CDD option.

[SignOfLazarus]

I get that this may be viewed as nitpicky, but I really don't think it is.
I noticed that child desintegrative disorder- self diagnosed is an option in profiles, and I'll just be frank and risk the back lash, but that doesn't make a lot of sense.

CDD is a very rare, progressive neurological disorder (about 1/100,000 I think.) Given that and some other factors about it (which might make sense to hold off on unless necessary because then it's broadening a specific discussion regarding people who may be users here) it really doesn't lend to self diagnosis.

It's not really about being picky personally, it's more about giving people a better opportunity to have a more genuine experience- which is obviously prompted by my personal discomfort.
As a user, I certainly only speak for myself but in doing so I'm saying that a self dx of CDD really doesn't jibe (and I get that's possibly making some sort of technical statement of what is or is not legitimate but stats are stats regardless) and makes me think maybe the better offering would simply be the self dx of other spectrum disorder and not offer CDD self dx.

Obviously a personal concern.

 

[Christopher Nicholson]

I have to agree that condition is not something you can self diagnosis. In fact by the description in the DSM V there would be some major issues at a young age, no waking up at age 40 and taking an online test for this.

 

[Grumpy Cat]

It's not really about being picky personally, it's more about giving people a better opportunity to have a more genuine experience- which is obviously prompted by my personal discomfort.

What does this mean?

 

[SignOfLazarus]

It's not really about being picky personally, it's more about giving people a better opportunity to have a more genuine experience- which is obviously prompted by my personal discomfort.It's not really about being picky personally, it's more about giving people a better opportunity to have a more genuine experience- which is obviously prompted by my personal discomfort.

What does this mean?

I tried to explain it previously.

As a user, I certainly only speak for myself but in doing so I'm saying that a self dx of CDD really doesn't jibe (and I get that's possibly making some sort of technical statement of what is or is not legitimate but stats are stats regardless) and makes me think maybe the better offering would simply be the self dx of other spectrum disorder and not offer CDD self dx.

It's not really possible to self-diagnose as CDD due to the way the disorder manifests, the complications it presents and the rarity; it makes me really uncomfortable that it's an option, but to get around that people might very much feel they fit this option and to respect that the option of self dx'd spectrum could be suitable instead.

 

[Grumpy Cat]

But if the CDD self diagnosis bothers you, does that mean that the Aspie self diagnosis does too? From what I've read, it's very difficult to correctly diagnose an adult for Asperger's Syndrome because they may have changed their mannerisms too much as they have grown older. Then there are others who are unable to afford getting diagnosed.

I'm still not understanding the "it's more about giving people a better opportunity to have a more genuine experience" part.

 

[SignOfLazarus]

But if the CDD self diagnosis bothers you, does that mean that the Aspie self diagnosis does too? From what I've read, it's very difficult to correctly diagnose an adult for Asperger's Syndrome because they may have changed their mannerisms too much as they have grown older. Then there are others who are unable to afford getting diagnosed.

I'm still not understanding the "it's more about giving people a better opportunity to have a more genuine experience" part.

I explained why, you can read my explanation and see where I explained specifically how it is different and look it up if you don't feel that is enough information. There is a significant difference in the diagnostic procedures and criteria for CDD versus aspergers- the reasons I feel it appropraite to bring up my concerns are provided in my posts here on this thread and i'm not sure I need to continue to defend them- it's a concern I have.

Regardless, the final decision isn't up to me or you. I'm really just expressing a concern that may or may not be shared by others on the board and may or may not be considered important enough to make a change to profiles. Clearly everyone else is welcome to present why they agree or don't agree or whatever other perspective they have on the issue- but debating with me directly probably doesn't make sense as i don't have any direct effect on board policy and I've presented what I'm going to present until a staff member has further input/questions or there are unclear points that I have not already specifically discussed in these posts.

I don't really want to argue and no, I don't have a problem with self diagnosis in general. I kind of have a problem with people suggesting I mean things that I don't actually say, so I would rather people don't do that. Particularly when I take the time to specifically point out reasons for my concern. This has happened before and it is quite frustrating. I mean what I write.

Here, I mean I'm not going to defend why something makes me personally uncomfortable. I feel I have already laid it out. If there are other specific issues you want to discuss I always respond to PMs.

 

[Grumpy Cat]

Then I disagree. And I also think if you are waiting on a staff member to answer, then address the problem to a staff member through PM and don't make a thread about it. I believe that is the reason everyone got on my case before about the subject of "threads being closed" - I shouldn't have made a thread about it and just brought up the situation directly with a staff member.

I'll just be frank and risk the back lash

This tells me that you knew you would get some angry people regarding this subject.

To be honest, I don't really know why it bothers you so much? I haven't even seen anyone on the site pick that as their diagnosis. You don't link the CDD self diagnosis to Aspie self diagnosis, but that was the first question that came to my mind and I would be personally offended if I was a self diagnosed Aspie. Since I'm NT, that's all I'm going to say about that.

The self diagnosed Aspies will have to speak up.

 

[Judge]

As SignOfLazarus pointed out, CDD is inherently a more complex and rare condition. If people could successfully self-diagnose CDD, it would not likely be so statistically "rare" by professional neurological standards. Not so?

On the other hand, it's not all that surprising to me personally to hear more and more people diagnosed with ASD. Whether they are self-diagnosed or formally diagnosed. Not to mention the panic and alarm of the NT world regarding autism in general.

Seems like a logical, quantitative argument. I'm not offended.

 

[Aspergirl4hire]

As SignOfLazarus pointed out, CDD is inherently a more complex and rare condition. If people could successfully self-diagnose CDD, it would not likely be so statistically "rare" by professional neurological standards. Not so?

On the other hand, it's not all that surprising to me personally to hear more and more people diagnosed with ASD. Whether they are self-diagnosed or formally diagnosed. Not to mention the panic and alarm of the NT world regarding autism in general.

Seems like a logical, quantitative argument. I'm not offended.

I'm not having a problem with it, either. It's fine to have a public discussion. If it needs to escalate, that's what the report button is for. I don't think people should have to go private just because of either misunderstanding or failure to understand. It should be because of a violation of the friendly, safe space for apes of various neurologies.

I believe this discussion already happened, at length, a while ago. Maybe I'm missing something.

 

[Grumpy Cat]

I'm thinking that I need to explain my position more as I see the situation. In the bigger picture of things, if one "self diagnosed" Aspie's position is to be questioned, then all "self diagnosed" Aspie's positions should be questioned. That's in my own personal opinion, of course. The CDD diagnosis may be rare, but evidently there are cases out there. I have yet to see a member here pick that option as their identity making me still wonder why this subject is of such importance.

 

[King_Oni]

Perhaps it's not as much of importance as it is just to have a conversation about it. Afterall, not every thread we have going is of utmost importance. However, I can see why Laz is bringing it up.

I wasn't even aware CDD was a thing until this thread brought it up (and thus I would assume this disorder was added to a list later).

That's what I was going to say at first. But then some issues came up I had to deal with as AC staff;

Given the recent course of events, it seems this thread cannot exist without alarmbells ringing in the overseer office. Too many complaints going on about this thread. And we policing this thread will end up in warnings, post-edits and eventually, closure anyway. Better step in now.

Thank you