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Hello!

Hi, I'm Billy. I'm 43 years old and have self diagnosed, although I'm on the (long long) waiting list to be formally diagnosed. I've always been aware than I saw the world differently to other people and have always been a bit off key and eccentric. I remember my mam taking me to the doctor over my 'delirious' behaviour back in the 70's but of course nothing came of it. The visit was triggered by me sometimes getting out of bed and crying because the bed covers felt strange on me. I had always put such things down to being just quirks of personality, and the crippling social difficulties down to a screaming lack of social confidence.

It was actually a former work colleague who had a son with Apergers who implied that I had very similar traits so I dutifully scoured. It was both a revelation and a shock to discover that all of these things which I felt were exclusively, uniquely (and weirdly) just me were actually commonly shared experiences amongst a section of people in society. I found myself looking back over the many things I had experienced over the years and was able to explain what was previously unexplainable. It all tied in.

Of course I struggled with this revelation at first. A cpmplete change of self concept is not something you can accept or adapt to easily, particularly at my age.

So this is where I'm at. I don't need a formal diagnosis for self validation but for other people really. When you break your leg, you know you've broke your leg and don't need a medical professional to confirm this. However, it's not until it is typed into a computer by a doctor that it becomes valid in the eyes of the profession and therefore by others. In this respect I am currently in limbo.
 
... When you break your leg, you know you've broke your leg and don't need a medical professional to confirm this. However, it's not until it is typed into a computer by a doctor that it becomes valid in the eyes of the profession and therefore by others...
Right. I get this. It is really difficult to be constantly challenged and invalidated. You end up having to defend your experience rather than just being able to discuss it or get support. If you feel a professional diagnosis would help in this regard, it seems appropriate to seek it.

Also, hi. :]
 
Welcome to AC BIlly, like you I didn't find out till later. I was 50 and whilst I was happy knowing why I was the way I was, it was still a big shock realising I wasn't unique.

Enjoy your stay at AC, there are a lot of like minded folk here.
 
For me it's the fact that I am 43 years old and most people's concept of the condition is 'Rainman', which of course I'm not. I have not 'came out' if you like because of this. I also worry that my 12 year old daughter will be stigmatised by it. It's a delicate age for her to start with.
 
I was already known for being eccentric so coming out was no problem for me. My kids are all now diagnosed so it's a family thing for us.
 
I think when I do tell people who know me it will probably be met by disbelief followed by a kind of dawning 'Oh yeah' kind of thing. When you are always the odd one out people tend to stick all kinds of labels on you to make sense of it. At last they will be presented with the correct one and hopefully they will see that.
 
Hey there, Billy. i'm almost 49 and just self-diagnosed recently. It was a shock to find others who shared similar 'weird traits' that i have. Your description feels much like you're talking about me :P
 
Hey there, Billy. i'm almost 49 and just self-diagnosed recently. It was a shock to find others who shared similar 'weird traits' that i have. Your description feels much like you're talking about me :P

Cheers mate, It's good to know that others have shared similar experiences, particularly people around my own age. I wonder how many of us were misdiagnosed as having something else as a kids back in the 70's/80's.
 
Hi Billy :) I'm the same age as you, 43, and was diagnosed just over 2 years ago. I had all sorts of issues growing up, and at one point the school wanted to move me to a slow learners class, or even a special school, and a teacher mentioned to my parents that I had autistic traits, but my parents and the GP wouldn't hear of it because I was a) intelligent and b) able to talk and interact. So all sorts of excuses were made for my odd behaviour, I was kept in mainstream school, a private tutor was hired for me to catch up with schoolwork (the teacher who thought I was autistic), and I was made to sit and do mental agility tests every evening after school. There were one or two others in the school with various issues who struggled through school academically and/or socially and never received any diagnosis or help; thankfully, this has changed as there is a greater awareness of autism and other learning difficulties.
 
I struggled at school myself and never learned much as I can't concentrate in a classroom situation. Too many distractions.
I think it's great that there's far more awareness now, which means kids today have the support and therefore opportunity to reach their potential.

One way to look at it is that the medical professions hadn't caught up back then. Another way is that we were just 20 years ahead of our time. ;-)
 

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