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Social Pragmatic Communication Disorder

My impression on first learning about it seems to be that it is some sort of offshoot of Nonverbal Learning Disorder. I was diagnosed with co-morbid NLD along with my AS, but I have met people who were diagnosed with NLD but left off the autism spectrum...so I wonder if SPCD is an attempt to clarify certain aspects of personalities.
 
I was diagnosed with it recently. They basically didn't know how to diagnose me when I came in suspecting Asperger's, and after digging a bit in my history (read: interviewing my mom) decided that while I did (just) meet the cutoffs for ASD, the social/pragmatic stuff was more of a problem now, in daily life, so the ASD label would be "over-pathologizing" me. She said previously under the DSM-IV, I would probably have been diagnosed PDD-NOS or possibly Asperger's. Of course, if I had been diagnosed with either of those, I would now be considered ASD, which makes sense in terms of protecting existing services/treatment, but is a bit funny in that my diagnosis depends on when I went to see a psychologist.

I have a number of suspicions about it, since there doesn't seem to be any substantive reason it's not considered part of the spectrum, except perhaps being a combination of people whose social and pragmatic difficulties are comorbid symptoms of other disorders (ASD among them). I mean, if it's really a spectrum, what's wrong with extending it to encompass SCD folks? And if it's really a separate disorder, then what distinguishes it when its symptoms are the same but less severe/numerous (or perhaps better-hidden)? To me, it seems like a catch-all for people that they can't 'fit' into the other categories quickly and cleanly...and possibly a misunderstanding of the aspects that are supposed to distinguish them (restricted and repetitive interests/behaviors).

The opinions of a Boston U researcher: Evidence Weak for Social Communication Disorder
I haven't found a ton of other information, so I'd be interested to hear more, too.

Plus, the fact that I'm in Hong Kong, the psychologists involved specialize in children, and I'm supposed to be difficult to diagnose as a 'gifted' adult female...I find it hard to trust. But then, I have trouble letting a point go, even when it's more theoretical than practical. For the purposes of treatment, does it really matter if I am SCD or ASD? Doesn't seem to. So maybe I just have to be patient.
 
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This is bran new in the DSM as of last year. Any thoughts about the differences between this and ASD ? Especially HFA. Or any great links you can share with more added info on it? Anyone here have this but, not ASD? I'm not an expert on this. But, want to learn more. Any thoughts?

New to the DSM: Social (Pragmatic) Communication Disorder

Another link: Autism in DSM-5
The last two paragraphs are pertinent (first, about the criterion that separates ASD from SCD, repetitive and restricted behaviors/interests, and second, about SCD specifically):

"A DSM-5 diagnosis of ASD also requires that the specific fixated interests and repetitive behaviors criterion be met. Although these symptoms have been required for the diagnosis of autism from DSM-III onward, there have been few in-depth studies of these behaviors. When they have been studied, it is often assumed that they represent a common factor, but this may not be true. Studies have shown that fixated interests and repetitive behaviors are frequently present in people with autism and Asperger's disorder. But three factor analysis studies (46) suggest that there may be two categories of fixated interests and repetitive behaviors: one associated with “insistence on sameness” and the other with repetitive sensorimotor behaviors. If someone has social communication deficits and poor mentalizing ability, then he or she might be expected to wish that social and environmental factors remain predictable. Sensorimotor repetitive behaviors tend to be correlated with less-developed intellectual skills, specific language deficits, and younger age. To demand that sensorimotor fixated interests and repetitive behaviors be present for the diagnosis of ASD could exclude many people who do have significant social communication symptoms but lack the sensorimotor symptoms. However, there needs to be confirmation of this two-factor model or identification of a better model.

"There is a final, and rather unexpected, feature of DSM-5 on which I must comment. There are two diagnoses in DSM-5 that appear quite similar: autism spectrum disorder and social communication disorder. The latter is listed in the new diagnostic category of language impairment. Persons with social communication disorder have an “impairment of pragmatics” and impairment in the “social uses of verbal and nonverbal communication.” The presence of fixated interests and repetitive behaviors is required for ASD, but it is an exclusionary factor for social communication disorder. In the past 20 years, social communication disorder has been studied extensively by speech and language specialists. My review of this literature convinces me that ASD and social communication disorder are the same disorder, except for the required DSM-5 presence of fixated interests and repetitive behaviors in ASD. I wonder if social communication disorder was included as an attempt to better define mild autism. However, to introduce a fairly similar category to autism spectrum disorder, more than 60 years after Kanner's and Asperger's landmark publications, could be clinically disruptive. The diagnosis of autism (i.e., pervasive developmental disorder in the past three versions of DSM) has long been incorporated into a network of official research, public health, school, and reimbursement systems. How will these systems deal with ASD and social communication disorder? There is no discussion of this in DSM-5, but perhaps the field trials will illuminate any conflicts."
 
I have been diagnosed with SCD but do not fall on the spectrum. Its caused a great deal of confusion for me because I identify with all of the traits in AS save for the ritualistic behavior and this is supposedly the line in the sand" so to speak that separates SCD and AS. Currently there is no such thing as SCD in the ICD of international index for mental health disorders. Its a new thing and still being debated. People are unsure still of where SCD really stands and what it is. I read a very good article addressing this topic and the need for clarification on SCD. In my opinion if we're going to say that autism is a spectrum, and acknowledge the fact that SCD is one of the main, foundational "mother" symptoms in AS and therefore linked in an intrinsic manner then I dont know why we've decided to make it stand alone. To me SCD is not enough to be its own thing alone.

FURTHERMORE..... SCD is not even available as a diagnosis option on this site. My point being there is a lot of mystery around this new disorder.

Here is the article that will lay out the basics on SCD:
Social Communication Disorder—is it "Autism Lite?"
 
I've never been formally diagnosed - just self-diagnosed. But I do not think I have repetitive behaviors. I relate to everything else about Asperger Syndrome, though. Who knows. I honestly don't think the professionals have any genius reasons for how they decide to slice up this pie either.
 
I have been diagnosed with SCD but do not fall on the spectrum. Its caused a great deal of confusion for me because I identify with all of the traits in AS save for the ritualistic behavior and this is supposedly the line in the sand" so to speak that separates SCD and AS. Currently there is no such thing as SCD in the ICD of international index for mental health disorders. Its a new thing and still being debated. People are unsure still of where SCD really stands and what it is. I read a very good article addressing this topic and the need for clarification on SCD. In my opinion if we're going to say that autism is a spectrum, and acknowledge the fact that SCD is one of the main, foundational "mother" symptoms in AS and therefore linked in an intrinsic manner then I dont know why we've decided to make it stand alone. To me SCD is not enough to be its own thing alone.

FURTHERMORE..... SCD is not even available as a diagnosis option on this site. My point being there is a lot of mystery around this new disorder.

Here is the article that will lay out the basics on SCD:
Social Communication Disorder—is it "Autism Lite?"
It's another way for the drug companies to get money out of you
 

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