1. Welcome to Autism Forums, a friendly forum to discuss Aspergers Syndrome, Autism, High Functioning Autism and related conditions.

    Your voice is missing! You will need to register to get access to the following site features:
    • Reply to discussions and create your own threads.
    • Our modern chat room. No add-ons or extensions required, just login and start chatting!
    • Private Member only forums for more serious discussions that you may wish to not have guests or search engines access to.
    • Your very own blog. Write about anything you like on your own individual blog.

    We hope to see you as a part of our community soon! Please also check us out @ https://www.twitter.com/aspiescentral

John Elder Robison's blog 2015-08-28

Author of Look Me in the Eye and Raising Cubby

  1. royinpink

    royinpink Well-Known Member

    Messages:
    530
    Joined:
    May 21, 2014
    Karma:
    +1,099
    royinpink submitted a new resource:

    John Elder Robison's blog - Author of Look Me in the Eye and Raising Cubby

    Read more about this resource...
     
    • Like Like x 3
  2. Mia

    Mia Well-Known Member V.I.P Member

    Messages:
    6,450
    Joined:
    May 27, 2015
    Karma:
    +15,664
    I've read one of his books, and I do agree with what he wrote on his blog. I don't see Autism Speaks as an organization that cares about people with Autism, they seem to want to wipe out people with the disability, it reminds me a little of eugenics. When they fundraise or campaign it seems more about Autism and ASD as a disease, rather than the ability to do things differently, and promote more acceptance of Autism. I've gotten the impression that Autism Speaks is mainly about raising money for its founders.
     
    • Agree Agree x 3
  3. royinpink

    royinpink Well-Known Member

    Messages:
    530
    Joined:
    May 21, 2014
    Karma:
    +1,099
    This post (different blog) breaks down the expenses of Autism Speaks. Pretty bad.

    I have to admit I haven't read much by Jon Elder Robison, but I was surprised this wasn't up in the resources already. Do you recommend the book you read?
     
    Last edited: Aug 30, 2015
    • Like Like x 1
  4. kestrel

    kestrel Well-Known Member V.I.P Member

    Messages:
    3,594
    Joined:
    Oct 14, 2014
    Karma:
    +9,333
    dropping this, a favorite quote, here. I believe I found it on his blog.

    Robison: "The biggest virtue of pointing out the continuum is that when we do, we recognize that people can occupy different positions on the continuum at different points in their lives. One of the things that troubles people about the use of labels like “low-functioning” and “high-functioning” is that people will call a five-year-old kid who can’t talk “low-functioning,” yet a kid who has language skills, like me, but doesn’t have any friends, is described as “high-functioning.” First of all, of those two children, the so-called high-functioning kid is the one who is at material risk for suicide by the time he’s 16. Most people would not call a dead kid highly functional."
     
    • Like Like x 3
  5. Mia

    Mia Well-Known Member V.I.P Member

    Messages:
    6,450
    Joined:
    May 27, 2015
    Karma:
    +15,664
    When I read the book about two years ago, I skimmed it looking for similarities with my spouse's behaviour and perceptions. I don't actually remember much about the book except that it was insightful and well-written.
    I would have to reread it again, knowing what I do now, in order to recommend it.
     
  6. Mia

    Mia Well-Known Member V.I.P Member

    Messages:
    6,450
    Joined:
    May 27, 2015
    Karma:
    +15,664
    [​IMG]Autism Speaks is the largest autism non profit in the United States. In 2012, they raised over $58 million (source: Autism Speaks website). Unfortunately, very little of the funds raised by Autism Speaks actually go towards helping Autistic people and their families. Only 4% of the money raised is directed towards family services and supports! Where does the rest go? Well, 5% goes towards “administrative costs and salaries”. That’s more than is spent on actually helping Autistic people. The bulk of the funds raised by individuals for Autism Speaks go toward awareness and advertising campaigns, fundraising, and research.

    This is frightening and it's awful that they can get away with this.
     
    • Agree Agree x 2
  7. MEDL86

    MEDL86 Deleted

    Messages:
    85
    Joined:
    Aug 19, 2015
    Karma:
    +90
    I heard about this quite some time ago (last year, I think), and it's unfathomable how much money is wasted, when the majority of it could be used to help people on the spectrum. Of course, that's not the only questionable thing that goes on with Autism Speaks, but that's another story.
     
  8. Lena_C

    Lena_C The Girl Who Knew Too Much

    Messages:
    427
    Joined:
    Mar 16, 2015
    Karma:
    +1,112
    One of his quote:“We do not naturally care about people we don't know... If we tried to feel sorry for every death, our little hearts would explode... I don't have any physical reaction to the news. And there's no reason I should. I don't know them and the news has no effect on my life.”

    This is sooooo me.
     
    • Like Like x 1
    • Friendly Friendly x 1
  9. royinpink

    royinpink Well-Known Member

    Messages:
    530
    Joined:
    May 21, 2014
    Karma:
    +1,099
    Haha, I'm almost the opposite. I will literally cry watching the news. Or reading it, I suppose, but especially if there are pictures or writing that really 'puts you there' instead of just describing it. Too much suffering for no good reason. I think it's injustice or senselessness that gets to me more than 'caring about people I don't know', but maybe both.
     
    • Friendly Friendly x 1