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Is It Common To Find Oneself Further On The Spectrum Then One Imagined But...

Captain Caveman

Well-Known Member
V.I.P Member
... Still be able to generally function?

It can be that my I.Q. can over-ride any issues as I have learned ways to do things that work for me.
An example is that I sill keep automatically changing subjects as I speak to reach the point later that I wanted to say by coming at it from a different angle, because if I tried to tackle it dead on and came straight to the point my mind would freeze up and I would not be able to think, and that is just one example I can think of.

But apart from somehow finding myself seen as different or "Odd" and not being able to "Fit in", where I eventually came to the conclusion that I should not even try, as years of trying just brought me to a mental mess of a being that could never be who others tried to make me be in order to "Fit in"... (Isn't it annoying when people give advice on how to fit in but don't do themselves the things they expect you to try and do? To me, that is hypocritical!)

BUT in many ways, I used to be able to almost hide in an neuro-typical land if I masked my way through and kept my head down... Though what they don't tell you about "NT Land" is that those who have learned themselves, or whom have been taught how to negotiate life in NT Land and seemingly hide ones usual traits so one may "Look" non-autistic, is that despite this, one does find oneself bullied and picked on, where those who are outwardly autistic would be more protected as no one bully would want to be seen to pick on an obviously vunerable victim where it is a guarantee one will be in trouble for when one is found out! Yet an unknown autistic (Be they undiagnosed and not realize they are on the spectrum, or someone who knows and has not made it known, and who has the ability to mask and hide their traits), they can end up beingbullied and taken advantage of without them having a means to defend oneself, as if one complains to someone in charge, one is told to grow up or looked on as if it is ones own fault. One gets the "What do you want me to do about it?" semi sarcastic rejection of ones complaint!
(I have actually had this attitude towards me from an autism social worker who obviously did not have the ability to put mentally herself in the shoes of someone who is on the spectrum! I am not saying that she wasn't trying to help (And it is no one who I am currently dealing with) but it left me feeling rejected and "What's the use of asking for help?" (She just told me what I already knew expecting me to just go ahead and do it. It was because I could not just go ahead and do it was why I went to her! The thing I needed help with in trying to obtain the benefit I am supposed to be entitled to that others seem to get has been ignored to this day, which means financially I am not able to do some of the things I would have liked to do so I find myself restricted, but that is how it is unless one has someone who will directly help one make things work instead of just saying what needs to be done and leaving the person one has told unsupported without even a follow up or an interest in how they got on!)
[Bear in mind I am autistic, and though I come across as an NT, I can't just breeze through obsticles that come my way like an NT can! I do admit that in certain circumstances an autistic can have the upper hand and help NT's along, and many a time many an NT has come my way for one of those things, which is where I can be vunerable to be taken advantage from... Though I try not to let this be known, especially after breakdowns due to being taken advantage of so many times!]

But anyway.... While I don't like being in the position of being thought of as an allistic person eho is then blamed for not being allistic like NT's happen to be, it can be worse when autistic individuals reject one as well claiming that one does not have the difficulties they have, so one "Can't be autistic". One feels like one can't win! :D

BUT at least I know I am on the spectrum, and what really surprized me is how far on the spectrum the results have been.
I had thought, and actually argued (Before I was assessed) that I was in a unique position of being a BAP (Someone who is neither autistic or allistic, but rather in the middle, BUT what I didn't realize is why I could see things from both sides, is that since a very young child onwards, I have been studying people in order to try and predict and understand them! Well, it does not really work. More I pretend that I understand them! As I still do not know why an NT would even want to actually cram themselves into crowded pubs and nightclubs to "Unwind" and do it night after night to relieve stress! (Ooh, I understand relieving stress, but one can buy a decent bicycle for that, and commute into work, and on ones way back home go and overtake a few cars travelling at 35-40mph! That will get rid of stress!!! But a crowded pub or a nightclub to relieve stress? Isn't that going out of one of those frying pans and into the fire type of thing?)

