I have several somewhat serious health conditions that have flared up recently.
I have been in and out of the ER, and referred to several different specialists.
I am extreme 13/10 pain, and also very dizzy and sick, and having low blood pressure and nearly fainting, and edema and more.
Blood work and imaging shows things are wrong with me. But when I go to a new doctor they roll their eyes at me and try to get me out of the office as quickly as possible, and I don't get the same follow up care or treatments as other patients.
Today, I googled it to see if other aspies have the same experience.
And the answer is yes.
Do you know why they don't take us seriously?
We have flat affect when we speak. Neurotypicals sound all pleady I guess when it's serious. I think I sound desperately pleady especially when I'm in pain and scared, but to a neurotypical doctor, I just sound like I am exaggerating.
And here's another weird thing. Neurotypicals will say something like "I have the worst headache of my life"..... and all they mean is that they have a headache.
I come into the doctor saying "I have the worst headache of my life" and if I say that I mean it. Like my headknobs are pulsating like wom-wom-wom with pain, and light and sound is excruciating to experience, and maybe I'm about to literally faint on their floor.
So they think we are using hyperbole, being hystrionic.
But I'm literally sitting there trying to explain symptoms in a calm, almost scientific way, Here is my list. And I say things like "I've never been in this much pain before", or "Next thing I know I'm waking up on the floor with towels and ice packs around me." or "It's so bad I am bent over and nearly pee myself in agony".
I really really mean that. Those are serious symptoms. But neurotypicals say that kind of stuff to exaggerate about regular symptoms I guess.
Dang it. I am very sick, and probably spending the American taxpayer tens of thousands of dollars a month in hospital and specialist visits, imaging, and drugs.
Can't a doctor just hear my symptoms, know I am not making it up, and treat me? So often I get an eyeroll and I am just sent out the door. I am usually nonverbal and in shock at this point and it takes a few days to come to my senses and make a follow up visit where I once again plead my case with a little more detail.
It's insane. I hate neurotypical games. I have zero quality of life sometimes and these so called "doctors" won't treat me the same as their other patients.
I've said it before. Doctors only "practice" medicine. They're idiots.
I have been in and out of the ER, and referred to several different specialists.
I am extreme 13/10 pain, and also very dizzy and sick, and having low blood pressure and nearly fainting, and edema and more.
Blood work and imaging shows things are wrong with me. But when I go to a new doctor they roll their eyes at me and try to get me out of the office as quickly as possible, and I don't get the same follow up care or treatments as other patients.
Today, I googled it to see if other aspies have the same experience.
And the answer is yes.
Do you know why they don't take us seriously?
We have flat affect when we speak. Neurotypicals sound all pleady I guess when it's serious. I think I sound desperately pleady especially when I'm in pain and scared, but to a neurotypical doctor, I just sound like I am exaggerating.
And here's another weird thing. Neurotypicals will say something like "I have the worst headache of my life"..... and all they mean is that they have a headache.
I come into the doctor saying "I have the worst headache of my life" and if I say that I mean it. Like my headknobs are pulsating like wom-wom-wom with pain, and light and sound is excruciating to experience, and maybe I'm about to literally faint on their floor.
So they think we are using hyperbole, being hystrionic.
But I'm literally sitting there trying to explain symptoms in a calm, almost scientific way, Here is my list. And I say things like "I've never been in this much pain before", or "Next thing I know I'm waking up on the floor with towels and ice packs around me." or "It's so bad I am bent over and nearly pee myself in agony".
I really really mean that. Those are serious symptoms. But neurotypicals say that kind of stuff to exaggerate about regular symptoms I guess.
Dang it. I am very sick, and probably spending the American taxpayer tens of thousands of dollars a month in hospital and specialist visits, imaging, and drugs.
Can't a doctor just hear my symptoms, know I am not making it up, and treat me? So often I get an eyeroll and I am just sent out the door. I am usually nonverbal and in shock at this point and it takes a few days to come to my senses and make a follow up visit where I once again plead my case with a little more detail.
It's insane. I hate neurotypical games. I have zero quality of life sometimes and these so called "doctors" won't treat me the same as their other patients.
I've said it before. Doctors only "practice" medicine. They're idiots.
