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New here…

Suited_Stranger

New Member
…and a little nervous. My name is Ryan and I’m not sure where to start. It’s recently been brought to my attention that I may posses more than a few autistic traits. I have been told my whole life, and even my parents were told, that I displayed spectrum characteristics. My wife and I are starting the journey into parenthood, and as difficult it may be, I would like to finally have an answer to a question I believe I already know the answer to. I don’t mean to come off as arrogant and self-diagnosed, I just don’t know where to start. It’s seems that adult diagnosis (I’m 41) is quite hard (and expensive), and am searching for resources and possible answers. I am both scared and confused as even the small things I do know leave me w a mountain of questions. Thank you…I assure you I’m not always as doom and gloom.

R
 
…and a little nervous. My name is Ryan and I’m not sure where to start. It’s recently been brought to my attention that I may posses more than a few autistic traits. I have been told my whole life, and even my parents were told, that I displayed spectrum characteristics. My wife and I are starting the journey into parenthood, and as difficult it may be, I would like to finally have an answer to a question I believe I already know the answer to. I don’t mean to come off as arrogant and self-diagnosed, I just don’t know where to start. It’s seems that adult diagnosis (I’m 41) is quite hard (and expensive), and am searching for resources and possible answers. I am both scared and confused as even the small things I do know leave me w a mountain of questions. Thank you…I assure you I’m not always as doom and gloom.

R

Hi Ryan :)
I don’t think anyone on here (to my knowledge anyway) would equate self-diagnosis with arrogance. Definitely not from reading this very respectful introduction post you have here.

So not to worry, you’re safe here! And self-diagnosis and being undiagnosed are still valid, because that is your own experience, and it’s what feels right for you until you are ready to pursue a formal diagnosis (if you wish.)

Welcome! :)
- Luca
 
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Hi Ryan :)
I don’t think anyone on here (to my knowledge anyway) would equate self-diagnosis with arrogance. Definitely not from reading this very respectful introduction post you have here.

So not to worry, you’re safe here! And self-diagnosis and being undiagnosed are still valid, because that is your own experience, and it’s what feels right for you until you are ready to pursue a formal diagnosis (if you wish.)

Welcome! :)
- Luca
Hi! Thank you so much for replying so quickly! I appreciate your support from the get-go, it means a lot. I would definitely like to pursue a formal, or close to, diagnosis. I’m not sure if this is even necessary at my age, but I find self-diagnosis tests a bit vague (or at least the ones I’ve seen). I hate to beat a point, but I do not want to be disrespectful to the autism community by self-diagnosing either. I’m glad to just have found a group that I can feel safe with.

thank you again…
 
Hi! Thank you so much for replying so quickly! I appreciate your support from the get-go, it means a lot. I would definitely like to pursue a formal, or close to, diagnosis. I’m not sure if this is even necessary at my age, but I find self-diagnosis tests a bit vague (or at least the ones I’ve seen). I hate to beat a point, but I do not want to be disrespectful to the autism community by self-diagnosing either. I’m glad to just have found a group that I can feel safe with.

thank you again…

You’re welcome, happy to have you on board! :)
Feel free to ask whatever questions you have!
 
I hate to beat a point, but I do not want to be disrespectful to the autism community by self-diagnosing either.

I might be wrong, but I think there are plenty of self-diagnosed people around these parts. Also, I self-diagnosed and speculated for quite a long time before I got diagnosed (which was a bit later in life as well).

Welcome!
 
Hi and welcome. I self diagnosed after a lot of research plus having experience of working with young people and their parents who were diagnosed with ASD 1/Aspergers. You are an adult, and if on looking into this you find it fits how you are, then you are quite likely correct.

Yes I think getting a diagnosis can be tricky, there are a lot of variations in how that goes, my impression is more for women and girls who may present differently to males, who were assumed to be more likely to be in this category, and the diagnostic criteria somewhat favours males still.

I expect you have taken a look at those as you question if you fit this diagnosis. I see this as a normal neurological variation, which currently is much misunderstood. It is highly inheritable, so that you may have either neurotypical or neurodiverse children if you are in the category.

Central to the experience of ASD1 for many or most, are communication differences and difficulties with unstructured or other social communication. These would be lifelong. One myth I often notice people have sometimes believed is that if we have this different neurology we can't change anything about ourselves; this isn't true at all, there's plenty we can change.

For example, like anyone, we develop attachment styles in childhood, and research shows we are similar to neurotypical development in that area. Depending on varied factors, we may develop more secure or more insecure styles, and these affect relating too.

We can work on moving towards higher security in relating, even whilst we may have some other less changeable components to our experience of relating, for example we may have processing delays, and take time to understand what the other person means, or not know what we feel emotionally sometimes, it may be hard to define.

