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Desperately seeking answers about adult Aspergers

Can I ask how much you expect self-pay to be? I ask because that will very likely be the direction that I take as well.

Ah, that's the best part of the story. The heartless clerk who refused to answer any questions or do anything to help quoted $1400+ (verbally). The doctor (easily the most understanding & compassionate NT I've ever met) quoted $1050 -- in writing. And she even apologized for not being able to offer a self-pay discount. They claim these things are written in stone & non-negotiable, but clearly they have some ability to adjust when they see the need. That really impacted my decision to not appeal with state healthcare. There are other reasons as well, basically clues that indicate I have no chance of winning an appeal … so I figured I'd accept this offer before the price changed again. Hope this helps.
 
Thanks, that's helpful. I wonder if I can get a "deal" like that. I'd be willing to pay $1000ish for an official diagnosis.
 
This actually sounds very typical of Aspergers. Many of us do often sense other's emotions quite well. We also sometimes don't know why they're feeling that emotion (especially if that emotion is one of being offended at us). And NTs often purposely do body language in order to purposely consciously convey an emotion, and we don't pick up on that.

Ah, yes. I see a lot, but I always question my judgement when it comes to other's body language. Always have, and probably always will . . . I've learned a lot over the years, though, mostly through direct experimentation (and having that backfire gloriously at times.)

Also, I'm a completely "on" or "off" person when it comes to the display of my own emotions. My emotions are either utterly obvious to others or completely hidden. That freaks people the heck out, let me tell you.
 
Ah, that's the best part of the story. The heartless clerk who refused to answer any questions or do anything to help quoted $1400+ (verbally). The doctor (easily the most understanding & compassionate NT I've ever met) quoted $1050 -- in writing. And she even apologized for not being able to offer a self-pay discount. They claim these things are written in stone & non-negotiable, but clearly they have some ability to adjust when they see the need. That really impacted my decision to not appeal with state healthcare. There are other reasons as well, basically clues that indicate I have no chance of winning an appeal … so I figured I'd accept this offer before the price changed again. Hope this helps.

WOW. That's a lot of money, just for an official diagnosis!
 
WOW. That's a lot of money, just for an official diagnosis!

Not compared to my lost wages, being forced out of jobs because I can't compete in the popularity contest of employment, and having no legal recourse against the constant bullying & harassment. It's just a drop in the bucket of the price I've had to pay for being 'different'.
 
Not compared to my lost wages, being forced out of jobs because I can't compete in the popularity contest of employment, and having no legal recourse against the constant bullying & harassment. It's just a drop in the bucket of the price I've had to pay for being 'different'.
Yeah, but you have to have the money to get the diagnosis in the first place.
 
Yeah, but you have to have the money to get the diagnosis in the first place.

I'm glad you fully understand my dilemma. That's the paradox they've created to defeat us. But since I'm not able to work right now, my choice is either that or back to Plan A: make arrangements for the care of my cats and then leave. Which is also what will happen if I pay for the eval and am not diagnosed … it'll just happen a little sooner.
 
At least you can get in to see someone. I can't even get the hospital to return my phone calls, despite several claims that it "only takes up to 48 hours" to speak to someone about scheduling an appointment. I've left several "generic" messages with my phone number to no avail. :-/
 
At least you can get in to see someone. I can't even get the hospital to return my phone calls, despite several claims that it "only takes up to 48 hours" to speak to someone about scheduling an appointment. I've left several "generic" messages with my phone number to no avail. :-/

Agreed … that part is extremely frustrating. I was blown off by my therapist and two different doctors, but I kept asking questions … doing research … giving them marked up articles & professional papers … and once I got the first 'professional' to acknowledge that I needed an eval, the other two were more willing to consider it. My therapist was the first one on-board, and she sent letters to the two doctors. One is fully on-board now, the other is still waffling.

Funny, the documentation on Aspergers lists perseverance as a 'symptom', as if it's a bad thing … but without it, I'd have nothing. Use it as the strength that it is, and keep after them. Best of luck to you!
 
