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Hashimoto's

Brian0787

Brian0787

Active Member
Hi All,

It's been a long time since I posted here. Three months ago I was diagnosed with Hashimoto's Thyroiditis. For those who aren't aware it is an autoimmune disease which attacks your Thyroid. It has been a very difficult journey so far. I no longer have the energy levels I used to have. I struggle to do simple things like standing for long periods of time. It makes it difficult to take care of simple things such as showering and shaving. I feel like I have physically aged by 30 years. I have horrible fatigue. I take thyroid hormone medication but am on a low dose as I had trouble tolerating a higher dose due to panic attacks. I wasn't sure if there were others who struggled with Hashimoto's. It's difficult to see the life you used to have and see how far things have declined.

I know I am going to have to struggle with this for the long haul. I am hoping and praying there is some light at the end of the tunnel. I was dealing with so much before I got diagnosed. I was struggling with bad anxiety months before this still and depression. It feels like it's amplified both. I appreciate anyone who takes the time to read.
 
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I wish there was. They can treat the Hypothyroidism aspect of the disease but there is no cure for the autoimmune portion. There are some individuals I have read that were able to put the disease in remission. Some have tried different diet modifications like getting rid of gluten and that can help. I have been trying to use some supplements like Taurine, Zinc and Vitamin D. It helps some. I appreciate you asking :) I really wish there was a better cure out there.
 
It's important to routinely test your blood to be sure that your medication is the correct dosage to offset the lack of thyroid hormone production caused by the disease. Your doctor should be doing that as a routine matter. If you're overly tired all the time, probably need to increase your dose. If you're overstimulated and hyper all the time, probably need to reduce your dose.
 
I’ve got Hashi’s but it is such a small part of my own immune dysfunction, I rarely give it a thought. I do concentrate on my hypothyroidism. The is a lack of good understanding in the majority of medical practitioner. I didn’t make progress until I did my own research on the web.

This is a support group, entirely of patients, no doctors allowed. Just a collection of what millions of patients have learned.

Stop the Thyroid Madness

You can find information there, including information and patient experiences who have Hashi’s.
 
Sorry you are dealing with this. I've got the hypothyroidism thing, but I can tolerate the synthetic thyroid replacment
 
Mary Terry said:
It's important to routinely test your blood to be sure that your medication is the correct dosage to offset the lack of thyroid hormone production caused by the disease. Your doctor should be doing that as a routine matter. If you're overly tired all the time, probably need to increase your dose. If you're overstimulated and hyper all the time, probably need to reduce your dose.
Click to expand...

Thank you so much for your thoughts! I am having a monthly TSH test done and then a test for T3 and T4 levels. I am thinking my dose needs to be increased.
 
WhitewaterWoman said:
I’ve got Hashi’s but it is such a small part of my own immune dysfunction, I rarely give it a thought. I do concentrate on my hypothyroidism. The is a lack of good understanding in the majority of medical practitioner. I didn’t make progress until I did my own research on the web.

This is a support group, entirely of patients, no doctors allowed. Just a collection of what millions of patients have learned.

Stop the Thyroid Madness

You can find information there, including information and patient experiences who have Hashi’s.
Click to expand...
Thank you so so much for sharing the link :) It had some good information and love that they have a support group!
 
WhitewaterWoman said:
I’ve got Hashi’s but it is such a small part of my own immune dysfunction, I rarely give it a thought. I do concentrate on my hypothyroidism. The is a lack of good understanding in the majority of medical practitioner. I didn’t make progress until I did my own research on the web.

This is a support group, entirely of patients, no doctors allowed. Just a collection of what millions of patients have learned.

Stop the Thyroid Madness

You can find information there, including information and patient experiences who have Hashi’s.
Click to expand...
Just wondering, what other immune issues are you dealing with?

I have Crohn's btw.
 
I hadn't known that Hashimoto's was an autoimmune disease. I had Grave's Disease, which is also an autoimmune disease of the Thyroid- but it results in Hyperthyroidism (think Marty Feldman)! The cells being attacked in each may have opposing function?
My thyroid is basically dead due to the radiation treatment.
There wasn't any mention of the type of replacement hormone you are taking, is it a synthetic type like Thyroxine?
An older friend who didn't do well with that, ended up getting a supplement of animal thyroid tissue. She found that it worked much better. Perhaps it may work better for you, too?
Somewhat like you, I have had a lot of fatigue. Even with the highest dose they can provide. But it is better than the alternative. I would have died decades ago.
 
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I also suffer from Thyroid problems. I have nodules growing on my thyroid. I'm diagnosed with Hashimoto's as well.

Lugolls or nascient Iodine will give great relief.

Do not take povodine iodine internally (first aid product), it is poison.


To test if you are iodine deficient, paint a 3 inch circle of either lugols or nascient iodine on your tummy. 24 hours later, see if the red stain is still there. If the stain still is there, then you have normal iodine levels. If it disappears, or partly does in under 18 hours, you most likely have a deficiency.

I would also suggest boron and magnesium supplementation. High dose vitamin c shots would benefit you probably as well.

Plantago Major is an excellent herb, as is vitex. But vitex can lower hormone secretion so you might want to stick with plantago.

But talk to a doctor. A naturopath would know all this and much much more.
 
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