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Recent content by Momofone23

  1. M

    Introduction - Mom to 21 year old w/multiple dx

    No worries at all, it would be easy to miss since it's a lot of writing! Well....just got home from seeing the other show that my son is part of. Drove there with another mom who is also an OT and a friend and her son is in the show as well. I'm kind of not sure what to even say, and I know that...
  2. M

    Introduction - Mom to 21 year old w/multiple dx

    Wow, these all sound like amazing books, and sounds like you have certainly been through a lot yourself! I would love to get the PDF of your latest book. I'll send you a pm with my email. My son is actually not the one who wrote anything for the shows, it's the music therapist and director of...
  3. M

    Introduction - Mom to 21 year old w/multiple dx

    Wow! How did you ever find time to write 4 books, that's amazing! I would love to see them, are they on Amazon or how can I see them? And thanks so much for the offer to help with advice for an article or book, I really appreciate it. I have ideas of what I envision for an "Invisible" show or...
  4. M

    Introduction - Mom to 21 year old w/multiple dx

    Thank you so much for your kind words and support. I truly appreciate it! Wish I would have known about this forum long ago. Very thankful to have found you all! :)
  5. M

    Introduction - Mom to 21 year old w/multiple dx

    Thanks so much! :) It's no easy feat that is for sure! And I haven't gotten much in place as of yet, but hopefully will soon.
  6. M

    Introduction - Mom to 21 year old w/multiple dx

    Wow! If I didn't any better I would think you were a fly on the wall in my house because pretty much everything you describe about your wife, and your own experiences, is almost an exact carbon copy of my son, and I what I experience dealing with him and with others. I cannot thank you enough...
  7. M

    Introduction - Mom to 21 year old w/multiple dx

    Thanks so much! I love the Arc, they are wonderful! In fact, I just a few weeks ago learned that they have a Beneficiary Advocate who helps with things like waivers, services, etc. I started working with her and so far she really seems to know her stuff, and understands my son's level of need...
  8. M

    Introduction - Mom to 21 year old w/multiple dx

    Your wife is very lucky to have you! And I guess that is actually one of my biggest concerns in my son's case. The truth is that it would be much easier if he were a female in so many respects, especially when it comes to thinking of longterm relationships, marriage, kids, etc. I shudder to even...
  9. M

    Introduction - Mom to 21 year old w/multiple dx

    Thanks so much! Yes, I totally agree with you, and I think that is my son's biggest challenge at this juncture. However, there's also somewhat of a catch-22 in that it's almost impossible for him to see or understand just how impaired he is and the critical life skills he's missing because he...
  10. M

    Introduction - Mom to 21 year old w/multiple dx

    Thanks so much for all of your helpful information. Unfortunately (or I guess fortunately) we've pretty much done everything on your list. The neuropsych who evaluated my son about 3 years ago I sought out specifically for his speciality in evaluating and diagnosing ASD, Aspergers. He's very...
  11. M

    Introduction - Mom to 21 year old w/multiple dx

    Thanks, let me give that some thought. It could be a little dicey for him because while he's chronologically 21 he is nowhere near that in emotional maturity, and he's also pretty emotionally fragile, so not sure how it would work. I'm actually his legal guardian, which I applied for just before...
  12. M

    Introduction - Mom to 21 year old w/multiple dx

    So glad that you have found your way and your "tribe." My son has several friends with ASD, Aspergers, and many other life challenges through a music therapy program he's very involved with, which has been a lifesaver! But I guess in his mind because he's not technically ASD, Aspergers, etc., he...
  13. M

    Introduction - Mom to 21 year old w/multiple dx

    Thank so much! Yes, we are in the US not too far from DC :)
  14. M

    Introduction - Mom to 21 year old w/multiple dx

    Thanks so much for your very informative and helpful response. I actually forgot to mention that my son also has ADHD (inattentive type). And boy, it sure does sound like your wife has very similar challenges to my son. He has had God knows how many evaluations, including a full neuropsych about...
  15. M

    Introduction - Mom to 21 year old w/multiple dx

    Hello, I'm so happy to have found this forum. I'm a single mom to a 21 year old son who lives with me full-time. He has a VERY complex profile and we are at the point now where I'm desperately trying to find him the help/support he needs to have any chance for a viable future. I'm hoping maybe...
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