Ooh. Yes. Also something that has been part of life which some autistic people may understand though only a few allistic people may understand are the shutdowns which for me take place in physical forms. So much so that it took me most of my life to discover what they were! Doctors didn't know and I have been seemingly tested for everything which alesys came up clear. From diabetis to aids, and thought of and treated as a hypercondriact who ended up being refused to be seen (I get shutdowns from hospital and doctors surgery smells. Did they think I would WANT to be there if I wasn't desparate after having to quit job after job? Changing doctors surjeries to new ones who took me seriously and as old doctors conveniently lost all my NHS medical records, it was the best thing that could have happened, as now the new doctors had to actually listen to me and not just sit there for the one 3 minute appointment one could get per year and stare at their watch and purposfully yawn, and when the three minutes were up he would ask me to leave, like a doctor used to do to me! Changing doctors felt like coming out of a third world country and into the modern world!)

BUT why was it that I spent most of my life not knowing I was autistic and on the spectrum? And how is it even possible, that some one can be assessed with results so far onto the spectrum and yet no one else (Apart from a few very clever people which actually puzzled me as I honestly thought they were pranking me when they told me or asked me if I was autistic), ever noticed that I was! How is that even possible when looking back over my life, and some of my family members and relitives lives, that no one even knew? (I am the only one who has been assessed as UK tends to generally only assessed those who ask to be assessed after somehow they find it is a possibility which is why the UK official figures as a percentage of the population are so low).

The dangers of undiagnosed autistic individual who like me, went right into their mid to late 40's before finding out and their 50's by the time they were assessed, is that we could have saved ourselves through some serious burnouts and mental breakdowns had we have known! Just because things look as if we are coping so "Don't need a diagnosis" doesn't mean we always are, and one of the most difficult things for me was that I was never able to ask for help because there was no way I could put feelings into words! Having access (After changing doctors surgeries) to doctors and even having the Samaritans phone numbers were useless when one didn't know how to put ones feelings into words while going through what others have said (When I did later describe it) was a mental breakdown... As one can't ask for help without describing what one is going through... Yet one can't describe what one is going through when one is going through it! (Something I don't even know how to tell others what to do if in that situation! The only thing I reasoned would have worked is if I as a human being could have been allowed to be seen by a vet, as I reasoned that vets diagnose without their patients needing to talk! I did eventually find people I could open up to and these were autism assesing psycologists who knew what questions to ask to get my emotions to come flooding out so I could talk! They knew the state I was in and wanted me to be assessed straight away so I could get help, but they were told they were not allowed to have me jump the queue, so it was another four years and a change of areas to speed things up that I was assessed after a four and a half year wait).

But anyway! :D Morning everyone!
 
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The dangers of undiagnosed autistic individual who like me, went right into their mid to late 40's before finding out and their 50's by the time they were assessed, is that we could have saved ourselves through some serious burnouts and mental breakdowns had we have known!
"You're preachin' to the choir, sister."

I wasn't so good at hiding my differences so instead I used to flaunt them a bit, other than that your story sounds very much like mine.
 
Welcome to the club. I have to echo @Outdated quote above. In my case I didn't know I was autistic but always knew I was different and got my way through life studying people, heck even did a Cultural and Social Anthropology degree. I only found out last May and I'm in my early 40's. It was always, to me at least, an above average IQ helping me get by and thinking that while I was obviously a bit of an odd guy I was still able to pass in society. Well apparently not as well as I thought, because when I told my my workmates about being autistic their response was "We had talked about this amongst ourselves and assumed you were autistic".

But since finding out I am autistic and now being aware of how I handle situations and what sensory factors really bother me, I do find that I really am further along on the spectrum than I ever thought. Ultimately though for me, the understanding of being autistic has made sense of my world and I'm able to thrive now not having to try and be a neurotypical. I've relaxed into true self.
 
I was diagnosed in face to face interview with a panel of three. At the end of it all they announced I was most definitely ASD2, bordering on ASD3. I said "I didn't think I was that bad." and they all just smirked at me.
 
It is an interesting phenomenon that human beings are horrible at evaluating themselves. It's like this old saying that "stupid people don't realize they're stupid", and for the crudeness of that statement, it's true. Then there is the Dunning-Kruger effect where when people have a little bit of knowledge on a topic, they have disproportionately high degrees in confidence about what they know. It isn't until more knowledge, experience, and mistakes occur over time that they look back and realize they foolishly didn't know anything. After nearly 40 years in my field of study, I have far more questions now than I did at 10 years of experience. There's something about the statement that "sometimes you don't know what you don't know" and as a result, you're oblivious to your ignorance. Stay humble and keep your mind open because without those two qualities you'll stop learning.

