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Very uncomfortable

Starflowerpower87

Starflowerpower87

Well-Known Member
On Wednesdays I have been meeting up with someone who works with autistic folk. I was really happy how the last session went. Thought it was helping me make progress. But lately I haven't been sleeping well after my last appointment. Had weird waking dreams one night followed by voices keeping me up. Then the next morning woke up too early and heard voices that night too. I'm not sure why they haven't assigned me with someone who works with schizophrenia, because that seems to be my biggest problem. The autism person has been helping but there isn't much I can do if I can't sleep.

They just keep giving me more meds. I told them that I think the voices are real people trying to kill me but they just ignore that fact and give me my depot injection. It seems like nothing works to rid myself of these terrible voices. I'm tired of this crap.
 
Starflowerpower87 said:
On Wednesdays I have been meeting up with someone who works with autistic folk. I was really happy how the last session went. Thought it was helping me make progress. But lately I haven't been sleeping well after my last appointment. Had weird waking dreams one night followed by voices keeping me up. Then the next morning woke up too early and heard voices that night too. I'm not sure why they haven't assigned me with someone who works with schizophrenia, because that seems to be my biggest problem. The autism person has been helping but there isn't much I can do if I can't sleep.

They just keep giving me more meds. I told them that I think the voices are real people trying to kill me but they just ignore that fact and give me my depot injection. It seems like nothing works to rid myself of these terrible voices. I'm tired of this crap.
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I agree, you need help with that first and most. My best friend is schizophrenic. It took him fifteen years to get the medication right, now he has almost no problem. He told me stress triggers the chemicals so he has to watch that and told me what to look for and I have mentioned it a few times when he seemed off.

I hope you can find help for it soon. Good luck.
 
Starflowerpower87 said:
It seems like nothing works to rid myself of these terrible voices. I'm tired of this crap.
Click to expand...
I'm also schizophrenic and treatment resistant. The only way to get rid of my voices and positive symptoms is to take such a high dose of anti-psychotics that I am left unable to function by severe side-effects. I have had to use a combination of tricks in addition to a lower dose of meds to manage my illness. Psychotherapy, CBT, diet, exercise, stress management. supplements, etc. Now I can tolerate some voices and delusions without losing insight into them and getting overrun by psychosis. Took me a decade of heavier meds to lay the foundation for this.

Hope this helps.
 
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Rodafina said:
I appreciate the enormity of your challenges, @Starflowerpower87 and wish you could find relief from the voices.


Is this something that you could ask for? Maybe they could switch your worker.
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I’ll think about it. I hate talking to professional people about my schizophrenia though because I feel like it triggers me. A support group would help though. But I don’t think there is any around here. I’ll ask them. So far I have just been attending groups that have a broad range of mental issues. They are more for fun than anything. Under the program I’m part of there are some schizophrenic people. They have some of the same issues as me and I like talking to them.

This is a scary problem for sure. A very draining illness to have.
 
velociraptor said:
I'm also schizophrenic and treatment resistant. The only way to get rid of my voices and positive symptoms is to take such a high dose of anti-psychotics that I am left unable to function by severe side-effects. I have had to use a combination of tricks in addition to a lower dose of meds to manage my illness. Psychotherapy, CBT, diet, exercise, stress management. supplements, etc. Now I can tolerate some voices and delusions without losing insight into them and getting overrun by psychosis. Took me a decade of heavier meds to lay the foundation for this.

Hope this helps.
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I doubt that would work for me. But if I get desperate enough it’s worth a try.
 
grommet said:
I agree, you need help with that first and most. My best friend is schizophrenic. It took him fifteen years to get the medication right, now he has almost no problem. He told me stress triggers the chemicals so he has to watch that and told me what to look for and I have mentioned it a few times when he seemed off.

I hope you can find help for it soon. Good luck.
Click to expand...
Stress triggers me too. But it’s weird. Sometimes when I’m completely happy and doing well I’ll hear voices.
 
I estimate that 90% of health workers are just repeating moves that worked on the case we most remind them of, even if it is a very poor match, because they can't imagine a new situation, understand the theory behind their work, or even comprehend that they are incompetent.
 
I suspect there are only so many people you can be setup with. Certain people with certain qualifications might only be attainable via private plans, which would be expensive and completely out-of-pocket most likely.

if you're eligible for a sleep study and have the resources to do so, being able to have the ability to use a sleep machine can help.

Also, maybe with your doctor(s), getting permission to try out different combinations of meds or even working on one medication to wean yourself off of because maybe the side effects are starting to affect you too much. There is no perfect science and everyone is different. More is not always better. Best wishes.
 
Thank you everyone for the comments. Unfortunately after months of doing okay, I started hearing them again. I have depot tomorrow though so maybe I’ll be able to talk to my psychiatrist. The depot nurse is also very helpful. Hopefully they don’t just do an increase. I take so much at night that I need like twelve hours of sleep to feel normal and I get extreme thirst and dry mouth.
 
Starflowerpower87 said:
Thank you everyone for the comments. Unfortunately after months of doing okay, I started hearing them again. I have depot tomorrow though so maybe I’ll be able to talk to my psychiatrist. The depot nurse is also very helpful. Hopefully they don’t just do an increase. I take so much at night that I need like twelve hours of sleep to feel normal and I get extreme thirst and dry mouth.
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If I understand the very nature of depot injections, that they are largely dependent on regulating the underlying medications you may be taking. And that it may be that one or another- or some or all of them are simply not working.

A definite reason to aggressively run it all past your psychiatrist. To settle only on a combination of medications and their dosages that creates more solutions than problems, particularly given their potential side effects. Don't hesitate to articulate such things to your physician.

A process I once went through, where I initially made the error of simply doing what I was told, without really weighing in on whether a particular medication was doing more harm than good. One of them (Tofranil) made me quite agitated.
 
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