Kassie, did you have to see a "regular" family doctor before getting a referral for an Asperger's test? That's what I was told by a branch of the big medical center here. Seems a waste of time and money to "plead my case" to a general practitioner in hopes of getting a referral. Thanks.
 
Kassie, did you have to see a "regular" family doctor before getting a referral for an Asperger's test? That's what I was told by a branch of the big medical center here. Seems a waste of time and money to "plead my case" to a general practitioner in hopes of getting a referral. Thanks.

That's actually kind of a comedy of errors, I'll try to keep this brief though. I was having several seemingly unrelated physical symptoms that my GP was fairly uninterested in. Extreme fatigue, difficulty eating, lightheadedness, shortness of breath, and bowel & 'female' stuff to boot. The GP ran blood tests, told me I'm fine, and kicked me out. I went back & he referred me to a psychiatrist. She wrote him a letter that basically said "This isn't psychiatric, it's physical; keep looking." So the GP sent me to a half-dozen different specialists, none of which found anything. (I should mention that my first visit was to my gyn who put me on the pill, so the 'female' symptoms were being masked. GP said it wasn't related to anything else.) One of the specialists was a neurologist who referred me to a few other specialists, one of which was a neuropsychologist (for dementia … did I mention this was for physical symptoms??) That was ruled out (of course) along with everything else. I turned to Google (which I should've done in the first place), it said I had a cyst … so I found a better gyn who did the proper tests and found it … removed it … all better now.

But all the trouble I had getting doctors to actually listen to me was the last straw that started me asking about Aspergers again. When I found out that a neuropsychologist could give a diagnosis I contacted her again (calling it a 'followup') but she doesn't have any experience with autism or Aspergers. As luck would have it, they just had a new doctor join their practice who does … so I got a referral to the new neuropsych from the previous one, who was referred by the clueless neurologist, who was referred by the clueless GP who couldn't see past the numbers on my blood test. Not a process I would recommend to anyone, but I'll take it any way I can get it.

So I guess the moral of the story is, people will go to extreme lengths to disagree with us or prove us wrong. If I'd gone in initially with questions about Aspergers he never would've given me the proper referral. But while he was trying so desperately to disprove a (legitimate) physical issue, I kind of fell backwards into the referral I need for an Aspergers eval. Ugh. And it only cost me a few years, my job, and a boatload of money.
 
Thanks. I don't have a family doctor. I was hoping to just set an appointment with a psychiatrist, but it seems I have to jump through some hoops first. :-/
 
Thanks. I don't have a family doctor. I was hoping to just set an appointment with a psychiatrist, but it seems I have to jump through some hoops first. :-/

Here you have to have a Primary Care Physician (which is usually a GP) and he has to write referrals to any specialists or insurance won't pay. But then again, insurance isn't paying (which I only recently found out), so I guess I didn't need the referral. You're going to self-pay too, right? I would think you'd be able to go directly to the specialist in that case.
 
I have insurance for the time being. I'll look into the primary care route and hope for a referral. I just hope it doesn't take half a year or more to are someone.
 
I have insurance for the time being. I'll look into the primary care route and hope for a referral. I just hope it doesn't take half a year or more to are someone.

Cool. Hopefully this way they'll pay for it. They actually said that if I waited until next February insurance would 'probably' pay, if they filed it as a followup to this year's eval … but I think in the long run that would end up costing me more.
 
I can't seem to find a provider that is accepting new patients and/or accepts my lousy health insurance. And why do hospitals/care providers hire the rudest, most disgruntled people to answer outpatient calls? All they care about is who your health insurance is through and absolutely nothing else.

This week has been an especially difficult one for me. I seem to be hyperaware of the fact that I really have no friends, nobody that I can talk to, and no prospects for getting professional help. Socializing with people is hard enough, let alone navigating and deciphering the mess that is the healthcare system. I've never felt so alone and helpless in all my life.
 

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