I had a similar experience with my autism testing. I went to a cognitive performance lab and it was quite interesting. There exercises that seemed pretty easy, some more difficult, and some I literally couldn't do at all, which really pissed me off and confused me. What kind of Jedi mind trick were they playing? I can do everything, maybe not well, but I can do it. When my mind locked up, me sitting there red-faced, angry, confused. I had never experienced that sensation, ever. Then, during my interview with the psychologist afterward, the same thing happened, she was describing how to do this simple, childlike, exercise. Once again, me sitting there, red-faced, angry, and confused. I couldn't even mimic what she was doing, and it seemed like something a 3 year old might do. Not me.

A few months later, she sat me down, with a nice 12-page report, a breakdown of all my strengths and weaknesses, where I was cognitively in different areas, and of course, the areas where I had "severe" deficits that I didn't know I had. It was then, my whole life sort of passed through my mind, and the "lightbulb" went on, and I finally had the answers to all the events and things in my life that I struggled with and was confused about.
 
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My wife told me for years I was on the spectrum, and for years I dismissed it and outright said if I was on the spectrum it was "just barely ", so why would it matter. I had a stable job, and we had been married 20+ years, after all.

Turns out there was no "barely" about it. While I am level 1, the testing showed solidly autistic. When I took online tests to disprove my results, they all agreed, and when I read up on autism, I found my lifelong idea of my "normal" was very autistic.
 
I had a stable job, and we had been married 20+ years, after all.

Turns out there was no "barely" about it. While I am level 1, the testing showed solidly autistic. When I took online tests to disprove my results, they all agreed, and when I read up on autism, I found my lifelong idea of my "normal" was very autistic.
My experience, as well. I think both of our avatars say a lot. ;)
 
Sure. Why not?

Discovering that one's own individual traits and behaviors can be at different "amplitudes" seems to be an astute observation IMO.

Regardless of whether one might be ASD level one, two or three. After all, who ultimately knows more about our traits and behaviors than ourselves?
 
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... Still be able to generally function?

It can be that my I.Q. can over-ride any issues as I have learned ways to do things that work for me.
An example is that I sill keep automatically changing subjects as I speak to reach the point later that I wanted to say by coming at it from a different angle, because if I tried to tackle it dead on and came straight to the point my mind would freeze up and I would not be able to think, and that is just one example I can think of.

...

I can definitely relate to this topic. If you find such commentary helpful for the introspection you are contemplating, I would point out that there are some pretty distinctive things about your sentence structure. You do have a tendency to drag out sentences quite long, which is something I probably have in common. Something we tend to do, is we will lasso some internal concept with a short phrase, and then assume someone else is going to get it, but it just comes out sounding weird. That is something I catch myself doing constantly, and I have to proof-read quite a bit to find it and fix it. When you say something like "mental mess of being", that is the kind of thing I'm referring to. But again, it's not criticism, I guess it's our natural tendencies. If you want to try to improve your clarity, I hope advice helps. I'm 45, so I've had a lot of time to ruminate. There's this comic strip called Strange Planet, and the aliens always use extremely technical (analytical) language to discuss ordinary things, and I think that's a fundamental trait of autism. I think what happens is that your thought process works differently, so naturally, you attempt to word things in the least common denominator, and you come out sounding like a child who is overly descriptive, and it puts people off, when you are just attempting to be detailed precisely so that anyone can understand you.

I spent a lot of time within a community back in the states, but I wound up leaving the country. To make a long story short, it came to me as a tremendous shock that I have no idea how to communicate with people, and especially no idea how to join a community and participate in it. It is utterly bizarre to me how it's possible to perceive yourself as doing identically the same thing as everyone else, but they don't see it the same. They see it as bizarre, and unpleasant, and they will distance themselves from you and make themselves unavailable, but sometimes they will go so far as to call the police. It's come as a tremendous shock to me and it's very difficult to cope with alone.
 
... Still be able to generally function?

It can be that my I.Q. can over-ride any issues as I have learned ways to do things that work for me.
An example is that I sill keep automatically changing subjects as I speak to reach the point later that I wanted to say by coming at it from a different angle, because if I tried to tackle it dead on and came straight to the point my mind would freeze up and I would not be able to think, and that is just one example I can think of.

And yes, it's possible to "generally function", thought that depends on your definition, because I think most people would regard total social disconnection as a significant dysfunction. As I always say, though, I'm the one that's reaching out, and I don't see where the problem is. What I do see, is tons of rejection, and there's no fixing it or addressing it.

