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Late diagnosis conundrum...

  • Author Author jane
  • Create date Create date
  • Blog entry read time Blog entry read time 1 min read
I recently received a letter from my GP (I have been pursuing a diagnosis of Asperger`s since my forties) it states...`although there is some information regarding social interaction there is no indication of restrictive/repetitive behaviours which would warrant an assessment.If you are able to source more information about this,you are welcome to come back to us.` This was sent from the Mental Health Partnership (Autism service for adults) after a long battle to secure funding from my GP`s practise.
I do not know where to begin....

Comments

tree
"...there is no indication of restrictive/repetitive behaviours which would warrant an assessment. If you are able to source more information about this,you are welcome to come back to us."

Do you have friends/acquaintance, relatives who could attest to this?
Or your own documentation showing such?

Even a diary which showed that you, for instance, eat the same meals
over and over, or wear the same clothes, avoid people by crossing the
street or looking away or not answering the phone....etc?

I am not trying to mind read with these examples.
They are just examples for the purpose of illustration.
 
jane
tree said:
"...there is no indication of restrictive/repetitive behaviours which would warrant an assessment. If you are able to source more information about this,you are welcome to come back to us."

Do you have friends/acquaintance, relatives who could attest to this?
Or your own documentation showing such?

Even a diary which showed that you, for instance, eat the same meals
over and over, or wear the same clothes, avoid people by crossing the
street or looking away or not answering the phone....etc?

I am not trying to mind read with these examples.
They are just examples for the purpose of illustration.
Click to expand...
Tree,you have helped.I have got so used to some of my restrictive behaviours I guess I don`t think of them as `restrictive` thinking about it,I do wear the same clothes if I can get away with it,avoid shops/town in case I see anyone who may try to talk to me and I am actually not answering the phone as I type this....just got used to how I am I guess.Thank you for taking the time to comment.
 
A
You can probably get more helpful responses to your question if you post it on a forum thread. You may even find an answer already posted in a thread if you search existing threads.

Medical people will probably respond better to you if you can cite symptoms or behaviors from the DSM. I have a link to that on a thread I started. You can always Google it too.
 
Streetwise
Get a second opinion ,I went to my GP is for years and they obviously had no knowledge of it.
One thing you could do is look up GP practices on the NHS website and see if any GP specialises in disability they may be able to diagnose autism where another GP only knows orthopaedics
 
B
Hi Jane, I was diagnosed with a
Aspergers last year at the age of 44, getting a diagnosis was far from easy, I was told, to refer me, was expensive & at my age what did I want to achieve? I contacted the assessment centre myself who were hugely supportive, I told them of my experience with my unhelpful doctor so they e-mailed the practice manager & explained the process to them. About 6 weeks later I received a letter for an app. for my diagnosis. Which was the best thing I ever did. EVERY person has the right for a diagnosis.
 

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