What's wrong with saying "mild" or "severe" autism?

[vergil96]

But I suppose such condemnations are simply good for the algorithms

Yes, exactly. It's black and white thinking. It sells content online well. Reality isn't as black and white and many people realise it. You're describing your experience and trying to orient it with regard to others and it's fine.

I find the whole dynamic of disability complicated. On one hand I would considered myself disbled, because some of my health conditions meet the definition, I need hearing aids for easy functioning, I have sensory issues that can cause a lot of problems and some of it borders on epilepsy. However, it's a question for what kind of bodies and brains thw society is for and how public spaces are organised, so it's an accesaibility issues. A person with a different body than mine would have the same problem if they were in a society that caters to different bodies than theirs. In that sense, I think autism without accompanying intellectual disability (or any condition of those that I mentioned),isn't an illness. Confusing, isn't it?

 

[NB79]

Yes, officially . There are 2 support levels categories -- one category is for sensory and repetitive behaviours; the other category is for social communication.

And a different level can be assigned to each [category], independently of the other; This was a deliberate attempt to address the issue of uneven abilities across symptoms and domains of functioning by those who created this change in the DSM 5!!

It continually boggles my mind and frustrates me to no end that I have not encountered a single person on this website who actually knows this -- of who is actually willing to accept is and can conceptually work with this reality.

I have two separate support levels. RRB is level 3. Social communication I am pretty sure is 2 (I could be wrong about that, though - looking at writing alone, outside of real-time interaction, I am possibly level 1; looking at speech, writing in real-time used exactly like speech, and comprehension of any unspoken rules or expectations is a very different story... My psychologist was very, very unclear about her opinion of a social communication support level).

Here adults barely if anyone even get diagnosed, forget about 'support' is like the 80' here in that regard.

 

[the_tortoise]

Here adults barely if anyone even get diagnosed, forget about 'support' is like the 80' here in that regard.

I don't get needed support where I live either, many people don't. Many people diagnosed in childhood with huge support needs (will never be able to live alone for example[*]) don't get support and when their families are no longer able to support them they will likely be institutionalized and neglected there or end up the most horribly victimized of the homeless population or will die.

The "Support Levels" are part of the diagnosis, they don't actually guarantee support to anyone....and are unique to diagnostic codes in the DSM 5.

The ICD 11 diagnostic coding for Autism does not include support or severity levels, but does have different codes for Autism +/- language disabilities and/or what DSM 5 calls "Intellectual Disability" and ICD calls "Disorder of Intellectual Development" (so in ICD-11 codes for Autism Spectrum Disorder are: 6A02.0, 6A02.1, 6A02.2, 6A02.3, 6A02.5, 6A02.Y, 6A02.Z ...

See link https://icd.who.int/browse/2025-01/mms/en#437815624 )

[* I can live alone but not without a lot of help; help I don't get mostly... and i am not sure how that will end for me, nor when everything will finish falling apart around me. That's life.]

 

[NB79]

I don't get needed support where I live either, many people don't. Many people diagnosed in childhood with huge support needs (will never be able to live alone for example[*]) don't get support and when their families are no longer able to support them they will likely be institutionalized and neglected there or end up the most horribly victimized of the homeless population or will die.

The "Support Levels" are part of the diagnosis, they don't actually guarantee support to anyone....and are unique to diagnostic codes in the DSM 5.

The ICD 11 diagnostic coding for Autism does not include support or severity levels, but does have different codes for Autism +/- language disabilities and/or what DSM 5 calls "Intellectual Disability" and ICD calls "Disorder of Intellectual Development" (so in ICD-11 codes for Autism Spectrum Disorder are: 6A02.0, 6A02.1, 6A02.2, 6A02.3, 6A02.5, 6A02.Y, 6A02.Z ...

See link https://icd.who.int/browse/2025-01/mms/en#437815624 )

[* I can live alone but not without a lot of help; help I don't get mostly... and i am not sure how that will end for me, nor when everything will finish falling apart around me. That's life.]

Sorry things are difficult, I guess i could live alone, if i had money, another poster said once worrying about money takes years of life of you, i relate.