In terms of "general function" with non-persons, I don't see any issues. I know I"m clumsy and uncoordinated, and I have a lot of difficulty improving at musical performance even with tons of practice. I was always picked last for sports. But, aside from that, I can do everything. What really comes through, to me, is that lack of coordination shows up in your social interactions, and people can't deal with it. They think you are ridiculous and bizarre, and it's overwhelming me how hard it is, especially now at 45.
 
Some parts of the original post are familiar. As an adult, I "should" be able to function with my level of ASD. (I'm not diagnosed.) The people around me are accepting and don't seem to care much about my differences.

The problem is that I don't even know how much the autism is holding me back. When trying to get help, what's its role compared to the many other issues that I have? Having had these issues for 25 years with barely any treatment, it's hard to see how I can get "fixed". This is especially so because just the process of seeking treatment sends me into meltdowns of anxiety, depression and suicidal ideation.
 
Some parts of the original post are familiar. As an adult, I "should" be able to function with my level of ASD. (I'm not diagnosed.) The people around me are accepting and don't seem to care much about my differences.

The problem is that I don't even know how much the autism is holding me back. When trying to get help, what's its role compared to the many other issues that I have? Having had these issues for 25 years with barely any treatment, it's hard to see how I can get "fixed". This is especially so because just the process of seeking treatment sends me into meltdowns of anxiety, depression and suicidal ideation.

A fundamental issue is, to me, that there is a lot of stuff that comes naturally to others, which you have to do intentionally, and that comes off as bizarre and disconcerting to people. In my opinion, it's not something that can be fixed, because if it's not natural to you, it's just not. I can do almost everything physically, but the problem is that people are looking at exceedingly subtle things to decide whether they like you, and it's deeply depressing how irrelevant those things ought to be. I've zero interest in fixing myself, and I would much rather find a circle which is accepting. I don't think my appearance or tendencies are a big deal, but tell that to the people who attempt to have me detained by the police.
 
I can do almost everything physically, but the problem is that people are looking at exceedingly subtle things to decide whether they like you, and it's deeply depressing how irrelevant those things ought to be. I've zero interest in fixing myself, and I would much rather find a circle which is accepting. I don't think my appearance or tendencies are a big deal, but tell that to the people who attempt to have me detained by the police.
Maybe I haven't yet accepted the autism community's stance, but I do see my deficits as important to at least moderate. It's not often that I think that the world is unfair in their expectations.

I have little idea how much masking I do naturally as opposed to what I have actively think about. Most of the people that I know, as far as I can tell, think of me as an NT, maybe one who is a bit different. That someone would call police for the weird things that I do as an adult isn't something I worry about.
 
Maybe I haven't yet accepted the autism community's stance, but I do see my deficits as important to at least moderate. It's not often that I think that the world is unfair in their expectations.

I have little idea how much masking I do naturally as opposed to what I have actively think about. Most of the people that I know, as far as I can tell, think of me as an NT, maybe one who is a bit different. That someone would call police for the weird things that I do as an adult isn't something I worry about.

Well, everyone is different, along with the presentation of their traits. I would agree with you that it's good to introspect and fix yourself first, but I get the inverse of "you had me at hello". I find that people turn their nose up at me and keep walking, and with tremendous consistency. There's no opportunity to fix anything, or to adjust the direction of the conversation, because it was never welcome and it was preempted.

I actually have a specific story about the police. I was at a shopping center, and I took out my phone to take a picture. You understand that phones are exceedingly common. So, what I got yelled at was for using my phone in public. I told the lady "I'm sorry, that's discriminatory because everyone else uses their phone, and I want to talk to your supervisor". When the police showed up, their chief complaint wasn't even stated. It consisted of mimicry and mockery because they objected to my inflection and tone of voice. Well, guess what, I didn't choose those, and if you want me to be shiny and happy, stop being a bigot! When they realized they couldn't justify the abuse of police authority, they lied and told the police that I lunged at them. That's how this world works, and I really don't understand what you're supposed to do. My experience is that they just get worse if you don't say anything.
 
Maybe I haven't yet accepted the autism community's stance, but I do see my deficits as important to at least moderate. It's not often that I think that the world is unfair in their expectations.

I have little idea how much masking I do naturally as opposed to what I have actively think about. Most of the people that I know, as far as I can tell, think of me as an NT, maybe one who is a bit different. That someone would call police for the weird things that I do as an adult isn't something I worry about.

