Hello

[ForestGumpett]

Hi, newly discovered female older Aspie. Went down a rabbit hole watching videos and it smacked me in the face - both my husband and I are sure this is what had been going on. I stay confused, finally answers. Amazed it was missed, feel sure I’ll read some same stories. As a child all the signs were there but absent parents prolly paid a part of not knowing. Nice to meet y’all.

 

[The Pandector]

Welcome @ForestGumpett.

Oh my, yes. Self diagnosed last year at 68. A lifetime of trying to answer the imponderable. The new question is ‘so, now what?’ Glad to hear your husband is with you in this; makes a huge difference to have family in your corner. I hope our group here is as much a blessing for you as for me.

Hope to see you around.

 

[tree]

 

[MyLifeAsAnAspie]

Hi and welcome to the forums .

 

[Thinx]

Hi and welcome, hope you enjoy it here and find it helpful and supportive. There are some interesting threads and resources to read, plus hopefully you will join in threads and tell us your experiences and views, and your strategies too, those are always useful to hear.

 

[VictorR]

Welcome!

 

[ForestGumpett]

Well, I love reading medical books. Yeah that sounds weird to me but I find them fascinating, and how the body works and my studies were mostly on how the brain works. I studied medicine for about 3 years then got sick with Ehlers-Danlos, something your born with that is a genetic defect in the collagen in all organs. It “behaved” itself and I had a full life up until around 2012 and honestly that was a blessing. Having so much time to read after being put on disability in 2015 I found out by chance about the Aspergers. I just thought I was a weird person, reckon that is somewhat true but it’s okay. Stuff makes sense now, and that is really nice.

 

[unperson]

Come on in.

 

[OkRad]

Welcome!

 

[Au Naturel]

Well, I love reading medical books. Yeah that sounds weird to me but I find them fascinating, and how the body works and my studies were mostly on how the brain works. I studied medicine for about 3 years then got sick with Ehlers-Danlos, something your born with that is a genetic defect in the collagen in all organs. It “behaved” itself and I had a full life up until around 2012 and honestly that was a blessing. Having so much time to read after being put on disability in 2015 I found out by chance about the Aspergers. I just thought I was a weird person, reckon that is somewhat true but it’s okay. Stuff makes sense now, and that is really nice.

I went to a specialist a decade ago because I was getting arthritis in all my joints. He told me he suspected that I had a defective collagen gene just from the way I can bend my fingers way back. I probably got it off the discount rack at Walmart. Nothing to do about it. My osteoarthritis will just do what it's going to do. Will eventually have a bunch of joints replaced.

 

[SusanLR]

Welcome ForestGumpett!

Good to have you here.
Lots of interesting posts and people. It really helped me when I was late diagnosed in my fifties.
Hope you find it as helpful and interesting here as I did.

 

[Alexej]

Hi and welcome @ForestGumpett

I love the different versions and dialects of english that is used in here. Are you from the south of the US?

 

[disconnected]

Hello and welcome!

 

[ForestGumpett]

@Au Naturel

I also got the dx of osteoarthritis - it appears that a lot of ppl that have Ehlers-Danlos also have this type of arthritis. The bendable part, that surprisingly is a dependable way to know if a person has the Ehlers however genetic testing is also recommended. People without it are unable to bend like those with Ehlers. It can/will effect your eyes, heart and pretty much everything.

**Sir, if there is a chance that you do have Ehlers please find out before you have surgery and have an anesthesiologist aware if you do have it. I say this out of concern for your safety. A lot of people including doctors are unaware of this genetic defect and it’s affects with anesthesia. Google can be your friend in learning about Ehlers.

I did not know I had this until I was in my 50’s, doctors have been misdiagnosing this as fibromyalgia because they are not aware of Ehlers Danlos and only look for it in children. If your in the EU, you have a better chance of learning about this, American doctors are not being taught about it in schools. Our politicians and pharmaceutical companies have more power over our health than our doctors.

 

[Au Naturel]

@Au Naturel

I also got the dx of osteoarthritis - it appears that a lot of ppl that have Ehlers-Danlos also have this type of arthritis. The bendable part, that surprisingly is a dependable way to know if a person has the Ehlers however genetic testing is also recommended. People without it are unable to bend like those with Ehlers. It can/will effect your eyes, heart and pretty much everything.

**Sir, if there is a chance that you do have Ehlers please find out before you have surgery and have an anesthesiologist aware if you do have it. I say this out of concern for your safety. A lot of people including doctors are unaware of this genetic defect and it’s affects with anesthesia. Google can be your friend in learning about Ehlers.

I did not know I had this until I was in my 50’s, doctors have been misdiagnosing this as fibromyalgia because they are not aware of Ehlers Danlos and only look for it in children. If your in the EU, you have a better chance of learning about this, American doctors are not being taught about it in schools. Our politicians and pharmaceutical companies have more power over our health than our doctors.

I used to have a severe reaction to anesthesia. When I came out of knee surgery they had to keep me there all day and into the evening because I had extreme weakness, nausea, and tachycardia.

The last time I went in for surgery they gave me "twilight anesthesia," aka propofol. I went out almost instantly, and then woke up almost instantly when they administered the counteracting agent. I felt like I'd just had a good night's sleep. I guess technically you're not completely out but you feel nothing at the time, don't move during the surgery, and have no memories.

Brilliant stuff but don't abuse it. Michael Jackson OD'd on it.

 

[Streetwise]

Hi, newly discovered female older Aspie. Went down a rabbit hole watching videos and it smacked me in the face - both my husband and I are sure this is what had been going on. I stay confused, finally answers. Amazed it was missed, feel sure I’ll read some same stories. As a child all the signs were there but absent parents prolly paid a part of not knowing. Nice to meet y’all.

I was diagnosed with hypermobility syndrome at 18 nearly 19 would be blind if I hadn't had laser surgery ,got osteoarthritis everywhere now but I'm not relying on the nhs to care about me.
just like any other human doesn't,it's not likely I'll have surgery ,I think my ankles are beyond what spraining does now ,it's excruciating vomit inducing pain,for some reason it's moved to my big toes, I think I've damaged everything!!!!! else,I haven't got the gout look in my toes
I'm only typing this to remember,memory is bizarre, not for a mass display of sympathy .