toothless
this is mr shadow,my support cat
i am very mad.
i have lived in my own apartment with 24/7 staff since january this year [a drop down from the previous 2:1 support in a care home] and ive had no problems with support until my support got changed to a new team of staff who are based in the office next door as the other team were based at my old complex needs autism specialised care home and are now shut down,the new team are under the label of mental health so they arent trained in autism apart from one of the managers.
now,in my apartment,i strip off and wear just my nappy and my sports bra,i hate clothing with a passion because i have huge sensory issues with them.
ever since the change,one of my old staff who has become employed by next door is suddenly telling them that he doesnt like me dressing the way i do in spite of telling me he is ok with it,and one of the managers who is totally arrogant says its totally inappropriate for me to dress that way in my own apartment and i need to wear something.
when i explain i have massive sensory issues with clothing, and also have epileptic seizures when i get to hot [theres very little ventilation and i cant have patio doors open because mr shadow [my cat] is indoor...the arrogant manager says i have to wear something light such as a kaftan [something cultural that african people wear] or a dressing gown because otherwise i have no dignity and distress the staff,she has NO FKING UNDERSTANDING OF AUTISM.
i cannot wear clothes full stop,i only tolerate them when im going out,would you put up with something that causes you pain and distress constantly?
one of my old support staff who has also transfered to next door is in support of me and understands my autism,she says theres no dress code on my tenancy so they cannot lawfully force me to wear what they say.
another staff-one of the managers [they have loads of them] told me my sensory toys were not age apropriate when she saw me transfixed with my rainmaker while i was coming in the hall way and she said i need to get age apropriate toys,i felt like no one understands autism next door.
another time,another mental health trained manager/senior support worker who started working with me had a go at me when she realised i cant wash my own hair,or do my own shoe laces or put my own nappy on etc, she said i can do those things myself and did not understand i have excessive difficulties with tasks that have a lot of steps to them,she thinks im just like the service users next door who all have schizophrenia or personality disorder im the only one here who has autism and intellectual disability,i was only housed here as i had been in respite for months after being kicked out of the care home and this place came up-i had to take it as no where else accomodated rabbits in the garden and a cat and fish.
anyway,those are my annoyances,i am so fed up.i want to stay living here but get direct payments instead so i can employ my own staff who know more about my disabilities.
i have lived in my own apartment with 24/7 staff since january this year [a drop down from the previous 2:1 support in a care home] and ive had no problems with support until my support got changed to a new team of staff who are based in the office next door as the other team were based at my old complex needs autism specialised care home and are now shut down,the new team are under the label of mental health so they arent trained in autism apart from one of the managers.
now,in my apartment,i strip off and wear just my nappy and my sports bra,i hate clothing with a passion because i have huge sensory issues with them.
ever since the change,one of my old staff who has become employed by next door is suddenly telling them that he doesnt like me dressing the way i do in spite of telling me he is ok with it,and one of the managers who is totally arrogant says its totally inappropriate for me to dress that way in my own apartment and i need to wear something.
when i explain i have massive sensory issues with clothing, and also have epileptic seizures when i get to hot [theres very little ventilation and i cant have patio doors open because mr shadow [my cat] is indoor...the arrogant manager says i have to wear something light such as a kaftan [something cultural that african people wear] or a dressing gown because otherwise i have no dignity and distress the staff,she has NO FKING UNDERSTANDING OF AUTISM.
i cannot wear clothes full stop,i only tolerate them when im going out,would you put up with something that causes you pain and distress constantly?
one of my old support staff who has also transfered to next door is in support of me and understands my autism,she says theres no dress code on my tenancy so they cannot lawfully force me to wear what they say.
another staff-one of the managers [they have loads of them] told me my sensory toys were not age apropriate when she saw me transfixed with my rainmaker while i was coming in the hall way and she said i need to get age apropriate toys,i felt like no one understands autism next door.
another time,another mental health trained manager/senior support worker who started working with me had a go at me when she realised i cant wash my own hair,or do my own shoe laces or put my own nappy on etc, she said i can do those things myself and did not understand i have excessive difficulties with tasks that have a lot of steps to them,she thinks im just like the service users next door who all have schizophrenia or personality disorder im the only one here who has autism and intellectual disability,i was only housed here as i had been in respite for months after being kicked out of the care home and this place came up-i had to take it as no where else accomodated rabbits in the garden and a cat and fish.
anyway,those are my annoyances,i am so fed up.i want to stay living here but get direct payments instead so i can employ my own staff who know more about my disabilities.
