. and I am immersed in this environment, and I would suggest that there is a very small minority that treat people this way. There are those who do, but are quickly called out for it when it is witnessed. As mentioned earlier... this is absolutely unacceptable behavior.
I might just have really bad luck - in fact I hope I just have really bad luck, but I do have a thought:
If you work in a children's hospital and have spent most or all of your career in pediatrics that alone would explain for me why you instantly recognize unacceptable behavior for what it is and why in your experience mistreatment is vanishingly rare and called out...As the amount of poor treatment I recieved at children's hospitals growing up was really none at all....The only traumatic experience I ever had in a children's hospital was forgiveable, and I believe 100% innocent and the sad result of pervasive ignorance.
Now, my experience is at the more extreme end for poor treatment in healthcare and may be unusual, but it's not at all uncommon for people to be shocked at the difference betwen pediatric and all-ages/adults-only care in a Canadian context when they (or sometimes their children) transition into adult care...it's often the case there is much, much less sensitivity for all kinds of things in adult care, and ironically a lot less respect for autonomy and waaaay less attention paid (usually zero attention paid) to any individual differences a patient might have that have significant impact on appropriate approaches to care provision and communication. The difference between equity and equality seems often to not be understood and if you cannot act at least normal (if not ideal patient) then you are a Problem and a frustration and not much else. Accomodations for say, needing written communication, for example, just don't happen and I have repeatedly had a short page of written symptom notes carefully typed out handed back to me with disdain and words like "I'm not reading this, talk to me" spoken as if I'm doing something wrong....inevitably I cant talk to them fast enough or clearly enough and bad things happen just from misunderstanding....which I am always blamed for.
Also the only doctor who ever stood up for me against mistreatment he witnessed by other medical people, I am pretty sure he was just punished for doing so. (and after that he completely changed everything about how he treats me and has never explained why.)
I have been subject to sneak attack exams and procedures my entire life, I don't think it will ever stop. I've been repeatedly given no chance to offer or decline consent (despite having full capacity I can demonstrate if anyone bothers to check and gives me enough time) instead just suddenly held down and had stuff done to me without any warning beforehand or any explanation ever. I'm usually treated like I'm stupid and understand nothing, and the rare time I ever manage to prove that's not true I'm suddenly seen as crazy or some kind of malingering faker with no communication challenges or cognitive differences and expected to be
socially normal, to speak normally, and to understand things I don't, and get treated even worse than average (average being how I am treated by people
who think I am stupid and understand nothing)...I started just quietly walking out on appts with people who come to believe the latter (crazy or malingering - about literally anything it seems like) in my early twenties when they would start harshly and unprofessionally berating me for things I had never done or couldnt help being unable to do or couldnt even understand and knew would never be explained to me. (This is only possible in situations where the doctor does not physically block the only exit...in the family practice clinic i had a couple of meltdowns in and that I am soon dismissed from forever not for meltdowns or anything remotely similar but for filing a complaint about mistreatment [ this is not in the official letter, which blames me in a very strange way for not trusting the doctor -- but is what I was verbally told in the most hate-filled tone of voice i had ever heard this doctor use in an unrecorded conversation...anyways in this doctor's clinic:] in every single exam room the doctor sits square in front of the door, and then examining you is still positioned so that they block your path to the door because of how tiny and elongated all the exam rooms are and how everything is arranged with the exam tables and guest/chaperone/patient chair wedged into one corner on a diagonal from the only door, which the doctor's little desk area and spinny chair is placed directly in front of...my doctor is a foot talller than I am and can move the exam tables with one hand sitting down and scares me when he is angry...in the other clinic, a specialist refusing to answer or in any way discuss a valid question I had asked him that essentially would maintain or destroy the doctor-patient relationship depending on his answer and which he had more than once promised to finally address at the appt during which this happened, everything was somewhat similarly arranged with the patient boxed in but specialist doctor's chair normally was off to the side leaving a clear path to the door...however when he, treating me as usual like anything I said or asked was stupid and irrelevent, decided to break his promise and say we werent discussing the question he promised to answer that day and basically just demanded I submit to his examination immediately, he actually stood up and placed himself squarely in the middle of the only pathway to the door while pointing at the exam table...to walk out on these guys I would have had to push past them, which I was unwilling to do in both cases and would have easily been prevented from doing by the doctor who is way bigger than I am)
I know that sane, kind, ethical and competent healthcare workers exist and consider myself fortunate to have met and been treated by some of them....I would be dead if not for them (at this point it is a mixed blessing as I wish I was dead) but I don't seem to meet a whole lot of them.
Perhaps the issue is one of bias or I am the problem and just bring out the worst in people, and they are sane and kind to most people just not people like me....or perhaps the situation in the USA is not the same as in other countries?
Could just be random chance, too. My bet is on mostly random chance with a whole lot of bias and ignorance mixed in, and probably healthcare worker burnout.
My sample size
is tiny...a drop in the bucket of all medical practitioners out there -- but bigger than average....I am told I am so "medically complex" that it is hard for primary care doctors to get specialists to accept referrals to see me and I suspect at this point it would be hard to even get a primary care doctor to see me. I have seen more doctors than years I have been alive (am 40 next year and couldnt even hope to count them all - is
way more than 40) in 3 different provinces and many different cities; by the time I was 16 had probably been to the hospital for various things more than most people will in a lifetime. Just to say; its not that I have seen a maybe 5-10 bad actor healthcare workers and assume every doctor or nurse out there is awful...I have seen lots of them, and i know on balance there are lots of good people in healthcare -- that most people in healthcare are good actors or at least want to be. I even think that probably most of the people who have been truly awful to me have good intentions, but they don't know what they don't know, they don't receive enough training in how to be sensitive to people and don't know enough about human diversity, they are educated in a culture that encourages them to discard feelings and to be dominating and competetive, they are overworked and in managed public health systems (which is most of Canada's healthcare system) often underpaid and micromanaged in ways that are detrimental both to their patients and to them...
I assume most of them have understandable reasons for being awful to me, and that they dont even realize they are being awful...
But it is not exaggeration that for me, personally, being treated badly is the rule, not the exception.
I am glad you are an educator in medicine -- seriously very glad.