and negative concept of autism (based on a cousin) until I learned that MANY of the younger members of our family were formally diagnosed with autism. One of my nieces has 3 sons - all with autism ranging from non-verbal to very high functioning. Two nieces have been diagnosed with ADHD and will undergo further assessment for autism. (I only have one nephew). And then it began showing up in my grandchildren and younger family members...

Growing up, I often felt different and alone - but I went to 15 schools in 10 years so chalked my struggles up to that. But in retrospect, even when I went to the same school for 3 years, I never felt like I fit in. I began to look into autism when my sister began to raise her autistic grandson because her ADHD daughter couldn't. I looked into it not for myself, but because I wanted to be able to have well informed discussions with my sister. Much to my surprise, I kept seeing myself over and over and over again in what I was learning.

I would give anything to be assessed, but it is simply not going to happen. There are not enough specialists to deal with autistic children where I live - let alone assess adults (which I understand is almost a specialty in itself). So for me - yes - this is a journey. I am left to my own devices. The book in question has been HUGELY helpful in providing the kind of information I yearn for by identifying autistic traits followed by real life examples. She also deals with autism from an adult female perspective, which again is SO helpful.

I do not know if I am autistic, but I do know that I have MANY autistic traits. I am married to a man who is almost certainly autistic and 17 years into our relationship he is still the most amazing man I have ever met in my life. I cried during our wedding ceremony because I was so grateful that we found each other.

I have nothing to gain from being autistic except perhaps an understanding of the struggles I have had throughout my entire life, and honestly, that would bring some compassion for myself. Some peace. And those are no small things after all these years...
I just realize I misgendered the author of this book. I made the mistake of linking the female narrator and the first name Devon and assumed 'she'. According to Wikipedia, Devon is transgender and prefers the pronoun of they/them. Sincere apologies to the author!
 
I read enough to know that the book is not for me.

I have no problem with what you are doing, as I said before. Suspecting that one might have autism is fine. If learning about autism and things people with autism do to feel better helps you, I think that is great.

If you go on to decide you definitely have autism, write a book about it, and position yourself as an autism expert without credentials or even an autism diagnosis, I will object.
No matter where I land, I won't be writing any books or claiming to be an expert on anything. However, as a woman I have been misdiagnosed by doctors based on my gender, and it was not that long ago that the medical profession believed that only boys had autism. Today we know better. 70 years ago my (male) cousin was diagnosed as 'retarded' and my aunt was advised to institutionalize him. My aunt refused. When she died decades later, my cousin was re-diagnosed as non-verbal autistic - proving that even the diagnosis of boys has changed over the years.

Thank you for the opportunity to have this exchange of thoughts.
 

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