1. Welcome to Autism Forums, a friendly forum to discuss Aspergers Syndrome, Autism, High Functioning Autism and related conditions.

    Your voice is missing! You will need to register to get access to the following site features:
    • Reply to discussions and create your own threads.
    • Our modern chat room. No add-ons or extensions required, just login and start chatting!
    • Private Member only forums for more serious discussions that you may wish to not have guests or search engines access to.
    • Your very own blog. Write about anything you like on your own individual blog.

    We hope to see you as a part of our community soon! Please also check us out @ https://www.twitter.com/aspiescentral

New ASD Diagnosis

Discussion in 'Parenting & Autism Discussions' started by Dr Jordi Arranz, Apr 11, 2019.

Tags:
  1. Dr Jordi Arranz

    Dr Jordi Arranz New Member

    Messages:
    2
    Joined:
    Apr 11, 2019
    Karma:
    +2
    Hello everyone!

    This is a message addressed to parents and families of people with ASD.

    We are a young med-tech start-up working towards a revolutionary and completely novel diagnostic tool that will simplify enormously the detection and diagnosis of ASD in both children and adults. The method we are developing is fast, non-invasive, inexpensive.

    We are currently in the process of identifying the hurdles of the current diagnostic process of a person with ASD. We are reaching out to you as you know better that anyone what these issues are and we kindly ask you to help us understand them. The better we understand what these problems are --- time, money, complexity, accuracy, support, etc. --- the better we can be helpful in improving the future diagnosis of ASD.

    For instance, how long you did you have to wait to get the diagnosis or how hard was to find a qualified professional to perform the diagnosis?


    Dr. Luka Opašić, MD, Dr. Jordi Arranz, and Dr. Aristea Zafeiropoulou — The Alkyon Team
     
    • Friendly Friendly x 1
  2. Isadoorian

    Isadoorian Well Known Chat Member, Welcomer of Newcomers V.I.P Member

    Messages:
    1,454
    Joined:
    May 16, 2018
    Karma:
    +2,334
    You've stated who you are, but not who you're working for. Is it a University, Hospital, or some other Organisation? Is it a Public or Private one? Just "The Alkyon Team" gives nothing. I also googled it just now and nothing but hotel listings comes up. You also forgot to list what Degrees your Associates have. Are they MDs as well? Do they have PhDs?

    You've also not given a more accurate description of this supposed "revolutionary technique" in diagnosing Autism; how does it work? What is it exactly? Is it a machine? Is it more like the traditional tests that people already do to be diagnosed? More information/context is vital in these kinds of things.

    Given that you haven't done any of this and instead have used a fairly vague description, I'm going to be skeptical on this whole thing.
     
    Last edited: Apr 11, 2019
    • Agree Agree x 8
    • Winner Winner x 2
    • Like Like x 1
    • Friendly Friendly x 1
  3. Fridgemagnetman

    Fridgemagnetman I only have one V.I.P Member

    Messages:
    5,996
    Joined:
    Jan 31, 2017
    Karma:
    +11,903
    Is it called listening?
     
    • Like Like x 5
    • Winner Winner x 4
    • Funny Funny x 2
  4. Dr Jordi Arranz

    Dr Jordi Arranz New Member

    Messages:
    2
    Joined:
    Apr 11, 2019
    Karma:
    +2
    First of all, thank you for reading us. You are completely right about your doubts. As I mentioned, we are a start-up company in the early stages of formation. Regarding our credentials, one of us is indeed an MD, the other two have a PhD in computer science and a PhD/Postdoc in theoretical biology. We are basically 3 scientists - coming from academia - who are being backed by an important tech-incubator to pursue this venture. Our solution is a technological solution, the research is already there.

    Our method it is not a traditional test. The test consists of sitting in front and simply looking at a stimuli on a screen for a short amount of time (~5 minutes).

    Regarding our online presence there is no website yet, sorry about that. We would like to point out that we are not here to try to sell you anything. We just want to gather some useful information.
     
