Autism VS Chronic Illness

[Minty]

Does anyone else here have health issues that conflict with their needs as an autistic person?

Example:
I have a disorder that causes me to faint if I stand suddenly or for too long.
One remedy is to wear compression socks.
I have never tried to wear compression socks because I find it hard enough to wear normal socks.

 

[Streetwise]

Does anyone else here have health issues that conflict with their needs as an autistic person?

Example:
I have a disorder that causes me to faint if I stand suddenly or for too long.
One remedy is to wear compression socks.
I have never tried to wear compression socks because I find it hard enough to wear normal socks.

For me panic attacks but it makes me want to be with people for a certain period of time and then I very quickly want to leave, I think also having to where polar fleece because of poor circulation I would prefer to wear no clothes at all just don't like clothes .
I also have weakness down my left side ,have to use a Rollator to walk, I hate the idea of anybody seeing me at all having a Rollator means people see me even more. Being forced talk to a GP Who obviously doesn't like me because of autism .I know don't use emergency medicine because I suffer the same disrespect.

 

[Katleya]

Ooh, a fellow POTS-sufferer?

I have EDS. The "funny" thing is that there seems to be some kind of link between that and Asperger's, but sometimes they call for opposite needs.
I do have compression gloves and clothes, in addition to the socks, but you can guess how that goes (especially the gloves, in fact).
It's especially tricky regarding career choices: my best bet as an Aspie would probably be to give up on trying to keep an office job, and either go back to what I did years ago that was more physical, or be my own boss. Except I am sometimes unable to walk or hold an object, and that can last anywhere from days to months, so I'm not exactly fit enough for either of these options. Conversely, a part-time, quiet office job would be best in terms of physical health --except this Aspie does not fit in and always ends up badly harassed.

 

[Minty]

Ooh, a fellow POTS-sufferer?

Informally diagnosed (as in, my pediatrician years ago said I was having an abnormal number of vasovagal episodes, and my symptoms fit really well) but in the process of finding a GP who takes my insurance so I can get tested.

It's frustrating as hell, having orthostatic intolerance and stuff. I can't even be a cashier unless I have a chair.

 

[Katleya]

Informally diagnosed (as in, my pediatrician years ago said I was having an abnormal number of vasovagal episodes, and my symptoms fit really well) but in the process of finding a GP who takes my insurance so I can get tested.

It's frustrating as hell, having orthostatic intolerance and stuff. I can't even be a cashier unless I have a chair.

Yeah, I know the struggle. Hope you find that GP soon, so that you can get tested.

I feel that what helps the most is the compression leggings (technically, I have them for the hypermobile joints in my legs and the blood pressure issues, though), but they're so tight that I can't put them on on my own. I absolutely need someone to help me get past the knees, and then past my butt. The last thing you want is to need to go to the toilet, once they're on Needless to say, sure, they help, but I hardly ever wear them because of how hard they are to get on, unless I know there will be a greater risk of fainting than usual. Oh, and the feeling when I take them off, that's one of the greatest reliefs I know.
I remember some weird testing, like I was sat on a chair & they'd put warm or cold water in my ears to see if anything caused dizziness. That and a bunch of other stuff, like a spinning chair, I think. But that was many years ago, my memory is probably blurry from all the fainting.