My autistic brother Ikey lives in a group home. He hasn't been taught how to shave himself. The staff there rarely do it for him; they have the barber do it when he gets a haircut. He doesn't like having a beard, so he pulls the hairs out by hand. You'll often see him with big bald spots, which make it appear as if he has some physical disorder.
This isn't a question about the propriety of what the staff do, or about how we could intervene. What I'm wondering about is how much Ikey feels pain when he does the pulling. Does it hurt a lot, but the compulsion causes him to do it anyway? Does his desire and the distracted nature of what he is doing make him just not notice it? (It's also possible that he enjoys the pain.) Though he is verbal, he hasn't been able to answer when I've asked about it.
There's no way, of course, that anyone here knows the answer. I'm interested to see if people who do similar things have an awareness of how they experience it.
This isn't a question about the propriety of what the staff do, or about how we could intervene. What I'm wondering about is how much Ikey feels pain when he does the pulling. Does it hurt a lot, but the compulsion causes him to do it anyway? Does his desire and the distracted nature of what he is doing make him just not notice it? (It's also possible that he enjoys the pain.) Though he is verbal, he hasn't been able to answer when I've asked about it.
There's no way, of course, that anyone here knows the answer. I'm interested to see if people who do similar things have an awareness of how they experience it.