As adults, we have likely developed strategies for some of all this. We may always have been assumed to be neurotypical, as autism has only more recently started to be better understood, and mostly that's still a hurdle, that people associate the term with Dustin Hoffmans Rainman portrayal. The real person portrayed didn't have autism, as far as I understand it.

People with ASD1 often pass unnoticed at school, just that kid who has trouble making friends, but their schoolwork is ok or even great, if they get around to doing some homework and study.

But as young people or adults we can run out of ability to easily mask our differences or perceived deficits, or we may realise that our experience is consistently different in some areas than our peers, and we may also get feedback about that. Sounds like you have, hopefully from trusted sources?

Hang out here and join in discussions and post some threads, you'll find out more about how this all fits for you.

:bicyclist::snowboarder::surfer::walking::runner::rowboat::rocket:
 
Welcome!

Indeed part of the reason why many older adults are self-identified rather than formally diagnosed is that there are very few practitioners with adult diagnosis expertise (and willingness to take money is not akin to having experience), and as you've noted, it can be costly as well. I think $2000-$3500 is a common range for private diagnosis though some have gotten them for less.

I don't remember the source, but I remember reading somewhere once that about 70% or so of those who go on a journey to seek a diagnosis eventually get one - I suppose that suggests that those who see potential signs and are sufficiently interested (and for many on the spectrum, learning as much as they can about the spectrum often becomes a special interest of its own) are more likely than not to be on it.

Best wishes on your journey and see you around.
 
It’s seems that adult diagnosis (I’m 41) is quite hard (and expensive), and am searching for resources and possible answers.
R

The diagnosis of autism as an adult is only an answer to the questions you've had about your life. At this point, you're not a child, you're not going into therapy to try to learn how to deal with your symptomatology, you're not learning basic life skills,...that train has already left the station. You are who you are.

If you are in the USA, (1) seek out an autism testing center that does adult testing. In my area there were 3 or 4 places I could have went, but I chose the local mental health campus (inpatient and outpatient) near me. (2) In the USA, most outpatient health insurance coverage will not be available once you are past the age of 18,...or so they will be quick to tell you. **Interesting thing though,...the mental health facility will know the proper medical coding to get you a deep discount** I had the money to pay for my testing and assessment. I was fully prepared for the nearly $1600 or so. I had already spoken to my insurance company. However, when I mentioned it to the office staff before I had my appointment, they quickly responded with,..."Don't worry about the price, let us handle it on our end." Sure enough, a few weeks after my appointment, I got a bill for around $200. I don't know what ICD coding they used on my paperwork with my insurance company,...but it worked without a problem.

So, my advice,...make some calls to testing centers near you,...specifically you are interested in an adult specialist,...and then, talk about billing. If they are knowledgeable about the proper coding to give you a break on the price,...and know approximately what that price is,....then I would have the professionals do their diagnosis.

From your post, it presents as if you have a high intellect and function socially relatively well,...married, a little one on the way, are concerned about "misdiagnosing" yourself, etc. I was in a similar situation,...seeking answers. It helped a lot simply being aware of myself, doing a lot of learning about autism, what that means when interacting with people, finding out how I can do my own self-learning and therapy, so on and so forth. Being professionally tested,...you certainly find our a lot about yourself,...it was eye-opening,...and highly recommend it to anyone who is able.
 
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Greetings Ryan -

I am new here as well and looking for insight just like you.

As mentioned, finding a qualified psychiatrist or psychologist that is well versed in assessing and diagnosing HF ASD1/Aspergers in adults is a challenge. In my research, the ones that are truly qualified are no longer taking new patients and I am reluctantly accepting the fact that I will have to lower my expectations. In either scenario, I still have to travel as there are zero qualified providers near me.

In the meantime, I am working my way through Dr Tony Attwood’s ‘The Complete Guide to Asperger’s Syndrome’ which is a incredible resource. I highly recommend you get a copy as it will help you better understand the world of HF ASD1/Asperger’s as well as prepare you for visiting a provider for a official diagnosis if you go that route.

Also check for Dr Tony Attwood on Youtube as there are a plethora of helpful videos.

Link to book:

https://www.amazon.com/Complete-Gui...ix=The+complete+guide+to+asper,aps,167&sr=8-1
 
Welcome to the autism forums. Check out the threads...a lot of them will help you determine if you are on the spectrum, some are just a lot of fun. Enjoy. Its a good group!
 
Hello,

Im about your age, I am pretty sure that I have autistic traits, not sure if enougth of them to be considered autists, aspie or just a weird NT.

I also doubt if paying a diagnose or not in the future. This video helped me to clarify, the Channel was also usefull:


Welcome to the forum. :)
 

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