I don't want to assume gender, but I also want to note that I think there's a tremendous gender-based difference with regard to how people with autism are treated. If you're male, you're seen as a gruff-voiced and abnormal monster, about on par with a hobo. Not that poor people should be treated like that, and I'm sure there's plenty of overlap between the two groups, while we're at it. If you are male, they will call the police or try to fight you. Women certainly have disadvantages in life, but this one is more distinctly male. I would like to think people are a bit more ashamed to be abusive towards ladies.

EDIT: To be fair, I know women face their own problems, definitely. However, they're usually not the ones who get accused of having a dangerous attitude. I do think it's important to point out that everyone has their own perspective, and when you hear some other group complain about how they see the world, you should take into account that you haven't walked in their shoes.
 
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I was diagnosed in face to face interview with a panel of three. At the end of it all they announced I was most definitely ASD2, bordering on ASD3. I said "I didn't think I was that bad." and they all just smirked at me.

I didn't get a level due to the difficulty the testing administrators had in separating my extreme social deficiencies from being deaf/nonverbal, but I had the exact same behavior issues as my ASD2 son, including similarly inconsistent IQ testing. Back then, they wanted to ship me off to a state boarding school for specialized support.

That IQ can make up for deficiencies is a well established phenomenon. My deafness and inability to speak alone precludes meaningful employment. I can get automatic disability support any time I need. But here I am, limping along. And I'll keep limping along until I can't.
 
It can be seen on this forum and not only that many are assigned level 2 based on the presence of sensory issues and need for routine that interfere with life. For many people on the spectrum it is like in many areas they are a level 1 ir it's not a problem at all, then they have some areas in which the autism symptoms are deliberating - an uneven skill or cognitive profile, very common among autistic individuals. It can also vary a lot how you cope based on whether your environment is favourable or not, for example lots of sensory overstimulation because of your lifestyle can lead to a lot of shutdowns and meltdowns, but stop going to shopping malls, taking the bus, work in a peaceful office, read books instead of watching TV, have a regular lifestyle and you're doing fine.
 
It can be seen on this forum and not only that many are assigned level 2 based on the presence of sensory issues and need for routine that interfere with life.
Although I have a few sensory issues they are something I was born with and I learnt to live with them and work around them quite well. For me the trouble was always emotional sensitivity. I'm unable to recognise the social cues for the Hen Pecking Order and that's a game that I'm unable to take part in, but a lot of people live by this system and will bully you until you meekly accept your place.

I never did anything meekly in my life and I have very strong instinctive reactions to bullies. I never had any trouble finding jobs but keeping them was another story, my average limit was about 6 months before I'd very loudly dress down the people making my life difficult and quit my job.
 
I didn't get a level due to the difficulty the testing administrators had in separating my extreme social deficiencies from being deaf/nonverbal, but I had the exact same behavior issues as my ASD2 son, including similarly inconsistent IQ testing. Back then, they wanted to ship me off to a state boarding school for specialized support.

That IQ can make up for deficiencies is a well established phenomenon. My deafness and inability to speak alone precludes meaningful employment. I can get automatic disability support any time I need. But here I am, limping along. And I'll keep limping along until I can't.

I think you come off as very bright and articulate. Have you ever thought about searching for a job in chat-based tech support, or something similar? Also, you occasionally see TDD options for customer service/support, so do you suppose they need such operators? If you are happy on disability, then more power to you. I am profoundly disillusioned with the world, and if they're willing to compensate you so that you can survive despite their cruel, and exclusive tendencies, then great.
 
...

I never did anything meekly in my life and I have very strong instinctive reactions to bullies. I never had any trouble finding jobs but keeping them was another story, my average limit was about 6 months before I'd very loudly dress down the people making my life difficult and quit my job.

Yep. My observation is this. People feel each other out for strength, and most of that strength is socially based. If you are the social weakling (in their view), then you are their collective escape valve for pent up frustrations and their entire backlog of ire. Then, when you get sick of it and snap at them; it's just that abnormal weirdo showing that he's anti-social, and you're out on the street. It's rotten, and they get away with it because each one works at like 99% the threshold of what is acceptable, so if you're in a room of five people, you're getting trashed at an almost 500% rate, but you're the one who is going to get thrown out when you complain.
 

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