    • Informative Informative x 1
  5. Catana

    Catana Well-Known Member V.I.P Member

    Messages:
    290
    Joined:
    Feb 25, 2018
    Karma:
    +764
    As far as I'm concerned, this is far too vague and speculative for anyone to cooperate with. It isn't as if the world is lacking endless numbers of research endeavors to improve diagnosis. Maybe when you can supply more concrete information....
     
    • Agree Agree x 6
  6. Tom

    Tom Well-Known Member V.I.P Member

    Messages:
    4,968
    Joined:
    Jan 7, 2015
    Karma:
    +10,883
    You must pardon my skepticism but their is much attention (and quackery) on autism these days. What exactly do you monitor and is there any published research on whether this diagnostic technique actually works?
     
    • Agree Agree x 4
  7. Isadoorian

    Isadoorian Well Known Chat Member, Welcomer of Newcomers V.I.P Member

    Messages:
    1,454
    Joined:
    May 16, 2018
    Karma:
    +2,334
    Then in that case, where did you all Graduate from? Are you newly/recently graduated? Or have you been out in the field for some time?

    Also, (and I'm going to be blunt and forward with this) I'm afraid I fail to see how this is revolutionary in any way and don't see how it's any better than what's being done with practical testing when seeing a Medical Professional who deals w/ Autism. Quite frankly, just sitting in front of a projector screen looking for signs/reactions in the person, whatever those may be, sounds boring and doesn't seem like a good diagnosis tool whatsoever to begin with. You've still not even given how it all fits together either. How are you supposed to diagnose someone with Autism based on Stimuli after looking at them for a few minutes? Do you record them for later reviewing? Again, please provide more context, and give credible proof that this is possible, if you can via Research Papers/Reports, etc. etc.. Have you done tests to see if this is even viable in any way, shape or form at all?

    Again, I'm truly skeptical about this whole "technique" of yours.
     
    • Agree Agree x 1
  8. Nervous Rex

    Nervous Rex High-functioning autistic V.I.P Member

    Messages:
    1,571
    Joined:
    Dec 9, 2017
    Karma:
    +4,360
    • Winner Winner x 1
    • Informative Informative x 1
  9. Nervous Rex

    Nervous Rex High-functioning autistic V.I.P Member

    Messages:
    1,571
    Joined:
    Dec 9, 2017
    Karma:
    +4,360
    You already know how your test is expected to perform, so you must be looking to compare it to current processes. It sounds like what you are looking for is material for your marketing / sales pitch.

    Asking people on a forum to volunteer anecdotes seems like a decidedly non-scientific approach. You can search this site for threads where individuals share their diagnosis experiences, but you're going to get skewed data, since people give more attention to outlier experiences and tend to brush off and ignore the most common experiences. That may be what you want, as product promoters tend to compare the best of their products to the worst of their competitors:
     

    Attached Files:

    • Agree Agree x 2
  10. Nervous Rex

    Nervous Rex High-functioning autistic V.I.P Member

    Messages:
    1,571
    Joined:
    Dec 9, 2017
    Karma:
    +4,360
    Clicked "Like". Then clicked "Undo Rating". Moused back and forth between "Funny" and "Winner". Finally chose "Winner."

    Wish I could click "Like Funny Winner."
     
    • Funny Funny x 4
  11. Fridgemagnetman

    Fridgemagnetman I only have one V.I.P Member

    Messages:
    5,996
    Joined:
    Jan 31, 2017
    Karma:
    +11,903
    In the trade we call that '''category drift' :)
     
    • Like Like x 2
    • Funny Funny x 1
  12. Aspychata

    Aspychata But this is my happy face.....

    Messages:
    1,141
    Joined:
    Feb 12, 2019
    Karma:
    +2,010
    Whoa there, you are talking to a group who specialize in taking huge info dumps, looking for questions that aren't answered, and you left us with way too many questions obviously. l feel like l am at a restaurant and you gave me the ala carte list, but the main entrees are missing. Maybe tailor your presentation to your readers, as my wise english teacher remarked.
     
    • Like Like x 2
    • Agree Agree x 1