• Feeling isolated? You're not alone.

    Join 20,000+ people who understand exactly how your day went. Whether you're newly diagnosed, self-identified, or supporting someone you love – this is a space where you don't have to explain yourself.

    Join the Conversation → It's free, anonymous, and supportive.

    As a member, you'll get:

    • A community that actually gets it – no judgment, no explanations needed
    • Private forums for sensitive topics (hidden from search engines)
    • Real-time chat with others who share your experiences
    • Your own blog to document your journey

    You've found your people. Create your free account

Recent content by Markmark

  1. M

    4 YO having mini-seizures, Tonic-clonic?

    Check my new thread called clobazam, update
  2. M

    Clobazam anti-seizure med, anyone have any experience with it

    Took our son up to the hospital last night, after having about 6 small seizures through out the day, seen a doctor this morning and he gave us a prescription for clobazam in the USA is called ONFI. Thanks
  3. M

    4 YO having mini-seizures, Tonic-clonic?

    Thanks a lot Major420, I really really hope so too, poor little guy is going through enough let alone this seizure mess.
  4. M

    4 YO having mini-seizures, Tonic-clonic?

    Does your son only get them when he has a fever? My son has had a cough the last 2 weeks or so, but no fever.
  5. M

    4 YO having mini-seizures, Tonic-clonic?

    His diet now is so bad, can’t get him to eat anything, mostly just junk food
  6. M

    4 YO having mini-seizures, Tonic-clonic?

    Thanks Myway, we haven’t yet as they are just recently starting to happen. It doesn’t last too long, 10 to 15 seconds but I think it doesn’t last that long because he bites his tongue so hard
  7. M

    4 YO having mini-seizures, Tonic-clonic?

    Can anyone help, taking 2 or 3 a day, he tightens right up, shakes, but then he bites his tongue real hard, enough to make it bleed, seems like the pain from the tounge hurts so much, that it snaps him out of the seizure. He goes to sleep right away after it happens. This is worrying me, thanks
See more
Top Bottom