MROSS
Well-Known Member
In a nutshell, the dilemma of being not disabled enough, yet not quite able enough either; dilemmas facing many adults with Aspergers, yet rarely addressed.
Quite a few years ago, our state's agency coordinating government, and non-profit services for developmental disabilities changed eligibility requirements for adults with low support needs - yet best practices toward developing services for adults with least restrictions to independence has been lacking.... to say the least.
Simply put, state developmental services are unable (or unwilling to) acknowledge clients who are well..........not "disabled enough."
The common-thread for needed services for clients with both low, and high support needs are something like consumer advocacy services- yet again, state agencies are unwilling to contract with trusted non-profit consumer advocacy services.
Personally, I'm able to budget to hire a private service (a fiduciary might "fit the bill") to provide consultation services once annually, and to consult with trusted relatives, and family friends - to provide the resources that developmental services have failed to provide!
One such example in The 'Autism Forums' discussion-thread 'Paying Bills' (LINK) disusses the problems resulting from online bill paying services (offered by banks) malfunctioning - hence the difficult steps to convert to reliable, "older school" methods to handling, and paying bills.
Such a difficult process may require customers to "jump through hoops" to resolve bill-paying - a duanting consumer issue (especially with the Autism Spectrum) which may require a trusted private professional service (or trusted friends/relatives) to act as third-party consumer advocates.
Any similar experiences?
LINK: Paying bills
Quite a few years ago, our state's agency coordinating government, and non-profit services for developmental disabilities changed eligibility requirements for adults with low support needs - yet best practices toward developing services for adults with least restrictions to independence has been lacking.... to say the least.
Simply put, state developmental services are unable (or unwilling to) acknowledge clients who are well..........not "disabled enough."
The common-thread for needed services for clients with both low, and high support needs are something like consumer advocacy services- yet again, state agencies are unwilling to contract with trusted non-profit consumer advocacy services.
Personally, I'm able to budget to hire a private service (a fiduciary might "fit the bill") to provide consultation services once annually, and to consult with trusted relatives, and family friends - to provide the resources that developmental services have failed to provide!
One such example in The 'Autism Forums' discussion-thread 'Paying Bills' (LINK) disusses the problems resulting from online bill paying services (offered by banks) malfunctioning - hence the difficult steps to convert to reliable, "older school" methods to handling, and paying bills.
Such a difficult process may require customers to "jump through hoops" to resolve bill-paying - a duanting consumer issue (especially with the Autism Spectrum) which may require a trusted private professional service (or trusted friends/relatives) to act as third-party consumer advocates.
Any similar experiences?
LINK: Paying bills
